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Newly diagnosed Pseudogout Please help

Posted , 10 users are following.

john70702
john70702

Hi i have just recently been diagnosed with pseudogout .

I have had terrible night sweats on and off for as long as i can remember waking up mid winter drenched with sweat to the point of having to change the sheets.

Earlyer this year i had two attacks i was unaware of. One being in my shoulder to the point i had excruciating pain moving my arm and another in my elbow same excruciating pain but this time i had major swelling and heat coming from my elbow it resembled a tennis/baseball quite litteraly both times i had it checked on by a dr and both times told it was burstistist.

This last attack has crippled me in pain it is now in my hip joint after one weeks hospitalisation mulitple mri catscans xrays bloods ultrasounds an an ultrasound guided asperation i was told pseudogout gout is the cause i have always felt i little sore and stiff in places but thought as a labourer all my life this was the cause i need to stop feeling sorry for myself and get on my feet as my wife and i are expecting but im just miserable alot and in constant pain even with the anti inflammatorys. ??? Please help

0 likes, 9 replies

9 Replies

  • Guest
    Guest john70702

    Posted

    Sounds horrible. Diet makes no difference for pseudo gout, despite what some people may tell you. Take the drugs and what your GP tells you. Good luck
  • tara73162
    tara73162 john70702

    Posted

    Hi John,

    I know what you are going through.  I have pseudogout as well - started with one knee after an injury and over the last year has spread to most of my joints.  It is awful.  I went from being active to being disabled until I caved in and took the prednisone and hydroxycholoroquine my rheumatologist prescribed.  The prednisone will definitely make a difference.  I tried anti-inflammatories and they didn't work.  I am praying that I can get off the prednisone and the inflammation and pain won't return.  It has ruined my life - I am way too young for this disease to sideline me.  See a rheumatologist.  They all prescribe similar drugs and as bad as prednisone sounds, for me, it was the better of 2 evils.  I hope you fare better than I have.

    • rose41428
      rose41428 tara73162

      Posted

      Hi Tara

      Hi, I have had attacks of pseudo gout for nearly 40 years starting when I was about 36, however have never experienced the night sweats you have, John.

      I was diagnosed with CPPD when I was 40 due to swollen and very painful knees and now experience the same effects in practically all my joints as well as ribs and even my jaw. In fact, wherever there is cartilage.

      Apparently I may have Chondrocalninosis 2 which is a rare familial type I've inherited from my mother and both my daughters may have inherited from me.

      My treatment has always been anti inflammatories which I have tried to limit as much as possible because of the long term side effects on my heart, plus keeping my weight down less than 60 kgm, plus exercises on my bed every morning my physio has given me and exercising in the swimming pool 3 x per week, all of which have helped the pain considerably and which my specialist has recommended. I have had 3 arthroscopies in each knee over the years and now no cartilage in either knee, and had the left side of my jaw realigned a couple of years ago. No joint replacements yet thank goodness.

      So I hope the weight control and gentle exercise suggestions can help you, John. I have not taken NASAIDS for about 6 weeks now John after a strong warning from my GP re the detrimental effects on my heart muscle and the reflux damage on my oesophogus after years of use. I seem to be managing the pain but years of taking celebrex and previously feldene have cause damage so I have bitten the bullet and stopped.!

  • maren87215
    maren87215 john70702

    Posted

    I, also, have had the night sweats, although I have noticed that I feel better the next day. Tart cherry juice helped with my pain. Prednisone in short stints has helped also. I had six joints affected at first and am now down to two after a year plus. Mean disease! Good luck.
  • dawn94235
    dawn94235 john70702

    Posted

    I have pseudogout too. I take 2tsp apple cider vinegar with half cup water or juice twice a day to dissolve calcium deposits from my affected joints. I also take half tsp of turmeric before bed with 1 tsp cooking oil and a pinch each of black pepper and salt as turmeric is anti inflamatory. I mix them together and put it on a slice of bread and eat them. Before eating this I put half spoon of c. oil in my mouth and coat my teeth with it so the turmeric doesn't stain my teeth. There is turmeric pills available in the market too but I believe the powder turmeric is more effective if eaten with black pepper and oil. This treatment has helped me a lot. 

  • rose41428
    rose41428 john70702

    Posted

    Hi, I have had attacks of pseudo gout for nearly 40 years starting when I was about 36, however have never experienced the night sweats you have, John.

    I was diagnosed with CPPD when I was 40 due to swollen and very painful knees and now experience the same effects in practically all my joints as well as ribs and even my jaw. In fact, wherever there is cartilage.

    Apparently I may have Chondrocalninosis 2 which is a rare familial type I've inherited from my mother and both my daughters may have inherited from me.

    My treatment has always been anti inflammatories which I have tried to limit as much as possible because of the long term side effects on my heart, plus keeping my weight down less than 60 kgm, plus exercises on my bed every morning my physio has given me and exercising in the swimming pool 3 x per week, all of which have helped the pain considerably and which my specialist has recommended. I have had 3 arthroscopies in each knee over the years and now no cartilage in either knee, and had the left side of my jaw realigned a couple of years ago. No joint replacements yet thank goodness.

    So I hope the weight control and gentle exercise suggestions can help you, John. I have not taken NASAIDS for about 6 weeks now John after a strong warning from my GP re the detrimental effects on my heart muscle and the reflux damage on my oesophogus after years of use. I seem to be managing the pain but years of taking celebrex and previously feldene have cause damage so I have bitten the bullet and stopped.!

  • phil17356
    phil17356 john70702

    Posted

    Hi John,

    Did you ever get any replies to your plea for help?

    I have just been diagnosed with pseudogout in my left knee, confirmed with x-rays of that knee and I seem to be at the start of a journey to learn more about this condition.

    I know you were looking for help and I wish I could provide that for you but I know so little about this. Any advice would be appreciated.

    Regards,

    Phil

  • margo94291
    margo94291 john70702

    Posted

    I am also newly diagnosed; it is in both of my knees and i can barely walk . Last week I was running 2.5 miles; doing step aerobics; weights and working a healthcare job caring for disabled people. Now I fear I won't make it back to work . I hope this resolves soon. Thank goodness I have a good GI system. I would truly suffer without ibuprofen q 4 hrs.

  • randy41812
    randy41812 john70702

    Posted

    Mine was in my knee , could of been in other joints first, Me I'm a tough guy who mostly ignores pain, but when I couldn't even walk without my knee quitting on me , I had to have it checked out. X-Ray showed calcium deposits in the soft tissues of my knee, I found out that means I had pseudo gout in it. That made me think my thumb joints been killing me , my hips been hurting, my shoulder gets stiff. So know I know why and how to treat it. In some cases they can stick a needle in there and drain it. Sometime you just need to rest it and your body will get rid of the calcium deposits for you. But I always found out is that is can come back then you have to treat it again

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