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Super thankful to have found this group. Thought I'd take a moment to introduce myself and ask a few questions.
I was diagnosed about a month ago with LS. I am 45 with no autoimmune disorders or other diagnoses of any sort to speak of.
I have always been healthy. Eat a mostly veggie diet with meat maybe once a week or so and that is always organic and hormone free. I drink lots of water and have been a dedicated yoga practioner for 15 years.
My personal hygeine routine had always consisted of water only. I never used harsh soaps etc. Until recently. 4 months ago I started using Dr. Bronners tea tree soap. The bottle says to dilute; 4 drops per lots of water. I know that I was not using this soap correctly. After only a short period of time I had some burning in the vaginal area on one side. I kept using the soap...I just didnt put it all together. Then after several months I developed a small white patch of skin on one side. I kept using the soap on a wash cloth and wiping the patch away. It got worse and I went to my OBGYN and was diagnosed.
That was about 3-4 weeks ago. I have since stopped using the soap. I used the prescribed Cobestal for only 1 week 2x a day and developed a lot of irritation due to that. I dont think I was using it correctly because I did in fact apply it to healthy skin (I only had one small patch of thin white).
So I stopped using the Clob due to irritation. Then I used over the counter cortisone 1% Aveeno with Aloe for about a week or so.
The thing that confuses me is that I dont have any white patches. I do not itch or burn. At this point I dont know where I would even put the Clob because I dont have any patches.
I do appear fisured on both sides now and have some swelling and redness. I dont know if this is now an irritation to all of the steroids, some vitamin E oil that I used and some vaseline.
I had read "keep the area dry". Now, I read on here to keep the area moist to prevent the sticky fusing.
My questions are: should I go back on the sterioid cream and where would I put it since I dont have any white patches and I dont have any itching? Did the sterioid cream cause the fusing or the LS?
I'm running out now to the health food store to buy coconut oil and aloe vera oil. Will try both of those in lieu of the vaseline.
I'll also buy a spray bottle for the baking soda mixture.
I have been looking for weeks for a Chicago Illinois doctor and cannot find one. Should I find a dermatologist or an OBGYN? I have looked for a Vulvar Clinic and cannot find one in Chicago. (I was diagnosed in north carolina while on vacation so that is not my regular doctor).
Thanks in advance for "listening" and for any advice!
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