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hi all, I've just been officially diagnosed with this condition. I haven't been told to what degree the herniation is but that it is causing some CSF obstruction around the bottom of the cerebellum and brain stem.
I have been referred to a NS for a follow up but can't find any mention of this NS being a chiari specialist although the neurologist said "he does most of our Chiari surgeries" this is at UCHW (coventry) hospital.
He said I do not have a syrinx but I have only had a brain MRI which shows the top of the spine only.
My symptoms are mainly pressure headaches (valsalva) but I have been experiencing bad neck & shoulder pain like burning which I had put down to and posture and get lower back pain when standing for long periods. I also get burning pain down the front of my thigh when standing.
I dont one want to assume all these are related to Chiari but don't want to ignore them either. i am hoping the NS will request a full spine MRI.
Also so wanted to get feedback form anyone who has been treated for this condition a this hospital.
Thanks and merry xmas to all
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