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Newly diagnosed, need advice...

Posted , 7 users are following.

treasureireland
treasureireland

Around a year ago I finally plucked up the courage to go to my doctor, as I was experiencing pain during and after sex, felt like my skin was splitting. Months later I got an appointment, was given vagifem to try. At my next gynaecology appointment I informed the doctor that it didn't seem to make any difference. I was told to follow the over-zealous bathing routine and they would like to perform a vulval and vaginal mapping procedure. I had the surgery in jan this year, weeks later when I had my follow up with the gynaecologist. I was told the results showed a hint of lichen sclerosis. He also gave me lotriderm to apply nightly.

I feel like being told about LS I am more aware of it. Before I had my operation my relationship ended, so I feel like it's almost impossible to know whether the cream is helping.

One thing I am concerned about is that when I was in a relationship someone's I felt like I couldn't open up enough to have intercourse. I have read about vaginal dilators, however I am unsure whether I'm like this because of the LS (as I have been told it's mild at the moment), or if this is just my body?

was told I would get an appointment in 6 weeks, but there wasn't any available until 12. My next appointment is this Thursday, I'm feeling anxious as I want to get as much help from it as possible but don't really know where to start.

I appreciate any help you can give me smile

1 like, 10 replies

10 Replies

  • hanny32508
    hanny32508 treasureireland

    Posted

    About vaginal dilators - I have to do that or else all narrows too quickly.  At present I do it twice a week.  Have done it more often in the beginning.  Using coconut oil for lubrication. It also improves urinating somehow.  It's the first thing that's affected if I leave it too long. 

    ?Hope this is of some help.

     

    • treasureireland
      treasureireland hanny32508

      Posted

      Thanks, was it prescribed to you, or did you buy it on the gynaecologists recommendation?
    • hanny32508
      hanny32508 treasureireland

      Posted

      My gyno prescribed it and was good at explaning how to go about it.  It brought me to normal size opening again in the end. 
    • treasureireland
      treasureireland hanny32508

      Posted

      Thanks, il bring it up with my doctor and see if he suggests it.

      Quite nervous about being single now. My ex said one of the reasons he ended it was because we weren't 'sexually compatible', that was before I knew I had LS. He's worried at 28 I should have more drive than I do sad

    • hanny32508
      hanny32508 treasureireland

      Posted

      Sad thing about your partner.  If the world only knew and understood more about LS it would be so much better to understand sexual difficulties. 
  • Lodge
    Lodge treasureireland

    Posted

    Although the Locoid cream really helped stop the soreness, it did not make intercourse any less painful - still felt really sore on one side of the vagina.  Haven't even attempted it for about 3 years now, which makes me very sadcry  Had a change of GP about six months ago (a young lady) and she put me back on Vagifem (gynae took me off it when I started using Oestrogel, but new doctor says you need a localised HRT for atrophy).  Fingers crossed that it will help and I can try again.

    • treasureireland
      treasureireland Lodge

      Posted

      Is that similar to lotriderm? I know, I think knowing it will hurt makes you more anxious about it as well which obviously doesn't help sad

    • Lodge
      Lodge treasureireland

      Posted

      Sorry I don't know what lotriderm is.  Locoid is a steriod cream, but I don't use it very often anymore.  I have found the hydromol ointment very good for washing with and using a bit down there daily.  

      I totally agree with you; knowing it will hurt puts you off even botheringsad

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