Newly diagnosed frozen shoulder - advice needed
Posted , 14 users are following.
Sorry that this is rather long but I came upon this forum after researching this painful condition and thought if anyone would understand, fellow sufferers might, as they would appear to be the "experts" in this little understood condition!
I started with shoulder pain about 4 months ago and after eventually realising my problem was getting worse and wasn't going to get better on it's own, I visited my GP a couple of weeks ago and was diagnosed with a frozen shoulder. He gave me a load of painkillers (with limited effect) and recommended physio. As we have Bupa via my other half's job, I was able to bypass the 12 week NHS waiting list and organise this straight away. I was given the name of a couple of local clinics and chose one that specifically mentioned the treatment of frozen shoulders on it's web site.
I went for my first physion session last Monday and was treated by a nice and sympathetic young woman, who examined me and asked lots of questions. She explained the condition and the need to try to get my shoulder working a bit better before doing some manipulation and recommending some simple stretching to start with, using a hot water bottle to get the blood flowing, etc. She recommended my next session be in a few days and I was booked in for the Friday. Unfortunately this physio was on leave on the Friday but she said I'd be fine with one of her colleagues.
When I arrived for my next session there was some discussion between staff about "swapping sessions" - turns out they were referring to me and I ended up with a different physio from the one I'd booked with. The session started late (30 minute session) and I was then left with my shoulder under a heat lamp for a further 10 minutes. The physio then returned, checked my movements, did a little manupulation and showed me a couple of exercises. He seemd very negative in pointing out the lack of movement in my bad shoulder, re-iterated the "stages" of frozen shoulder and the long time each stage could take, saying he wanted to set my expectations. He said he saw little point in me coming too often for sessions - totally the opposite of what the original physion had said. After the negative way he spoke, I really felt as if I was wasting my time - and his! After months of pain and lack of sleep I was feeling rather fragile - I've done enough research into the condition to know not to expect an overnight cure but at least thought I was doing something positive. He burst that bubble and left me feeling distraught. Not wanting to show myself up infront of him, I managed to keep myself composed and managed to make it back to my car before bursting into tears.
My hubby was furious and said I should complain to both the clinic and Bupa - after all, the treatment is being paid for. I do have an appointment in a weeks time with the original physio, who seemed nice - but I'd be very uncomfortable about going back to that practice, if I'd complained about one of her colleagues. Meanwhile I have also been reading about the Niel-Asher Technique (NAT) and found a clinic not too far away who have physios trained in this and am wondering if this might be worth a try. Bupa originally authorised 5 physio sessions but said they'd consider more, if needed. As I've already used up 2, I'm wondering if it is better to change at this stage or if I might be jumping from the frying pan into the fire! Any experience of conventional physio vs the Niel-Asher Technique would be particualrly welcome. Any other tips on managing this condition would also be welcome.
Thanks in advance for any advice, Maria
0 likes, 28 replies
sheri12 maria58274
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maria58274
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After Googling Hydrodilation, I'm more confused than ever! Have found everything from descriptions of how effective it was, through opinions that it's no more effective than cortisone injections and even others suggesting it could cause joint damage. There seem to be so many differing opinions on the effectiveness of all the different treatments for this condition that it's difficult to know where to turn.
Better news is that I think I may be heading into the second stage of this condition. In the last week I've had less aching during the day and when it has ached, it has been less intense. I've even managed a couple of not perfect but semi decent night's sleep with the help of a V-shaped pillow I bought (from Dunelm) and co-codamol. I'm sleeping propped up on my back with my bad arm on a soft feather pillow that I can mould around my arm. I've never liked sleeping on my back but have got used to it. It still hurts like hell if I knock my arm but other than that seems more managable, day to day. Not so good news is that I've had odd aches in my other arm - don't know if this is just that I'm over using it to protect my bad arm but it is worrying.
I'll do some of the suggested (gentle) stretching and strengthening exercises - I was told to stop if it hurts. I have another appointment with the physio in a couple of weeks time and see how that goes. Any thoughts on the Hydrodilation would be welcome.
Jay91157 maria58274
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Regarding your coments about the other arm, it could be the over compensating, but it is quite common that the other arm will go down the same route. My consultant said he generally sees people within two years of the first arm suffering for the second arm. Speak to your physio next time. Good to hear you feel more confident with your new physio.
alison44235 Jay91157
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mentalpause maria58274
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your 2nd stage symptoms sound very familiar. Once the pain eased I also had to protect & cushion the arm at night and during the day. I took to propping my arm inside a long scarf for those times that I was out and it ached. Most people didn't realize that I was nursing a bad shoulder. I too had different aches and twinges in the other shoulder which did worry me and those lasted on and off for a long time. My Physio did say to be careful and not overuse the good arm so I took his advice very seriously. I believe I am now almost on the tail end of this thing. Went to Physio last Friday and although I still cannot fully extend my arm over my head without supporting it with my other hand, I am pain free and managing. He is happy that I won't need to see him for another 3 months. Remember, everyone is different so what works for one may not work for another. Do take care and remember perserverence goes a long way.
alison44235 maria58274
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alison44235
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Answer above!!!!!
frozen_stiff maria58274
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maria58274 frozen_stiff
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I've not been keen on the idea of any invasive treatment but the continuing aches in my good arm make me want to sort this out sooner rather than later. The thought of having 2 frozen shoulders is not a good one. I keep getting a tight feeling and odd aches at the top of my good arm - in addition I have strained my good wrist a bit and have an aching back - probably caused by doing everyhing so awkwardly.
Things seem to be improving in some respects and if it weren't for the potential issue with the "good" arm and shoulder, I'd be tempted to let nature take it's course. Things were settling down and I had less aches but the last physio set them off again. I'm getting less of the jolting pains, which is good news but night is still the worse time. I've gone back on my higher dose of HRT, so at least I haven't got the addition of night sweats waking me but I still wake up and can't get comfortable - TV at 3am is pretty boting, isn't it!
Will let you know how I get on with the consultant next week. Wouldn't it be wonderful to feel "normal" again!
maria58274
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I'm booked in to have it done on the 14th December - I could have gone sooner but needed to arrange a day when my daughter could drive me, as you're not supposed to drive yourself home afterwards. Than goodness for Bupa - if I'd had to rely on the NHS, I'd still be on the waiting list for physio! I have a physio session booked a few days later but hope I will be able to contiue to exercise on my own, at least for a couple of weeks after, as we're then into the Christmas holidays.
I'm a bit nervous - but relieved to be having something done with a good chance of a positive outcome. I think I'm past the most painful stage of my frozen shoulder but still have that dull background ache (especially if I overdo things) and it's always worse at night. I'm looking forward to the day I can sleep on my side once more!
I'll let you know how I get on with the hydrodilation.
maria58274
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jones59926 maria58274
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Hi, 30 years of bad backs, chiros of varying skill. Watched 2 friends with frozen shoulder debilitated for 2 years each. Spoke to another at work who had a heavy handed chiro renowned with success, written up in newspapers. treats people from far and wide. I was diagnosed 2 days after xrays, ultrasound. The radiologist said 3 yeats to get better. No damage to cartilage or bones after bad fall off ladder 3 months ago but massive bruising and agony as the arm bound up. Drugs ineffective and reacted to 2 types.
I'm 2 days into my own treatment and will keep informing. I've seen people so debilitated I wanted to cry. There is nothing like the sting of over stretching and the spasms with this. At night with the 2-4am wake up call now I attack the pain head on. Generally the hand is tingling, acute pain higher up keeps me awake for 2 hrs. Your body is trying to build scar tissue and bind up for protection. The theory is to reprogram it. find the source of the pain in the shoulder and begin massaging the area. Once fluid, find the pressure points of muscle that are bound and begin squeezing them out. Hard, with your thumbs. They'll be like tennis balls. Even touching them at first can be daunting. My muscles had balls of tightness that were bound. Just keep massaging squeezing the tight spots and massaging. I have done 2 nights and been more pain free during the day. Movement has improved and now I,ve begun using my arm as much as I can. All day when I get pain begin massaging as hard as you can. There are spots in the deltoid that affected my headaches, follow transferred pain to the source. Put as much pressure on it as you can bear and them massage it out. Heat from my palm is enough to bring relief and to warm an area for massage. Under the scapula there are spots that affect pain in the arm. Keep working on the source.
I will update this thread and let you know how it goes. I believe in this because this is how I self regulate my bad back. I am trying to keep my arm moving all day to rebuild the atrifies muscles, just rotating, testing how far it moves, manipulating and massaging all day at work.
Ice bound me up. relief but loss of movement. The deeper areas in the joints are hard to reach. I might need help to reach these. But there are spots under the ac, armpit underneath, all along under the scapula, all around the shoulder socket, especially the back. Find them by digging with your fingers. I'm just going to not let up and see what happens. My opinion as with backs is that if you are passive and have no core strength, you can't be your best. The best thing about DIY is that you know where the pain is exactly and can cope better. You know how much you can stand.
frozen_stiff jones59926
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You don't have a frozen shoulder, a traumatic synovitis most likely. Frozen shoulder is a condition not caused by tauma.