Newly diagnosed with Lichens Sclerosis

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I was recently diagnosed and it was pretty bad.  I thought that I had a yeast infection but it turned out to be this.  Prescribed a strong steroid cream and been using for a week now.  So far, it only makes my vulva inflamed and still have itching and pain with urination. 

I dont like the idea of having to take steroids long term and I am looking for a more natural treatment !  Help !

 

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    Emuaid MAXX on Amazon and then Emuaid regular formula. It took 10 days for all my lesions to heal, all pain and itch to go away. Changed my diet ( no sugar, little carbs,  no soy, low oxalate), balanced out my supplements and  lowered my stress. 

    I now moisturize with coconut oil or Medline soothe and cool Aloe with Vit A, D, E. 

    Only have a tingle if I eat sugar or too much bread. I hv to give up Gluten next! 

    Good luck to you! 

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    • Posted

      Thanks Karen!  I mentioned my hesitation at taking steroids long term and she is still persisting that I at least finish my RX to get it under control and then lowered the dose , like twice a week .. forever..   lol.
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    • Edited

      Forever is a long time! 🙄 I hv a lot of reactions / allergies to things, so if I can treat it naturally with diet, supplements and creams like Emuaid, that’s my path. I did fill the clob script and  I hv it if I need it, but teying to hold off! I also bought the 100% Food- quality Borax on Amazon and may tey the Borax and water paste on the cotton ball to see if it helps clitoris hooding. It still responds to stimulation, but not as sensitive as it was....

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    • Posted

      Hi Karen, did you need to apply the Emuaid to the outer areas of the labia majora...(.onto the hair )and groin areas aswell or just on the vulva and inner labia minora etc ? My LS diagnosed area was just at the entrance to vagina, just a bit of redness,no itching/patches anywhere that I can see but recently, I'm experiencing a kind of soreness on the hair section of labia lip, radiating to the groin area on same side and a tingly sensation so unsure if spreading spreading! Feels a bit sore/irritation kind of feeling like when you've got a bit of sunburn to your skin. I use clobetasol ( dermovate) for the vulva area but I'm concerned if I apply more of it to the mentioned area aswell, .that I'll be using way too much of it as the one finger tip dose , wouldn't be enough for it all . Any suggestions would be helpful. !

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    • Posted

      hi there! when u apply emuaide (i just bought it) do you put it on the inside a bit as well? I googled and googled and I didn’t see anything saying not to so I guess I did it. Like you I’m trying to get away from that steroid cream a little bit. how is eumaide working gor you far? ty

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    • Posted

      If you mean inside the labia- yes. inside the vagina- no. LS does not typically affect the vagina or inside it.

      I'm doing well, LS under control, no further flare- ups, I use emuaid if I feel little irritated - usually around my period when hormones increase. Lowered my stress, cut out majority of sugar.

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      Hi Karen - really interesting to read about your experience which sounds very similar to my own. I have never been certain about sugar but lately I feel this is a big contributor to flare-ups - especially around my periods too. I'm not usually a stressed person but i think recent perimenopause oestrogen fluctuations and the related stress is causing more LS flare-ups for me too. I really hope I can keep the LS under control as I get older, as I'm usually relatively asymptomatic. I'm also currently trying to work out if Ive developed a bit of sensitivity to the steroid cream, so I'm really encouraged to hear the results you have had from Emuaid. Ive just ordered some V magic as I read avocado oil can be great (similar principle to the antioxidant support from emu oil, I think) but having read your success I might try the Emuaid too. One question -on average how often do you now use the steroid cream/ointment? And for how long? I wish they would do more research into the efficacy of antioxidant options rather than just throwing steroids at it all the time! Thanks for your post and those from others too, its great to be able to share successes (and what not to do too!). T

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    • Edited

      Tracey419- I only use the clobetasol if I feel a " tingle"- indicates to me active LS. I use the emuaid around my period and on my perineum which has had a build-up of scar tissue forming. I used to use Clob 3x a week as per my Dr., but as I hv lowered my stress and cut sugar, I find it unnecessary. I can't get back the architecture I hv lost, but I have stopped obsessing about it. I shower with Cetaphil and take baths with epsom salt, baking soda and sometimes food- grade borax ( on amazon)

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  • Posted

    I was only diagnosed a few weeks ago but I was given intragel that  helps numb the area as well as clob  steroid cream I’ve also bought OB YES which I find really soothing 

    Hope that helps

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