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Newly diagnosed with GS but drs say it can't be causing my symptoms. Help!

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Jessa4390
Jessa4390

I have been really sick for the last 5 weeks. Started with horrible pain under right upper rib area. Then came the nausea and fatigue.. I have had so much blood work scans and test. All of them normal except for the bilirubin and I have an enlarged fatty liver. The Dr.s have confirmed I have GS but say it can't possibly be causing my symptoms. They keep giving me nausea meds and pain meds. Feel like I am loosing my mind. I just want the pain and nausea to stop. I want my life back. Any suggestions or advise would be helpful.

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2 Replies

  • Kwenda
    Kwenda Jessa4390

    Posted

    You do not state your Bilirubin level but MOST CERTAINLY GS CAN cause many symptoms depending upon the level of Bilirubin found.

    When my bilirubin level was close to 100 I had all kinds of problems and the doctors told me to just live with it.

    IBS, or Irritable Bowel Syndrome, is very commonly reported and by this the doctors mean that the digestive track is not normal but they have no specific reason.

    I would suggest that you change doctors and demand things like a colonoscopy, a liver function test, a full blood count to include vitamin B12 and D.  After a full diagnosis then it should be possible to come up with some proper answers.

    In my case we found that eating herbs and spices was causing my GS.  I stopped all herbs and spices and now I am back to normal health and the bilirubin level is close to normal.

    Good luck..

  • Ts0383
    Ts0383 Jessa4390

    Posted

    Sounds like u may also have a gallstone. Ive had gs since i was a teenager. I had to have my gallbladder removed about 12 years ago, im in my 30s now. They mistook my gallstones as wrap around back pain and woud send me home with pain and nausea meds for over 6 months and then was admitted to er with emergency gallbladder remival surgwry due to it had been overlooked and was about to burst your symproms sound similar. I would ask your dr to check thete before its too late. Patients with gs have a higher risk to develop gallstones. Ive gotten used to doing my owb research on gs because alot of drs unless they are liver specialists dont know alot about gs so they tend to overlook alout with us patients. Good luck! Hope this helps
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