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newly diagnosed with fibromyalgia

Posted , 6 users are following.

mandy12133
mandy12133

Hi Been seeing a rhumotologist had an mri scan which showed no inflammation, so think dr was saying well theres nothing wrong with you I was nearly in tears as im in a lot of pain .told to exercise more ! Asked him if it could be fibromyalgia he said it could very well be and he checked some pressure points and decuded thats what it is , so been given leaflet and being sent on s fibromyalgis course at bath and physio at bath, but any advice or tips would be reallg helpfull , or any medication I can ask for as you have to ask as you are not offered!! I really need some support thanks mandy

1 like, 8 replies

8 Replies

  • Lily23957
    Lily23957 mandy12133

    Posted

    I am due to see a rheumatologist on Friday and I am already on the defensive.I am already on naproxen and pregabalin which work quite well for me at the moment.All I want from the rheumatologist is confirmation of my GP's diagnosis but I am terrified that she will dismiss all my symptoms as ''due to depression''which is what I have been told for the past 20yrs.All I want is for her to believe me then maybe my family will believe me too.
  • grantb
    grantb mandy12133

    Posted

    Hi Many. Don't feel down. what a fantastic opportunity you have been given to attend the course. I've been on two courses and if you take it very seriously you will learn a lot about the condition and how to manage it. 

    As far as medication goes I have been in consiltation with my G.P. and it's a case of trial and error. my medication leaves me totally incapacitated at times. I'm on very strong pain killers and in the past have tried acupuncture, tennis machine, chiropractor, morphine patches and counselling.  im afraid to say that they have not made a great difference to my condition. 

    I will say good sleep health has a lot to do with your mobility, I make sure I get up at 7am and go to bed at 10th srtickly every night and desperately try not to nap during the day. 

    I'm going on a bit but if you need me to text more, I will wait for your reply.  Regards Grant.

  • kathleen1958
    kathleen1958 mandy12133

    Posted

    You say you have been sent on a course to help you. Where do you live I would be interested in going to some group or anything that could help with understanding my condition or discussing treatments with other people.
  • grantb
    grantb mandy12133

    Posted

    Sorry Mandy.  my reply has gone to a moderator. should receive my reply as I have named  meds I am prescribed. It maybe because I mentioned mor**in patches or te*n's machine. will be in touch. might be able to put your mind at rest regarding the course.Regards Grant.
  • grahammolyneux
    grahammolyneux mandy12133

    Posted

    Hi Mandy , 

    I was diagnosed in September and was in tears because I to seen it as being told there was nothing wrong with me. 

    This forum is excellent,you ask a question and get lots of great advice. 

    I am only half way through the list of suggestionsthat have come my way so keep asking as much to like and you might just find a way of dealing with your problems. 

  • Buzbi
    Buzbi mandy12133

    Posted

    When i attended my rhumes appt i was only there 20 mins he didnt give a flying F***! Sorry for swearing he did say i should come off the gabapentin. I went to my gp today and she has upped my gabs now to 4 dailey so 1200mg a day with my co codomol and she has put me on a slow release venlaflaxine. She was suprised with the rhumes dr i seen as he just said he would send me a leaflet in the post.!! 
  • cristian46692
    cristian46692 mandy12133

    Posted

     Hi Mandy12133 .

    I'm the same boat,after being seen for 5 drs i'm back to square 0,last week I went for acupuncture and the Dr told me that I couldn't get acupuncture,not i Have knowing what I have ,so he did a test EMG ,so later he tell me that I have Carpal Tunnel ( I really didn't think that I have Carpal Tunnel,but Im not a Dr ,so I said to myself,it's what it's) so I got an injection in my Carpel and he told me to wear an orthopedic bracelet and in 3 days ill be ok ,if not to call him ,well 4 days passed and I was the same way ..PAIN ....SO I got acupuncture and he told me that there was no warranty to work,so I decide to go for surgery ,because ,that was my last resource ,so I made the appointment with an orthopedic Dr,the one that I saw at the beginning of my journey ,well went I saw him I told him ,the same thing that the other dr told ,that I have Carpal Tunnel,he looked the test and he told me .." YOU DON'T HAVE CARPAL TUNNEL "You have no idea how this news fell ,back again to square 1 ,for more than 2 months with  pain and not knowing what I have ,I been out of work for more than a months and they are question me when Im comming back ,the only thing that I can say right now this couple months are been hell .

  • christine26761
    christine26761 mandy12133

    Posted

    Wow, a Fibro physio and a Fibrocouse..how good is that.ive had it now for over 20 years...it flares up really bad at time but it her than that I can manage it fairly well..I am on amitripyline one a day befire bed- great sleep no pain..it's quite numbing..I can cooe with anything the next day..I also take Osteo Panadol. 2 tabs 3 times everyday-no build up of this over the counter tablet either...just paracetamol 600..opposed to the norm 500,,,, it took a while to get here..especially the right dosage of amitripyline...please let us all know about your course and physio..this is a great site for us all...soooooo helpful...be blessed..-smile xxxAustralia 
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