Newly diagnosed with Lichen Sclerosus and feeling mad

Hello Adele

I think a reaction like that is normal for any diagnosis, especially if you have been living with symptoms for a long time.

I have other conditions and am going through testing for another auto immune disease at the moment. A diagnosis is a strange mixture of relief, anger, frustration and more ...

I was diagnosed with LS in 2013 after a number of years with problems and doctors giving other explanations that didn't seem right.

I wish you well in your journey and you appreciate a good, supportive doctor - they are rarer than gold dust !

Regards.

hi...think it is common when u r diagnosed to feel sad AND mad..."why did this happen to me" - "am I dirty"???? Your emotions r running wild...the most important thing u need to do is find a doctor (and depending what country u r living in that might not be so easy) and find out the best TX for U...it seems many women need to be on a steroid with LS and some need a hormone cream (such as Estrace) for the dryness and texture of the skin...using a mild soap (like Cetaphil or Dove) to wash your privates with as well as using an organic coconut oil for lubrication is also important - as of right now this "situation" is not curable BUT is treatable...hang in there and research where to go to be seen and treated...PROMISE - better days R ahead!!

i have had 4 biopsy on my vulva because cancer runs in my family .so far nothing but i went from having it down below o having it on the back of my legs on my stomach and having it on my back . when it first start it feels like you have gravel on you. i go to the dermatologist once a month to be checked and to have my blood tested. this crap on your skin itches like crazy. it took me forever to find a good dr.

Hi Adele,

How are you doing? Is the itch still gone? Hope so. There are many oils and preparations for itch at least here in the states. Many have found relief with borax solution or baking soda in the bath water. Oral antihistamines work for many and you can get them at the drug store. Have you had your biopsy yet? I think we all know how you feel mentally and emotionally. It is a challenge to go forward with this disease especially if one has a very large, public job. It helps a lot to share your story with the rest of the women on here. If it was not for some of them I might be in the loony bin.