newly diagnosed bronchietasis, scared!

Another vote here for the effect of Azithromycin. Diagnosed in my 60s and after failed inhalers and a constant cough, I saw an eminent physician at the Brompton who had written a paper on A. It appears it has an ancillary anti inflammatory effect. Whenever I get a cold , it goes to my chest and I have had pneumonia twice this year. Afterwards, I am left with a terrible cough and A. Is wonderful at sorting that out. Starting with 500mg, I trail off over a month ending with 6x alternate days @ 250 mg. 

i had had a cough for years and the initial dose of A. sorted that. It only returns when I get a cold and I revert to A. to sort it again.

I also regularly check my Sats with a pulse oximeter, about £20 at Amazon. 97-99 is really healthy for a fit person, I managed 94 before pneumonia, now not above 92. When I had pneumonia I was down to 86, generally considered a level where oxygen is required.

I'm sorry to jump on this discussion without to be helpful, but After 6 years that I have been diagnosed with bronchiectasis is the first time I really research some support online. 

I have been assured that is not a deadly sickness. I' m under the attention of a specialist here in US. But I'm still scared. 

It happens sometimes that I cough blood (which I have been told can happen). Sometimes I been given antibiotics to fight what maybe leads the bronchiectasis to bleed. 

At that point I really need some support because the fear that I kept inside for 6 years is eating myself. 

I saw some comments here that made me feel a little better. I hope to find more that would help me to fight not only the sickness itself but also that fear that seems I can't chase away. Thank you all!

Hi David I no how you feel unfortunately a lot of pharma meds are tempoty in there relief, have a google of fghp therepy, you can't ship it in any more but you can go abroad for it. I've researched it massively and really hope to do it. Good luck x

Hi David, I too was diagnosed with Bronchiectasis 2 years ago and was mortified! I had been having repeated chest infections and at first they thought that this was due to my immune system being very low due to the high level of painkillers I take for my back condition (severe kyphoscoliosis, and other related problems). I too am 60 yrs young but look s good 10 years younger I have had asthma since I was a baby but up until about 5 years ago I could manage this well and chest infections were infrequent.

I take Seretide 250 and Ventilin and have been prescribed Spiriva Respimat for the past few months which has helped too. At the moment I am undergoing IV antibiotic treatment via a PICC line at home which lasts 2 weeks and I am on day 7. I have to say I was dreading this but unfortunately I cannot get rid of the pseudomonas bug any other way. I had a bad reaction to Coprofloxacin in April and now IV antibiotics are the only treatment. It is far better than having to be in hospital for the IV treatment as the nurse comes each day and changes the Surefuser device which administers the Tazocin through the PICC line. I'm hoping that after one more week I will be infection free for Christmas and a long time after.

I do get very down at the thought of having this disease but the nurses at the Fairs team at tge hospital are very helpful and are available 7 days a week if needed. I would say that when I don't have an infection my inhalers are very good at msnaging my asthma and bronchiectasis. I wish you luck