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i All- I am newly diagnosed with LS a week ago and have been voraciously reading everything I can on it. My doctor is away for the next 6 weeks and left ( nurse called to tell me diagnosis over the phone! ) with no prescription, no treatment discussion and I feel like I am on my own to handle this! It is so nice to know that I am not alone! I am 47 yrs. old, still get my period every 28 days and everything was fine up until 3 months ago. I have had a lot pain after urination, skin very irritated- chalked it up to the middle- aged “ squirts” we women get after three kids and lifting heavy things, excess coughing or sneezing and just thought it was something I had to “ put up with”. My clitoris has been hyper- sensitive, swollen and irritated, so I bought panties with no seams because they touched in just the wrong place. After we had sex in late March ( no pain during except in clitoris during oral- sorry for being so descriptive), I had terrible burning pain for the next two weeks, coupled with my period, everything just felt raw. After a few weeks it seemed to calm down and after mentioning to my husband that I was a lttle dry, and needed more forplay, we had sex again. No pain during, but I could not come and had terrible burning and pain again for weeks afterward. Made appt. with Gyno and she said it looked like Herpes and asked if hubby had a cold during oral sex? Her cotton tipped swabs hurt like hell! Tested for everything including Herpes, Syphilis, etc. all negative. I’m not in the habit of looking “ down there”- raised strict Catholic, husband my only partner, I had to see “ what was going on down there”. Used a hand mirror and saw that interior Vulva was all white, several ulcerated “ lesions”, clitoris was swollen 2-3 times its size and looked split, bump down near vaginal opening, lesion on perenium- what a mess! Thought maybe I was allergic to scented tampons, so I bought organic corton tampons and panty liners. Seemed to calm down a bit and I was feeling hopeful. Got period again and was so inflamed and dry I couldn’t use the tampons! Burned like gasoline when I peed and pain made me want to throw up! Went back to Gyno for a follow up and she said it was worse than before! Might be vulvular cancer- Scheduled biopsy for the NEXT DAY- now I’m freaking out! Took 6 biopsy samples, vulva like swiss cheese, so painful! Results came back 6 days later and I’ve been on my own since. Nothing from my Dr. So you guys are my source of info! I ordered emuaid cream after reading about it and it has helped with itching and pain, also statted on a low oxylate doet that is supposed to help. I noticed the pain was worse after wheat bread, peanut butter, lemonade, etc. I have been using a moisture barrier control ( soothe and cool) after every trip to the bathroom and that seems to help. Still in terrible pain in clitoral area. Am worried about all the things I have read about steroid creams thinning the skin so much and leading to more tears, etc. Your thoughts? Also ordered another homeopathic cream from Perrins, I ‘m desperate and will try anything! Next Dr. appt July 24!!! Is my sex life gone for good? Any thoughts/ info/ comments appreciated.
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