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Newly diagnosed and curious about the progression of LS

Posted , 6 users are following.

andrea70692
andrea70692

I am a 49yo female recently dx with LS, I have also had Breast Cancer and they put me on meds to stop the estrogen production so the side effects mimic menopause. How fast does LS progress and does Clob just keep the itching and pain to a minimum or does it slow down the progression?

It also seems there may be some hormonal change corellation that keeps coming across the feeds that I read. Anyone else curious?

1 like, 3 replies

3 Replies

  • 101reebok
    101reebok andrea70692

    Posted

    Hey Andrea

    Sorry to hear you have joined the LS club 😔. If you read all the posts about LS, it’s a mix bag of symptoms and triggers. Some have under active thyroid and some don’t, some have figure of 8 white patches, some don’t. The only thing that everybody has in common is that it’s a lottery out there and it’s totally bad luck if you get it. There is not enough research down to lack of funding. 

    Personally I have tried to stop working out what has triggered it and focus on stragies to cope with it. Read my post on itchy relief.

    I hope you find some relief and support ecpically with your breast cancer, sending my prayers to you 🙏

  • 101reebok
    101reebok andrea70692

    Posted

    Sorry forgot to add that clob slows it down, which helps to relive the symptoms. But there are people on this forum where it partly works, or doesn’t work at all.
  • Bridge_of_Sighs
    Bridge_of_Sighs andrea70692

    Posted

    Hi, I'm in the UK and mine was triggered at menopause. I remember a few people saying that this was the same timing for them too. It's a very mixed bag though, and impossible to unpick. For some of us, hormones are a trigger, but not for everyone. If you stay on these forums and read lots of posts, you'll get the best advice on self care here. I agree with reebok, just focus on looking after yourself and finding a routine to support your health. We are all here to help each other.

    Good luck

    Bridge

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