Newly diagnosed, very confused. Need answers

Posted , 3 users are following.

Hi,

I had a primary outbreak of genital herpes, diagnosed by a doctor on physical examination. Classic lesions around my vagina. I have been in a monogamous relationship for 9 years which ended temporarily a year ago, during which time I had unprotected sex (i know) with 3 men: once with one, twice with another and once with the third. Kissed all of them a lot. Only one of them gave me oral; I gave all 3 of them oral sex again, maybe once or twice. I don't think they had any lesions or anything wrong with their outward genitalia or cold sores on their mouth while I was with them.

I got back with my monoganous partner again early this year, and have been monogamous again. I believe so has he. I know for sure that we were both monogamous for 9 years.

My IgG and IgM tests came back positive (IgG 4.57 AND IgM 3.21). 

My monogamous partner has no frank symptoms yet.

We both have had sexual partners before embarking on the monogamous relationship. 

My questions are:

-1.

Though I haven't especially tested for herpes in those 9 years, I don't ever rememeber getting such lesions, so Im assuming it's my first outbreak. So did I contract it sometime last year from one of the 3 partners? or has it been dormant in my body for 10 years? (having received it from my monogamous partner or the ones before that )

-2.

If dormant, did I get a primary outbreak NOW after all these years? I should mention that my partner and I did indulge in lots of rough sex in the couple of weeks and days preceding my outbreak which caused a lot of soreness.

-3.

Did I get it from him earlier or do you think he's contracted it from elsewhere during our period of separation for a year and passed it on to me after we got back? I'm confused because we got back in Jan, and if he had to pass it to me after our separation then the outbreak shouldv'e been sooner instead of in May. I must add that he says he's not had sex with anyone else in all these years.

I must also add my monogamous partner gets mouth ulcers very frequently and I've gotten it a few times after being with him for a few years.

Thanks a lot for taking the time to read my humongous post smile

 

0 likes, 22 replies

22 Replies

  • Posted

    Did they swab and type your lesions? Missed opportunity if they didn't. The blood tests should be done to compliment the swab test, not in lieu of it, and the IgM test should never be done for herpes due to its major issues with reliability and accuracy.

    You thus only have a visual diagnosis (not fully reliable and can't determine HSV type) and IgG blood test to go by, but even the latter does not appear to be type-specific, unless you omitted that info. Do you have HSV1 or HSV2? Has your partner been tested? You should both do the IgG type-specific test for herpes.

    • Posted

      Thanks for your response. I just got to know IgM showed hsv 1 as postiive. No, didn't swab lesions. Partner hasn't been tested. Now I'm beginning to think his mouth ulcers may be more than innocent canker sores!

      I will be getting the IgG type-specific results soon too.

       

    • Posted

      I must add I have never had cold sores, except for what i thought were canker sores inside the mouth maybe 4 times in all AFTER being with my monogamous partner.

      I must also add that he isn't into performing oral on me, but since January he has performed oral sex on me and used saliva as a lubricant (which he has done in the past too).

      We always thought he had canker sores since he never had any sores outside his mouth, only in the inner lining of the lips, inner cheeks, tongue etc.

      I'm planning to get those swabbed next time he or I have what we have been calling mouth ulcers' outbreak

    • Posted

      Oral HSV1 (cold sores) usually prefer the lips, lip margins and less commonly the harder regions of the inside mouth. Ulcers on oral soft tissues are typically canker sores, which are unrelated. It is possible to carry HSV1 without ever experiencing symptoms, however, so it could be that. I would literally toss out your IgM results and wait on the IgG. If this is a newly acquired infection, as is often the case with first outbreaks, and it comes back negative, you may need to retest for IgG at 3 months.
    • Posted

      I already know IgG IS 4.57, just don't know the type yet, but will do, soon.

    • Posted

      Ah yes, I forgot. Issue is whether it's type-specific or combined. You only have one value, so it's either combined or they only bothered to test one type. Not as useful as testing for both types individually.

    • Posted

      It's combined, so I called them up and asked them to give me type-specific results.

      If my IgG were to show either hsv 1 or 2 positive, what would that mean then?

    • Posted

      For starters, HSV1 and HSV2 are similar yet different genital infections, so it's always good to know which type you have. gHSV1 is typically much less infectious and bothersome than gHSV2.

      If you score a low positive for HSV2 IgG and a high positive for HSV1 IgG, there's a chance that the HSV2 is a false positive, especially if the test kit is HerpeSelect, as I suspect in your case. That's another good reason to separate the results.

    • Posted

      oh wow! thanks for all that info. I will post my IgG rtype-specific result as soon as I get it. So from what I know so far: my combined IgG test is positive, and IgM showed positive for hsv 1, can it be concluded it's a recent infection? How about if IgG shows positive for hsv 1 as well, is there any way we can assume it's a new or dormant infection?

      Thanks so much for all your reponses, I'm so very grateful!

    • Posted

      IgM testing really isn't advised for herpes. Even the CDC and leading HSV experts don't recommend it, but many doctors and clinics still use it, because normally IgM testing can be used for other conditions. I would thus forget you even had that test done and ignore the results.

      As for the combined IgG, I think it's best to wait and see how you test individually before trying to interpret anything. This is why a swab test is always preferable when lesions are present, by the way. Direct test for the virus in the affected location, versus indirect tests for antibodies that only indicate general infection, not location.

    • Posted

      From the result I read it looks like hsv1 on your genitals acquired recently.

      Let's wait for type specific

    • Posted

      You cannot interpret anything reliable from IgM, so you cannot assume that. The IgM test is not recommended for herpes for various reasons, including poor reliability/accuracy and inability to determine recency of infection despite (false) beliefs to the contrary.
    • Posted

      Thanks, John! Type specific says IgG also positive for HSV 1
    • Posted

      What's the index value? Did they also test for HSV2 IgG to cover all bases, and if so, how did you also score in that test?

    • Posted

      unfortunately, no idea. They just told me IgG test shows hsv 1 posutive sad

      I doubt they'll give me any more info esp since they weren't willing to give me type specific, to begin with.

      Assuming it's only hsv 1, what can I conclude? remember I've never had a classic cold sore except for what I thought were mouth ulcers after entering into a monogamous relationship for years.

    • Posted

      A recent first outbreak would seem to also indicate a recent infection (most occur within a week), *but* the fact your IgG is already positive for HSV1 indicates it is not so very recent (high index value means it's certainly not very recent, but you don't have that info). However, because it is only an antibody test, it does not indicate location of infection. One can conclude it is presumably genital due to your outbreak, but many people carry HSV1 orally without symptoms, so did they also test for HSV2 IgG to rule that out? Pity you cannot request a copy of your results. Should be within your rights.

    • Posted

      Hi!

      I harangued the lab guys so here are ALL the values finally!

      HSV 1 IgG: 4.93

      HSV 1 IgM 1.98

      HSV2 IgG 0.13

      HSV IgM 0.16

      I am really looking forward to some opinions now about when do you think and how I contracted it, how come I've never had a cold sore but (probably) a milder version of genital outbreak, is there a possibilty I contracted anything from the men I've been with last year (out of the 3, only ONE perfromed oral sex on me twice, that's it. I did kiss all of them several times).

      Long time partner gets 'mouth ulcers' from time to time and I've gotten them after being with him. He did perform oral sex on me briefly couple of times since jan this year, uses saliva as lubricant. 

      Does it look like a primary outbreak? could it have stayed dormant?

      can i pass it on by a brief kiss on lips to kids etc?

    • Posted

      So, according to your IgG results, you did not have HSV2 at the time of testing or around 2-3 months prior. However, you already had HSV1 at least 2-3 months prior, maybe even much longer than that. Your genital outbreak was only visually diagnosed as herpes, but assuming that to be correct, it would seem likely to be HSV1 unless you have a very new HSV2 infection.

      Your blood was drawn at the time of your first outbreak, so what's interesting is that you already had HSV1 before, so you either missed your first outbreak or are one of the few to not get a first outbreak until later. You can retest for IgG 3 months after your outbreak to rule out new HSV2 infection.

      Not sure if you want your partner to get tested as well, just to see if he even carries HSV1 (although the HerpeSelect test kit can miss some cases). Do not waste time or money on the IgM test. It proves nothing and is prone to false results.

      Unfortunately, that's the most that can be interpreted from the results. Hope it's somewhat helpful!

    • Posted

      Thanks, Feliz! That IS really helpful. I'm now wondering whether I will get cold sores?

      Is it safe to kiss kids etc.? share cutlery etc. with them?

      How likely do you think it is that the mouth sores are actually herpes INSIDE the mouth?

      If a genital outbreak due to HSV 1 is mild as they claim to be, then it IS actually possible that I might've missed it previously if it were a milder outbreak. I do remember tearing down there but putting it down to sex. It would clear up on it's own. This time it was definitely more noticeble and sores were present at the sides of the vaginal opening too, probably unlike before.

      I will definitely test for IgG 3 months later too.

      Just one ques: even though you've told me a few times that IgM is useless, but since I did do it around the time of my outbreak, then if it were a new hsv2 infection, the test would've picked that up?

    • Posted

      If you already had HSV1 orally from before, you should in *theory* be immune from getting it elsewhere (unless you acquired both at the same time). There is thus a chance that you only have it genitally, and even if you do have it orally as well, if you've never had cold sores, it's less likely to be as infectious. So I wouldn't worry too much about the oral aspect, unless you get cold sores.

      Cold sores are usually external or less commonly on hard internal surfaces (gums, near palette). If the sores you and your partner get are on soft internal structures (inner lip, tongue, far palette), that would seem to indicate canker sores, which are unrelated.

      One might think that the IgM test should still show up something if the virus is present, but I have read so many expert views discrediting the IgM test for herpes and its results, I wouldn't put any money on that.

    • Posted

      Thanks a ton, Feliz!! Appreciate all your patient reading and replies!

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