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my 21 year old son was diagnosed with Chiari I today. The doctor did not order a flow test and said he would only do that if he were going to operate. I assumed the test would be ordered to see more of what was going on due to malformation. He has many symptoms. Told not to come back for 6 months unless he gets worse.
Well he is 21 and can't do what his friends do nor go to school. His quality of life is not good and he is depressed because of it. Working is hard due to cognitive issues. Migraines at age 5. POTS at age 12. He has a sleeping disorder. Etc...
Would you fight to get the flow study test done?
Would you get a second opinion?
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