Newly diagnosed RA
Posted , 9 users are following.
Hey guys, new to this site. I was recently diagnosed with RA and would just like people to talk to that know what I am going thru.
0 likes, 17 replies
Posted , 9 users are following.
Hey guys, new to this site. I was recently diagnosed with RA and would just like people to talk to that know what I am going thru.
0 likes, 17 replies
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steelctygirl brittany15347
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esther77657 brittany15347
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Hi Brittany. You'll find lots of help and support here from people who really understand. Welcome and best wishes. Esther
brittany15347
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frances85589 brittany15347
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Hi Brittany...it's good to get info from each other. Guess everyone is on different treatment but can help each other. Those that don't have these diseases don't really understand.
brittany15347 frances85589
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They really don't. If I say anything about hurting, or being so tired, or just anything, my stepmom always comes back with "yeah me too". But to me, I am 28 years old. She is 65 years old. That's a big difference in age. She also does not have the diagnosises I have ( I have several of them). I just feel like I am on my own here and that no one really believes how I feel
frances85589 brittany15347
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steelctygirl brittany15347
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tory38006 brittany15347
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people understand how hard it is to feel like you have the flu
everyday.I find many can understand how cruddy that feels.
Try to have a heart to heart with your step mom and let her
know it hurts not to be believed.I have fibro,osteoarthritis and
ra symptoms,you truly have many here who will listen and do
understand.Gentle hugs,Tory
brittany15347
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frances85589 brittany15347
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brittany15347 frances85589
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Rowbirdie brittany15347
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There s been lots of new developments in last 10 years of biologic drugs for RA. Being diagnosed now you won't get the kind of joint destruction you see in older people who have had RA for a long time. In that sense we are fortunate.
but it is very upsetting when first diagnosed and very very painful. It takes a while for them to find the meds that work for each individual. Sometimes it takes a combination of meds. For me it took almost a year- and because the 3 main meds weren't having sufficient effect I was out on a biologic which has worked for me and given me back my life.hopefully it ll be quicker for you.
so be patient and give yourself enough sleep, get informed and be honest in your feedback in RA appointments. If it still hurts tell them as they can increase dosages or types of med. Their medical guidelines in UK say to diagnose early then treat aggressively in the early stages. Also they say the aim in their guidelines is for you to get into remission,
frances85589 brittany15347
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Can take 3 months to start to work. My consultant started new on low dose until we on 25mg.That was too much for me and effected my liver.I was told I would gave it by injection to bypass liver but was put on sulfasalazine instead.I also take Pregabalin and prednisolone which is a steroid.Has steroid been discussed. Have been on all for quite few years now.Have tried 3 biologics but they never worked. Still get bad pain but it's better than was.
I too have other diseases
esther77657 brittany15347
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It is perfectly natural to feel scared. Uncontrolled pain can be terrifying because you cannot imagine being in so much pain for even a week, never mind a month, or more. The treatments available can be so effective and, whilst it might take a short while getting the right treatment for you, once you've got it right, your pain will be in control and you will start to feel less anxious. I remember when I was first diagnosed, I was 20, the disease was aggressive and I seriously thought I was heading for big trouble. If the 48 year old me could go and talk to the 20 year old me, I would say "calm down, calm down, it's not going to be all that bad." 😊
brittany15347 frances85589
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