Newly diagnosed, confused and scared

Hi Gigi, I know it’s easy to say, but try not to get yourself over stressed as it seems that’s just what this condition thrives on. This group is brilliant for sharing, asking advice and telling each other what we have tried, what works for each of us as well as what doesnt! We know OLP is an autoimmune condition. What has worked for me is giving up all citrus fruit, anything acidic, hot spices foods, spirits and sugary foods.I still have the condition but manage it by staying away from those things and being careful with sharp foods, even crusty bread cuts my mouth. I have taken up gentle Pilates and yoga and this really helps me manage stress. I also have 6 monthly checks with my dentist to make sure all is as good as it can be.  I know others will reply to you too, we are all here for each other. Take good care, Gail x

Hi,

yes this is the same problem that a lot of us have,with me I have periodontal disease,with lots of recession problems and a sore mouth when eating certain items,especially crusty bread or crisps which I have had no control over and every year it gets worse,I think the dentist I used to see just thought I was unlucky and it was hereditary,he left and I saw a different dentist who said I needed a biopsy and was then diagnosed with oral lichen planus, I have to make sure I see the hyhgenist and dentist on a very regular basis.I was also told after being so sore for such a long time that I had vulval herpes,thrush,allergy,dermatitis you name it - that what I was treated for over a good couple of years until the oral lichen planus diagnosis then two and two were put together and I saw a vulval specialist who said I also had vulval lichen planus.Its like being hit in the stomach when you are told,and you feel so alone,but belonging to this website is absolutely brilliant as you finally realise that you aren't on your own and there are a lot of us going through the same thing,which although it's a horrible disease is nice to know as we can all be there for each other and give advice .

ithink be aware of foods that nay be making things worse for you,and even toothpaste,and make sure you are checked by your dentist regularly and also a vulval specialist who will give you creams or ointment to treat the vulval area and keep everything under control,

just remember that you will have support on here and we are all here for you

I too had knee replacement 5 years ago, 3 months after it, all my symptoms began, dry eyes, dry mouth, burning mouth syndrome lp, olp. I'm in st at hospital as I write this, my legs are raw, with LP, draining, I have staff and strep infection, it has invaded my eyes and ears, I'm a mess. headed bavmck to Mayo Sunday as my esphogus has partially closed. scar tissue from l.p., I chock on everything, especially my pills, they get lodged and it's very scarey.