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Nice to actually find something online with peoples experiences! Cant seem to find much at all. Right ill give you a brief(ish) run down on it all. Just looking for similar experiences really and the outcomes for everyone i guess.
Im a 30 year old otherwise healthy female with 4 young children 9,8,6 and 1.
So December 15 i started getting various symptoms, had eyes checked which were perfectly healthy and suggested i see a neurologist. Spoke to doc and made an appointment with neuro and ordered CAT scan. Had CAT scan then saw neuro. The results werent back by the time i saw him, told him all the symptoms and he came to the conclusion i had suffered a bit of a mental breakdown and it was all stress related!! Last week I had a call from docs the results were back and they wanted to see me the next day. Cat scan results showed ventricular sysytem was symmetrical but dilated suggesting Hydrocephalus and also the cerebellar tonsil. They have arranged to go back to said neuo and an MRI ordered to see in more detail the nerves etc.
A run down on symptoms (the list goes on!!) -
Headaches - like no other headache ever - pretty much constant pain at times flares to severe pain. Can be really bad for a long time or just a short while.
Pressure - feels like a balloon you have blown up that much its about to go pop. Like my ears are going to literally pop out of my head and its going to explode. This comes most days and can last for a while
Neck pain - this only started last week. Like a bad ache in my neck and shoulders sometimes in my back. Constant achey pain
Dizzyness - started when i stood up or bent down but now its pretty constant. Just appears for no apparant reason. Can be long periods of dizzyness or lasting a few seconds.
'Drunk Feeling' - we all know that feeling when the rooms spinning! Except ive had no alchohol!! My head feels like its jsut spinning and whoozy - can last for a few hours most days
Ears - Like a high pitched zzzz in my ears - comes most days sometimes for short periods other times long. Extreme pressure behind my ears alot of time.
Eyes - had lots of problems with my eyes - blurred vision quite often and flashing lights - every other day. Occasional pain behind the eyes.
Memory - This is the bit i dont like - i could be mid way through a conversation and boom its gone, i have no idea what so ever of what i was just talking about. Or certain words i just cant say - like there at the tip of my tongue but i just cant say it. I forget the silliest of little things. So frustrating.
Lack of consentration ... almost every day.
Legs - occassional pain in various parts, liek the sciatic pain localised to just one part eg my one knee, my ankle. Feeling quite weak aswell as of the last week or two
Swallowing - have periods where it feels as though there is literally something stuck in my throat and i cant clear it - lasts a few days then eases of for a while
Black outs - ive had a fair few of these - only last a short time
Tingling sensation - this is a new one that started friday. My left thumb felt quite numb and tingly. On sunday it moved to my left arm and when i tried to stand up and pushed down on my arms it was like something went pop in the lower half of my arm and since then (yesterday and today) i havent got much use in my arm. Very perculiar sensation and pain in it. Cant really grip or use it well - trying to push the pushchair on the school run up the hill was an interesting experinece earlier!
Finally yellowy water literally running out my nose - this only happened today a few times like a tap had been turned on and my nose went a little numb, Only on the one side
Sorry for the long story - but as you can see there are a fair few symptoms. As a young newly single mom its starting to worry me. Im scared for them more so than me - and now with my left arm going as it is with a baby trying to pick him up and do simply tasks that we do everyday is really really hard. Im worried about it happening to my other arm, or legs etc. Ive been in touch with the doc's sectretary today and she is speaking to my neuros secretary in the morning ( he was on holiday last week - typical! ) and i mentioned about my arm and symptoms progressing and they are helping to push it more. Fingers crossed its not to long a wait!!
Thanks for reading and i look forward to hearing some others experiences
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