Newly diagnosed with migraines

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And for added fun, cluster headaches!

Hi everyone, I've recently been diagnosed with migraines at the ripe old age of 26. I've been dealing with headaches on and off since I was a teenager but they've developed into bigger things now.

Anyway, i was wondering if any one else was experiencing the same symptoms:

A pressure in the ears, feels like they have to pop but won't, followed by ringing.

A 'heavy' feeling in the skull, almost like a blanket has been wrapped around your brain.

Auras/flashing lights that don't happen until after the migraine has started or is ending.

Vertigo and dizziness.

Nausea.

And finally, the least favorite one, Alice In Wonderland Syndrome. Always great when it happens while driving but I've learned by now when I feel it in my ears it's time to pull over.

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17 Replies

  • Posted

    Hi. Please consider that this could be some sort of aito immune disorder. Do you have other health concerns at this time? I had a very similar migraine syndrome with auto immune disease. Very hard to get a diagnosis as scans etc will look normal.
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  • Posted

    Hi

    I suffered from classic migraines for 15 years and by shear coincidence found a cure for my migraines. you.

    What is important is that you do suffer from the classic type of migraine  :  Do you get the early warning bell : which is an aura or spots, which then progress to numbness in the face, then nausea  and finally an intense head ache where you cannot face any sort of light, and need to rest in a state of darkness.  I used to lock my self in a cupboard seeking complete darkness.

    So I tried all sorts of doctors, medication , even the headache clinic, and nothing helped.  I used to play soccer, and one day  I was just out of the army, playing a game of soccer .  We had just started, I was on the field when I started getting the "spots", I new I had to get off the field as I had about 30 minutes before I would experience the worst migraine. By this stage I experienced about 3 migraines a week.

    Co incidentally as the spots arrived, I also felt like sneezing, and what I normally do when I get the urge to sneeze, is look into a bright light, this helps the sneeze come quickly.  So I naturally glanced at the sun for about 3 or 4 seconds.

    This made me sneeze, but what it also did is made my spots go away.  So here I am waiting for my migraine to come but it never came.

    I thought this was weird as I would always get a migraine after the spots.  I put 2 and 2 together and realized that staring at a bright light may have caused this.

    So I waited for the next migraine to arrive, a day or so later.  The minute I got the early warning spots/or aura, I ran outside and stared at the sun for 3 or 4 seconds, looked away, stared again, looked away, and I think I tried it again for 2 or 3 seconds, and noticed that the spots went away. To my utter joy, once again the migraine did not develop.  So for the next couple of months I realized if I stared at the sun by day, or at a bright light at night, just when the spots arrived, it would stop my migraine dead in its tracks.  The important thing was to do this the minute I saw the spots/aura.  If I was too late, the migraine would develop.

    It's funny the, irony is that bright light really affects you when you have a migraine, who would think that bright light is what causes a reaction in your head to stop the migraine from happening.

    After doing this for about 1 year, my migraines completely disappeared, I never even got the spots. 

    I have helped many friends who have suffered from classic migraines.  And have noticed that it is important that people that  suffer from the same symptoms as mine, tend to have successful results.

    So remember that starong at the sun is dangerous and my cure sounds ludicrous, but it worked for me and some friends of mine including my wife.

    If you try it, it is at your own risk, but remember, the important thing is to get it when the aura or spots arrive before the migrane, and it only takes 2 or 3 seconds at a time to glance at the sun, look away, if the spots are still there try it a second time and maybe even a third.

    Good luck

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  • Posted

    Ohhhhh my god!! Sounds just like mine apart from instead of the blanket over my head mine feels like my head is being filled and the pressure is unbearable feels like its going to explode or my eyes are going to fall out.

    I get extreme sensitivity to light and nausea.

    Fun times....said noone ever! ??😨😨😨

    I've had alice in wonderland syndrome since being a kid and I never knew what it was until recently It is sooooo weird. Is this linked to migraine? I've never told my neuro about it.

    Have you started on meds?

    Xx

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    • Posted

      I actually just started meds and had an adverse reaction so I'm back to square one. From my understanding Alice in wonderland syndrome is linked to migraines. It's just so much fun isn't it? I usually get the Alice in wonderland feeling just before the migraine, maybe by 10-15 minutes. Once things start going 'sideways' I know it's time to buckle down.

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  • Posted

    Oh my God, I have never heard of Alice in Wonderland Syndrome, just Googled it and realised it is what I've had since I was a small child and I have never mentioned it to anyone, not my parents or my husband.  I only really get it when I'm in bed, just before going to sleep, but I never associated it with any condition.

    It's nice I now have a name for it, just got to get to the bottom of the migraines now.

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    • Posted

      I stumbled across it on a website about migraine disorders. I hear you, I hope I can get to the bottom of mine too. They're terrible. Are you going to bring that up with your doctor? Might be worth mentioning.

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    • Posted

      To be honest I've given up with GPs and consultants, they've done absolutely nothing for me over the last 40 years.  I've been on various meds over the years and the last one nearly killed me 2 years ago, I kid you not, so I am nervous about trying anything new.  All I do now is do my own research and try different things in the hope I get a result.  If I find myself at the docs again I will mention it though.

      Hope you get some answers for your migraines, it can be a long road

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  • Posted

    Hiya,

    I have suffered with most of the same symptoms that you describe for nearly 13 years ever since I was a passenger in a car crash where I received severe head lacerations.

    4 years ago I finally decided to speak to my gp about them as they were becoming daily and really affecting my life but my request for help just fell on deaf ears for ages. I kept making appointments with different doctors until I finally found one who would listen and put me on a mixture of beta blockers and triptans and made me appointments to see a specialist.

    The specialist did some tests and altered my medercations and gave me some tips, but the biggest one supprisingly was not to take painkillers for magraines due to the amount of time I had suffered the condition, my body had become reliant on them and they were doing more harm than good.

    I guess I'm just trying to say that there is help out there if you need it, but you have to pester your gp for it!

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    • Posted

      I'm working with my GP and my neurologist to see what will work for me. Unfortunately I'm very sensitive to medication so a lot of those are not an option. With my anxiety we tried Venlafaxine and I had a massive, horrible reaction which was terrifying. I'll figure it out eventually it's just difficult.

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  • Posted

    Hi. Yes i get all those symptoms plus numbness on the right side of my body. Even the right side of tongue and nose goes numb. Had them for over 30 years. After having them constantly for 5 days and nearly admitted to hospital i was put on sumatriptan and most of the time i catch them before i get too bad
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    • Posted

      Hi. No its horrid. The first time it happened i thought i was having a stroke or something worse. If i take the tablets as soon as i start to feel fingers and hand going numb i ly down and close my eyes for 10 or 20 mins and i dont get the flashing lights or the rest of the symptoms. I just feel rough for a couple of hours just like how i feel after a full blown attack
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    • Posted

      Oh man no thanks. I'm sorry you're dealing with all that. It can't be easy. Does it affect your day to day very much? Mine does since my anxiety feeds off my migraines and vice versa.

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    • Posted

      Im use to it now. If i have a full attack it knocks me off my feet for 3 days. I was taking syndol for them but after having migraines every day for 5days and having paramedics called out i was put on sumatriptan and it has made a difference
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    • Posted

      Apart from anxiety does anything else trigger them because i cant eat chocolate, cheese and orange as these foods triggers my migraines
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    • Posted

      Not drinking enough water will trigger one and also no sleep but that's pretty obvious. Allergies can set mine off too. Oddly enough some foods can trigger an anxiety attack which will trigger a migraine later. It's getting real old real quick.

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