Newly Diagnosed - Terrible Doctor - Unsure where to put Clob

Hi Kim,

So sorry for your situation with that doctor.  I think you should look for another one asap, a gyn.  This forum is wonderful and I'm sure you will get lots of help and support.  I would apply the clob thinly but on all the places you have white and the biopsy area.  My biopsy took awhile to heal but eventually it did.  Sitz baths are good with a 1/2 cup of bicarbonate soda.  Many use a barrier cream too, applied after the clob....I do not.  I don't have itching either, but many do.  I feel it is best to keep the area dry...after bathing a hair dryer works for me and also I use cornstarch applied with a puff.  Try not to stress, it will get better.  Be easy on sugar, it bothers many.  Let us know how you're doing.

Try going with another GYN or go with a dermatologist who is familiar with LS.You always NEED to mention everything so they can evaluate. The biopsy will heal on its own, just don't wear any tight clothing like skinny jeans. I highly recommend epsom salts baths for the healing process. As for the clobestol. I think you apply it 2 times a day. Put it were you itching or the spots you're having issues with. Clobestol is the best ointment out there but it didn't help me since I was misdiagnosed. Best wishes!

Hi Kim

i had almost the identical response from the gyno I saw. He was awful. He didn't even give me a prescription even though I asked for it. My itch was awful at the time. I managed on my own with help from this forum. I was then able to see another gyno in the US while I was visiting there. I simply told her I was diagnosed with LS via biopsy but gyno did not give me  prescription. She immediately did write me a script and had a look. She said there were no white patches but she did not look st my labia Minora where the white was just starting. I also really have it around my anus and perenium but she did not look at anus area??  She said she thought I also had yeast as she could tell from looking. Everything I have read on yeast says you have to get a swab done she also said "Have I always looked like that down there". That gave me pause as how am I supposed to know?  The clob has helped and even though she did not tell me how to apply Or where to apply I just applied thinly to the itchy areas (no white) and really thinly on white on labia. I am not even sure what clob is supposed to do. 1.  Receive itching?  2. Get rid is white areas?  3.  Stop or reverse? Fusing

overall I am feeling better and do not always apply the clob. I only apply sparingly. I have an appointment with another gyno in April and hope I get some answers or at least feel like they somewhat have some knowledge and guidance. I have drastically cut back sugar and it does seem to help I also do BS baths 1/3 cup and use coconut oil. I will be bringing a list of questions for this new doctor

Thank you all for your responses!  So good to not feel alone in this.  FWIW I am 46 and I have a TON of other autoimmune junk incl. hashimotos, ulcerative colitis and behcets.  I have suffered with labial/vulvar ulcerations (literally 100's) for the past 15 years and that is one of my most common behcets symptoms.  I was in a remission for almost 5 years from everything and could feel it all ramping up starting about 2 years ago, but I had terrible insurance and it's a very expensive diagnosis to treat.  I JUST got a script for Enbrel - I haven't started it yet (it's in my fridge now) because there was some concern that these spots may have been VIN/Cancer - thankfully not.  Is anyone else taking systemic immunomodulators/anti-tnf?  I wonder if that will have any kind of impact on the LS.  Unfortunately, in my past I have had several bouts of menengitis as well as a blood clot/stroke due to the behcets so I really need to go back on it all...   One more question, does anyone get a rash on their tush?  I have a very painful ugly rash there that comes and goes and it often takes forever to heal.  I read somewhere about jojoba and frenkinsence oil so I'm currently applying that to everything under the sun....     Hopefully I will have my clob early this week.  In the mean time I might look into emu oil.  My skin everywhere is very ANGRY.  Thank you all again!!

Ooops - forgot to add that i went Paelo-ish in January.  I am 100% gluten free and eat little to no processed foods and almost completely sugar free as well. Going organic as much as is realistc for us. I am still consuming some dairy (organic cream in my morning coffee - one cup of coffee, 1 tbsp cream).  I have been a little naughty with ice cream - my DH is a Chef and has been experimenting with making his own (organic but w/ a bit of white sugar).  Will definitely omit that ASAP.  Will work on the cream part.  Sigh. 

Hi Kim, your doctor sounds terrible.  You need to apply the cream to the white areas, or areas that are sore.  From reading other women's experiences, it might be best to start off using the cream just once a day until your body adapts to it, and then you could always increase it  to twice a day, not sure what your doc advised but the usual advice is twice daily with the plan of slowly reducing it over time.  The amount to use should be around the size of half a pearl/pearl size rubbed in carefully using a hand mirror to make sure you don't apply cream in areas that you dont need to.  

I have Ulcerative Colitis too, and take aminosalicylates every day (Pentasa) I sometimes wonder if it keeps LS  slightly at bay, as I don't have the white plaques of skin anymore, they went quickly after using the Clob cream.  That being said,  if I overdue it with too much sugar I can get a flare up. My diet is very restrictive, as I am  Gluten, Dairy, and Sulfite intolerant, and more recently I have had to go Vegan as my body decided it didn't like meat anymore, but really, all of these problems with food kicked off after been diagnosed with Ulcerative Colitis, I am sure you know that is what UC does!  it is an insidious disease, in fact, I was diagnosed with LS about three months after my UC diagnosis.   The best advice I can give you is to stay away from SUGAR, that's the key to staying well, and avoiding nasty flare ups with LS.

  

i HOPE YOU SAW A GYNOCOLOGIST Personally I prefer a woman Doctor who is sensitive to womens needs.  A really good Doctor should be advising ;you of your particular situation and exactly what to do and how often.  Good luck God Bless