1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

NEWLY DIAGNOSED PLEASE HELP!

Posted , 4 users are following.

victoria93835
victoria93835

Hello all. My doctor was treating me with anxiety because u was suffering anxiety and sever fatigue. Around one o'clock in the day I was very tired and when I got tired I got sore all over it was if I had the flu. The doctor suggested that my anxiety was making me tired so he put me on exffer (that's not how you spell it) when i was showing signs of manic behaviour ( couldn't sit still and relax at all, mind going mad etc) he took me off them. 

I was on 35mg for a week and then increased to 75mg for 3 months. He reduced them over two weeks. 35mg every day for a week the. Every second day for another week. As soon as I was reduced (on day one) I started to get these electric shock feelings all over my body. They were like a shock from a car door or a shopping trolley but a lot milder. 

They were in my eyes, hands and feet EVERYWHERE! I was getting about 1000 a day. 2 months on and I'm still getting them but not as often. 

I was was suffering from a chronic flu (so I thought) for about 2 weeks. I was bed ridden for that time. I went to the doctor again and he done blood tests which came back clear. I was devastated because I felt as if I was dying but still he couldn't find anything wrong.  I done my research and fibromyalgia kept appearing with my symptoms.

I asked the doctor if that could be my condition. He checked some pressure points and I had pain. He said his not an expert but he is nearly sure that's what it is. He is sending me to a specialist which could take months 😪

 The he doctor put me on lyrica 25mg to help the shocks, and the pain. And gave me Xanax to take when my anxiety hits bad.

4 weeks on and I am experiencing pain in my shoulders, neck, upper back and my eyes feel as if there is sand in them. All this pain wakes me up at night.

my naps are not as often as they were but when I get tired I could cry in pain. Has anyone got the same symptoms???? Sorry for the big book I needed to get that all off my chest cry

0 likes, 29 replies

29 Replies

  • christine26761
    christine26761 victoria93835

    Posted

    Certainly sounds like it, sounds like SS too... i have Sorgrens Sy drome too...this drys out organs..i have had most of the fluid dry up in my left ear..it crystalized, your eye issue made me think of Sorgrens Syndrome first..it has really bad pain too, very dry eyes and mouth daily of which i take over the counter sprays, for they .work well for my mouth and eyes unfortunately theres nothing that can be done fo the ear issue,which gives me virtigo 24/7 has done now for over 10 years..learned to live with it well. Anyway victoria , l say all that...to say this, be open to other conditions som can easily cross .as many of the symptoms i have for fibro are also the same for SS.,especially the Chronic Fatigue and nerve end pain...their both autoimmune conditions most of us on here havemore than one autoimmune conditions..hope you find answers very soon..its the not knowing..grr it has taken years for most of us on here to be properly diagnosed too...treating seperate symptoms until a light swtches on with the local gp and you get referred to a specialist..its a Rhumotologist that diagnoses these conditions too..be blessed victoria..have a lovely day..😍
    • victoria93835
      victoria93835 christine26761

      Posted

      Thanks so much christine for replying. I am at my wits end with it all, my mother is calling me a hypochondriac cause I'm always complaining of something. I was actually starting to believe it till I done my research and suggested it to my doctor. 

      i don't know if it's dry eyes I have cause I have tears under my eyes when I wake up. Or does that still happen with sorgean syndrome? Iv never heard of SS before I may do some research on that. My eyes are sore for about a half hour after I wake up and then they are just blurry but the sand feeling has faded. ( this morning) 

      right now I have a serious pain in my upper back, middle back and neck. I can't get comfortable. Yesterday and the day before I was grand I didn't need a nap and I didn't have much pain. I did take 100mg of lyrica and 50mg of Xanax throughout both days that could have something to do with it. 

      Do you have good days? And when there good explain how you feel? I need a better understanding. I get excited when iv a good day thinking nah it can't be fibro because from all my reading it's like any sufferer always have bad days with pain and fatigue. But when iv bad days it's bad. I haven't gone a full week with all good days cry I'm only 31 and this time last year I went in to treatment for gambling, alcohol. I'm a year sobor and gamble free today and I feel like I shouldn't have bothered when now iv to deal with this. I wanted a better life for myself and now I'm limited worse than I was when I was gambling and drinking cry

    • christine26761
      christine26761 victoria93835

      Posted

      Ive had them for over 30 years now so im not as bad as i was. I go in and out of remission..where some weeks its unbearable others im fine...which is really great....it took 10 years of pain etc.. beforei got properly diagnosed too, so if you can manage to skip that youll be half way out of it..also being called a hyperchondroac is just soooooo normal for us...we could all relate to that one so dont let it worry you, but it is really good if you can research - googling, it really helps you if you have some knowledge when you are seeing your doctors..just make sure you research sites that are reputable and not beeing funded by a pharmacutical company and recommendimg buying their meds..have a lovely day andbe blessed..😍xxx
    • victoria93835
      victoria93835 christine26761

      Posted

      Thanks again for the reply. I researched sorgrens syndrome and iv most of those symptoms to. I'm going to buy eye drops today to use at night to see if dry eyes are the cause of my sore eyes. I spoke to soon cause I feel as if there is sand in them again. Could be just the fibro or my imagination I don't know which but I'm totally sick of complaining about new things every day. 

      What medication are you on now? For fibro? Iv been put on lyrica and I take over the counter pain killers which don't work. I'm having a few more good days since iv been put on the lyrica 50-100mg a day depending if I'm having a bad day or not. 

      Is there anything advice you can give me to get through the bad days? I work and have a son that's 11 so I can't lie in bed all day even though I should when I'm bad. Does a nap make you feel a little better? When I'm extremely worn out and in a lot of pain I go for a lie down and when I get up I last another few hours feeling a little better. I work till about 12pm and back to work at 7.30 to 9.30pm which suits me perfect for no cause I get my naps in. However the job isn't paying me well and I need a full time one but the way I am now I doubt I'd be able for a full time one 

    • christine26761
      christine26761 victoria93835

      Posted

      Hiya Victoria sorry about the long wait for my reply..ive been ofline a few days. My eyes also often feel like they have sand in them too, i take 25mg of Amitriptilyne for the fibro also Osteo Panadol-slow release stronger that the others..2x3 times a day everyday- over the counter meds-there paracetamol.thats it, but i do take supplements too: glucosamine, magnesium vit d3, mutton bird oil tablets-they eat krill-replaced my fishoil which was 6 per day sooo a google..im in Australia and they come from here)-these ones are only 1-2 a day..i always double the recommened dose..hope your having a lovely Christmastime..its new years day here and very very hot lol..😎.
  • kaz_40
    kaz_40 victoria93835

    Posted

    Hi Victoria93835 It sounds very much like fibro to me. A rheumatologist diagnosed me in 2014. it took 10 years to get a diagnoses. drs like to rule out other conditions it might be. The rheumatologist I saw did a pressure point test did bloods sent me for a bone scan. when I went back to see him he said I had low vitamin d was prescribed vitamin tablets. He said I had fibromyalgia and refered me back to dr for pain tablets. I saw loads of different specialists lost count of blood tests and tests I had. all came back negative except for blood test that showed low vitamin d. with fibro all the tests you have normally come back negative. flu like symptoms are a fibro symptom fibro is based on pain which can be any where in the body. Im unable to take anything for the pain as allergic to opoids. its a rheumatologist that diagnoses fibro thats who you need to see. All that you are experienceing is what Im experiencing my self. take care gentle hugs 
    • victoria93835
      victoria93835 kaz_40

      Posted

      Thank you ever so much for your reply. My chronic pain is mainly from the waist up. But when I put pressure on the pressure points that I looked up on the internet I feel a lot of pain. But funny enough I haven't got pain in my legs (so far) only when I touch the pressure point on my knees. 

      Do you ever have good days or have full weeks when you are really good? If so can you explain what your good days and weeks are like? I need hope that I'll have a quality of life soon. I have good days but never lasting more than two days cry 

  • Creola
    Creola victoria93835

    Posted

    Hi Victoria, so sorry for your pain. Isn't it sad that we have to diagnose ourselves? The only things doctors are good for are car accidents, heart attacks and broken bones. They make money giving out drugs that have so many side affecks you end up with more and a lot of times worse problems. I have just been diagnosed with several problems, one being polymyalgia which is also an auto immune desease but I got lucky and found a natural health clinic for treatment. I've only had one treatment but already felt a difference so I have hope to get back to my life. You really should look into chiropractic, acupuncture, etc. For some relief I use homeopathic remedies as well as add essential oils to lotion for the burning and pain. Stress is your enemy as well, causing more and worse pain. Hang in there and find what works for you.

    Gentle hugs.

    • victoria93835
      victoria93835 Creola

      Posted

      Thanks for your reply. I did a lot of research and gave my research to my doctor that's the only reason why iv got a near diagnoses thanks to google I'm hoping I get a quicker diagnoses from a specialist. He has the letter sent but it can take months. I feel I haven't got months. I am a year sobor and gamble free the reason I went for treatment was to be a proper sobor mother to my 11 year old son. And now in stead of sitting on a lap top gambling drinking my wine I'm in to much pain or I'm to tired to do anything. I just want cure or at least coping skills to have more good days than bad.

      I wee a lot at least 30 times a day. Do you suffer from that? It's very annoying. I also get car sick when I'm in the passenger seat. Both those things prevent me from going on long journeys if I'm not driving.

      I'm so happy I can talk about this to people that understand. My partner pretends he understands but he doesn't. Every day iv a new symptom and I feel if I keep complaining he is going to stop believing me :-(

    • Creola
      Creola victoria93835

      Posted

      No I don't have to go that often thank goodness, when my feet and or kees swell I can't walk. I haven't gotten car sick either. Have you thyroid checked and any odd symptom you have. Most doctors do not have the knowledge for figuring out auto amune disease. STAY AWAY FROM STEROIDS!!!!! BAD medicine. Do your research.

      I agree about having a place where people understand. Someone should start a group for spouses where they can get information and be able to vent. I'm lucky that my husband does research and understands what I'm going through.

      Gentle hugs

    • victoria93835
      victoria93835 Creola

      Posted

      I have had my bloods done numerous times and they all came back clear. 4 weeks ago I went in for the results and when he said there clear i could have cried I was that sick. It was like I had a chronic flu but nothing showed up on the test. He checked lots of things in the bloods. 

      I read that people with fibro have sensitivity with smell, hot and cold and I'm thinking could that be why I get car sick, my partners car is always hot. That's my only conclusion. I don't get sick but come very near it I have to stick my head out the window like a dog lol.

      do you sleep well at night? My pain is waking me night lately

  • deb97936
    deb97936 victoria93835

    Posted

    Hi Fives Victoria!!  So happy for you, 'you have dealt to demons', which just goes to show you 'DO in fact, has great inner strength, knowledge and awareness'..   Long may you live that knowledge of yourself and never look back.  

    As for 'Other THINGS'...  yup, Fibro etc are a Biarch...  BUT we find our strengths within us to, to deal with such things.   It teaches us more about ourselves, that none sufferers ever know!!  WE are the Masters of 'Living, surviving IN PAIN'...  Physically and Mentally....   

    All the very best to you Victoria..  You will find come to recognise your Bodies set of Scales, and learn to balance out your day/s, and all the pain manifestations.  The Sun 'always rises' and the 'moon always sets'...  and our Pain and discomforts likes Tides, fluctuate....  xxxx

    • victoria93835
      victoria93835 deb97936

      Posted

      I don't know if I have any more strength left in me. I feel as though my body is giving up on me. I am a fighter but I'm that tired these days i just can't fight. I am at high risk of depression because iv had it lots of times before and I'm so afraid this will drag me back down to that dark world again. It's a horrible place to be that's why I said I'd start a conversation on this to talk to other suffers so I don't feel alone and I have people that understand me. I feel so much better now that I have had so much support in just a few hours.

      Thanks a million guys. I'm sure I'll be on this a lot complaining about new symptoms till I get this managed.

      Is the beginning of fibro worse or do we get a little better in time? I seem to have new symptoms every day and in different parts of my body. Today I felt as if my arms was a tone weight, even holding up the phone to write this is hurting and my arms are going dead. Does this happen to anyone?

    • deb97936
      deb97936 victoria93835

      Posted

      Sadly my fibro is worse now as it's now taken out my legs/hips. I have to be ever vigilent now not to tackle any uphill gradients for any length of time, or if really sore not to push myself without the use of my elbow crutches as I lock up solid, and painfully.

      I don't ever get a reprieve now from pain, stiffness and fatigue.   Yeah moments of the blues... but it comes with the territory!  It's a form of release valve.   

      Fibro won't kill us/me/you.. But it's our own attitude over the long term toward ourselves that can either pull us over our hurdles or keep us down.  We have to battle ourselves... and yes, sometimes, well a lot of times actually, we battle trying to educate those about us that sadly 'don't understand'... Fibro and all it emcompasses...

      Hugs and no matter what trials and tribulations, physical or otherwise.  JUST REMEMBER....'Your NOT on your own'...  Others have come before you/me/us experienced, experiencing and in the wings waiting for another bang load of something new....  :-)

    • deb97936
      deb97936 victoria93835

      Posted

      Oooops forgot to say.....  dead arms that feel like cold dead pork...dead meat...  with a painful upper back and neck.  Would take out either both, or my Left arm mainly. Not nice, it used to be when ever I lay down. Over years it's improved but I still have bouts of it when I flare up.  

      Do I feel like gravity takes out my arms, like they are so dam heavy  'yes'.   Arms, hands and fingers can get so dam painful I can't hold a knife and fork let alone even use them.  Typing can be so painful, but I still perserve as much as possible.  It's part of my life line to!!!   :-)

    • victoria93835
      victoria93835 deb97936

      Posted

      I'm so sorry to hear your suffering bad with fibro and thanks for been so honest even though it's after scaring me to death. I suppose the extent of it effects people differently. Iv beven suffering since last April but showed little signs well before that.

      if you don't mind me asking Deb what age are you and are you on medication for it? I am on lyrica 50-125mg a day depending how bad I am. I have Xanax to help with my anxiety. I take a lot of multi vitamins because I am a vegetarian with a very bad diet. i know that has a lot to do with how I feel towards fibro and how fibro is effecting me rolleyes

    • victoria93835
      victoria93835 deb97936

      Posted

      Oh god well at least I know it's not in my imagination now. My arms are always going dead even when I'm giving someone a cup of tea in my head I say will you hurry up and take it before my arm goes completely dead. 

      Wouldnt you think with so many sufferers there would be a cure or even something to suppress all the pain alltogether? Or are doctors putting a name to it like they do when they haven't got a clue what it is just to pawn us off? 

      Least it it doesn't kill us I suppose that's comforting ( a bit) 

    • deb97936
      deb97936 victoria93835

      Posted

      There is NO Cure, yet to date.  And sadly NO real active Pain killer other than Morphine, but we cannot live on Morph long term.  There is only the natural grn stuff that can aid pain and good for a sleeping aid.  I've tried it twice and it works...  Sadly it's not a legal drug.
    • Creola
      Creola deb97936

      Posted

      It's legal here but I still wake up at night. I wish you would look up the drugs the doctors are giving you all, the side affecks should scare you away. There are essential oils that you can take as well as apply to painful areas. There's a combination of three oils that is called the morphine bomb I'm going to order on payday and try. If you can check out utube, watch videos by Dr M. Rutherford and Gates they explain what's going on in your body and brain with this illness. They are the doctors I'm seeing.

      I plan to report on my condition as they treat me so maybe it will help someone else. They use homeopathic and supplements first, if need be they also have a medical doctor at the clinic in case pharmaceuticals are needed.

    • deb97936
      deb97936 victoria93835

      Posted

      Hi Victoria...sorry if I did scare you..  But I have to mention that my Fibro is a direct result of some nasty head traumas (head numerously hit against internal surfaces, and compound fractures of thoracic at high speed, whiplashing etc)  Yup all the nasty stuff that happens, hence racing cars have all the modern 'protective gear' to prevent all that sort of thing, as seat belts don't hold you or or head from leaving your seat when your car is spinning, impacting and sommersaulting numerous times till it eventually stops.   Your catapulted like an extremely fast bullet and the GForces are HUGE....   'So my first advise to anyone is, don't ever have a nasty car accident, and try to also avoid even the low impact ones as they can also cause neck trauma I hear'....

      My situation with Fibro stemmed from my head/neck and spinal trauma.  My Central Nervous System took a very direct hit physically, more than once! Several plus times in fact.

      My lower spine is an issued for me to, which doesn't help with the Fibro.  Originally due to the accident I lost all feeling in certain toes, had weird sensations and my inner legs would feel like they were crippling up, twisting my feet.  Almost like I was on strings like a puppet..weirdest sensations ever.  And the PAINS were massive.  I could have traced the pains down my arms to hands and fingers from my neck, and down my legs to feet.  Went on for months..   Over time those pains lessened and I retrained 'myself'.. to use my left arm again, and also to walk better.  I dragged my left leg/foot a bit and it always felt like I was kicking my leg out.  I walked to one side all the time.  Our system over here wouldn't help me, they didn't want to accept that my injuries were a direct result of my car accident.  That attitude was a direct result of the Slack doctor at our A & E dept of our Hospital, who never assessed me fully.  Our hospital and others in the country later went under Audit scrutiny and they were pulled up 'Big Time' ....lazy pack of R'tards....folk were actually dying, and some died as a direct result of Lax, slack poor doctoring.

       

      So my Fibro issues are probably a bit more exaggerated by old injuries.

      So don't be to worried/scared...  :-)

    • victoria93835
      victoria93835 Creola

      Posted

      Hi creola, are you talking about the "smoking" illegal stuff? I was in treatment for drink, gambling and "smoking" the illegal stuff I wasn't addicted to the "smoking" per se it was more of the gambling and drink that got me in to rehab but with any addiction they said I was a drug addicted because I was abusing prescription drugs "D10's and smoked the odd joint" so iv to stay away from the smoke for at least 2 years cause I'm a high risk for taking up another addiction. So unfortunately I can't touch it for at least another year wouldn't mind I know how that would help me sleep that's one of the reasons why I smoked it before. I didn't have fibro at the time so I don't know how it helps with pain but iv heard it helps. 

      If things become bad enough I will be buying some to get me through it. I will look up those doctors on YouTube I need to educate myself about my condition. 

      I woke up this morning an I feel ok yippppieee I hope today is going to be a good day. I slept for 7 and a half hours Monday night, then went for a nap of 3 and a half hours yesterday and I had 7 hours last night. They weren't bad sleeps I did wake a few times but overall I think that's why I feel ok today. I'm only up about 15 mins but I had no stiffness this morning. 

      Lets hope I'm right cheesygrin thanks for your reply xx

    • victoria93835
      victoria93835 deb97936

      Posted

      Oh god you poor thing what a sad story. Some doctors can be so negligent and not have a care in the world you'd wonder why the hell they went in to the profession in the first place. I think my fibro was a result of stress, I did 5 hard years in college and I was going through the stress of addiction and I was trying to be a mother and partner at the same time, that was only last year. When I left the treatment centre my symptoms began or I just started noticing them because I was no longer in college or stressed through my addiction so my head was clear. I drank quite a lot every night so I never gave myself a chance to feel anything.

      But this year has put a lot of strain on my mind and my emotion cause iv fought one battle and now straight away I'm in to another battle with my own body. The only thing is iv a clear head and I'm going to try my very hardest not to let this beat me iv worked to hard for a good life and my body better keep up cause I'm not giving up!! 

      Thanks for sharing your story Deb you have giving me strength that if you can accept and cope with what your going through so can I  eek

    • deb97936
      deb97936 victoria93835

      Posted

      We are more adaptable and stronger than what you realise.  

      Sure we are still human and we do need that 'something' that we can use to help get us through the days and also the inbetween days...   

      I use my alone time, and I have loads of it as I live alone with a cat and a small dog)  They are my company.  I have a laptop that is my lifeline...  and the internet keeps me occupied with my interests in Genealogy, countrys and their histories.  I never did History at High school so I am so now into it, and it's great!   The interest in Genealogy, tracing family overseas into the different centuries is what spurred me to gain insight into the life and the times of these folk.

      PLUS..  I took up Oil Painting, one day out of the blue, and I'm involved voluntarily with the Art Society.  It's great, it helps me to keep in contact with folk just a little, when I can.  I Paint when I can, when my body and head allow me enough strength and concentration.  

      Taking up a craft, music, jigsaw puzzles, Bonsai'ing trees, adult colouring in, something of a passion is a VERY GOOD way of aiding your mind, and helping to block out most pain.  Stops one from focusing on 'ones self and the aches and pains'...  AND you wind up with something to show for your efforts!!    whoop whoop... 

      I have times when I cannot sleep so I'm either on the net or painting..  sometimes at 2, 3, 4 in the morning!!   Sleep for a couple of hours and paint again.   lol....    However, I am trying to sleep better now by taking only half a sleeping tablet once say every 3 - 4 days, to give my head and body a break from sleeplessness.   If I don't, I get far to run down, ulcers and cold sores set up shop and have a field day, and make me feel even more miserable.  SO, rather than always feeling sorry for me, I just kick it back, take my time now with stuff, and sometimes I don't even do anything of a day, but the smallest of things, laptop, and I paint when my head is clear enough.

      Take charge of yourself, don't EVER have expectations of beating it, as you'l get more wound up and disappointed.  Just work with what your comfy with and at.  

      As I mentioned, I'm 'always' in pain, always stiff. headachy and even nausea some days..  Just ride it....it's not going to kill you.  It's only going to restrict most things you do.  So 'work with it'....  AND DON'T ever feel quilty for ANYTHING about yourself.   The Specialist who diagnosed me, is a Director of Physicians of a large Hospital and he told me, QUOTE; 'Don't ever let anyone tell you it's just all in your head.  YOU TELL THEM, you have a health issue and it's called FIBROMYALGIA'...' end quote.  He also advised me to loose the quilt aspect, as I have nothing to feel quilty about, and that there is no known cure for Fibro, nor any actual proven Pain Meds to work on Fibro Pain.

      He is a very thorough and honest doctor, who actually even does work for our WINZ system, assessing folk for their illnesses in relation to the different benefits.

      One of the most hardest things for me to deal with, is the Tippnnitus, and the insomnia, the brain that won't rest to slip into the sleep zone, (hence eventually resorting to sleeping tablets, a half one taken about 9,30 - 10,30pm)...  I could do with half a tablet every night!! BUT I don't want to be fully reliant and build up immunity, because that's exactly what happens in time.  

      I have one kidney to, and so I plan to look after it.  

      Well I'm writing a novel again ...sorry...  lol...  Take care, and keep posting....  :-)

       

    • deb97936
      deb97936 victoria93835

      Posted

      In a couple of years maybe if it has to be a case of taking something you maybe able to apply and be prescribed the Savetix...  Marijuana based Pain Killer.  Here in NZ it's only allowed to be prescribed strictly for MS sufferers, and only a certain few of those sufferers are allowed it!!???   Plus it costs.  It's not government funded here I don't think.It's ok to, to sometimes have those minutes, hours when the 'Valve' has to release a little 'Venting frustration'...   Heck, we ALL swear and cuss at ourselves, sadly fall into snapping at family or friends to, which of course we need to learn to recognise and halt doing it everytime, even apologise as they don't deserve to have us behave at them like that...Yup we all know it symptoms of a Flareup...or never-ending pain issues.  (So glad that I now live alone, only have myself to swear, cuss and snap at!  the animals just ignore me...lol...)
    • victoria93835
      victoria93835 deb97936

      Posted

      You are a great and interesting writer you really should consider writing a book I would definitely buy it "and I don't read". I know I would become to dependent on weed and sleeping tablets I'm an addict and I can't help that. So iv to be so careful and the doctor has to be extra vigilant about my medication. I can see me already getting dependent on lyrica and iv only been taking it 4 weeks. Like I said before I am clean and sobor a full year now only taking prescribed meds. It's so hard not to go back on the sleeping tabs and weed because I really could do with them these days but I know me I would take them even when I don't need them and I'll need more and more to get the same affect. 

      I am a lot stronger and have more willpower than I did have last year so maybe one day I can consider them again, not just yet though.

      i had a really good morning, my arms and legs are still going dead but my pain isn't so bad today well so far. I'm not so tired either. I'll be going for a nap soon to keep me going for later as I'm back to work tonight. 

      Talking about cold sores I have one big one and I haven't had one in years. This fibro is really taking its toll but like you said I have to work through it i can't get a knew body transplant even though I would pay any money for one. I just keep telling myself this won't kill me and it's not a life threatening illness I have so I will motor on and find ways to make it more comfortable to live with.

      So so far I am positive and if every morning was like this morning I'll be more than happy to deal with it. 

      Thank you ever so much for your response you give me hope with every comment 

    • deb97936
      deb97936 victoria93835

      Posted

      All the very best to you Victoria...  :-)  Yes it is about our attitude...and keeping a good positive, wholesome mindset toward ourselves, our enviroment and others is a great start.

      Thanks for the hint about writing..lol...  a few folk round me have said the very same thing..hahahaha..   But I'm afraid, I'm a terrible speller now, and my grammer is way the hell off..hahaha  and I get my past/present tenses all mixed up to,...all up the kyber !!  Well, not something I'd shut the door on completely. as One Day, maybe an idea may pop into my head in regards to Genealogy maybe... and I could hone a few ideas/sentences/paragraphs...??? LOL.. food for thought  thank you..  xx

      Nighters now Victoria, will give your eyes a rest... hahaha

    • Creola
      Creola victoria93835

      Posted

      Yes but I don't smoke it, I make it into butter then use it in cooking and baking. Love my lemon cookies, ha ha. Also taking rick Simpson's oil as well as have juiced it. The juicing is one I need to grow enough to get back to it gives you energy! The edibles help to get sleep although when the pain gets really bad I wake up and find some way to take my mind off of it while I eat more to go back to sleep. Usually log on here or play a game or read.

      Yes please check out the videos they really are helpful to understand what's happening to your body and they give you hope for better days. They mention a natural medicine that's supposed to be good for stress, it was either cavacoor or gavacore. Have to ask when I see them tomorrow. This appointment will tell me the program they have set up for me.

      Glad you're having a good day, enjoy!

      Gentle hugs

    • Creola
      Creola deb97936

      Posted

      You should write, you don't have to be good at spelling with spell check. I am the worst. How about talking into a recorder then getting someone to correctly write it out.

      Gentle hugs

    • victoria93835
      victoria93835 deb97936

      Posted

      Your spelling and grammar seems fine to me. I know when you write a book you employ a publisher and they re-write it. A lot of people wrote a book such as Katy price and Roy Keane (Man U player) and I bet they wouldn't have the time or brain to write so in fairness their is hope for us all lol.

      I had a really good day yesterday but I'm seriously paying for it today. Iv stabling pains in my back and they really hurt :-( my other half is giving me money for a spa today as a Christmas present and I cancelled it cause I put on to much weight ( in a few weeks) there was no way I was getting in to a swim suit. Now I'm ragin cause I could do with one. I might ring later to see if they filled my booking yet.

      Iv such a busy day today and already iv lost my positivity

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.