Newly diagnosed with polymyalgia
Posted , 11 users are following.
Hi All, I am on 50 (which I hear is young) and have been sufferening since May 2016 and only diagnosed in November. Was put on 25ml pred which almost cleared all pain and increased to 40mil to see if it would get rid of it completly. There was no real difference so went back down to 25ml. I have been really lucky as I am having no side effects yet. Trying to reduce but going down to 20 but the pain in my back and shoulders are slowly coming back. I feel that as long as it does not come back into my hips and knees I can cope with the pain. Is this the right way to think. I do want to get off pred but if I reduce more will the pain start to spread again? How bad is pred for you?
So many questions...Glad to have found this group.
0 likes, 25 replies
elizabeth40672
Posted
I am not sure if I am responding on the right bit here but I just wanted to thank you all for your support and advice. It has made me realise that the reduction from 25ml to 20ml has been too big as I am in pain again and that is ok. It is not something I should just put up with. so will go back up to 25 and start again but this time ask for 1ml tablets and reduce more slowly. I have also learnt that I need to watch out for my Vit D levels so will ask for the blood test to include that. I need to wait for the Bone density scan to see if it is having any effect on my bones and deal with that when it comes. Mind you over Christmas i fell on an ice rink (throught being a very bad ice skater!) and only bruised myself so hopefully that is a good sign. I had not even thought about it being a silly activity for me at the moment!
I will be thinking more carefully about how I excercise and not feel bad that I can't push myself and learn to know my limits. more walking seems to be on the cards
I will also be looking at my diet and inlude some prunes