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Newly diagnosed with stage 3 kidney disease

Posted , 30 users are following.

Willowby
Willowby

As from the title I am recently diagnosed with stage 3 kidney disease, my gfr is 56. I have been feeling off colour for a few years now with symptoms getting worse. I have weight loss, swollen ankles, shortness of breath, extreme fatigue, a need to pee all through the night, difficulty sleeping, Itchy skin, muscle cramps, headaches very clammy skin and night sweats, pain in right side front & back, potassium high. I have a problem with iron defiency and vit d defiency & my bp is very high at the moment. My gfr went down by 6 in one year don't know much about the years before. I suppose what I want to find out is how should my gp be helping me at this stage with all of the above. Has anyone out there maybe been in my position, or is in the same position that could help me.

I was diagnosed with fibromyalgia in 2002 but have always thought that the diagnosis didn't quite fit.

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  • BossaNova
    BossaNova Willowby

    Posted

    I am 68...diagnosed with stage 3 also...doctor said there was nothing I could do till later stages, I also have your symptoms....hoping you get answers so maybe I can use them as well....wishing you well always.
    • Willowby
      Willowby BossaNova

      Posted

      Hi BossaNova

      Thanks for your message I’m still searching unfortunately. I will be going to have my 6 monthly blood test in a couple of weeks so will find out how my gfr is.  How are you doing hope they are looking after you. 

      Sorry I took a while to reply but my sister has just been diagnosed with cancer on her spine so all is quite worrying at moment.

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