Newly diagnosed with UC
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I'm a young girl (just turned 17) who was having bowel issues. Today I had a endoscopy and a colonoscopy. They told me that I had UC in my rectum. They said it was fairly mild (but enough to see inflammation and ulcers/puss -sorry for TMI) and sent me home with instructions to take 2 lialda pills in the morning and a suppository at night for two weeks. They took biopsies and said they would be back in a week (I don't know specifically what they are looking for.) They haven't said anything about a follow up appointment but would think that I would need one to talk about what going to happen in the future (well, more than two weeks.) I'm hoping that they will call or email about one, but I'm not positive. So my main question is, what's next? Did this happen to any of you in this way? Will I be on a lot of medication for a while? Any information would be great! Just a little confused about what my future will hold. Thanks!
0 likes, 7 replies
Maryjo jujuellawhite
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jujuellawhite Maryjo
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gabe99 jujuellawhite
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I read a book on relaxation techniques and practiced it regularly. It was simple. I'd lie down, close my eyes, and over a fifteen minute period I'd almost chant to myself "relax your toes", "relax your toes" and try to do as what I was saying. I would move on the ankles, feet, legs, knees etc.to the tops of my heads. In my life I'd try to avoid stressful situations with family, work and wherever possible. Throughout the day I'd try to think of relaxing, taking deep breaths and checking to see if my stomach muscles were relaxed.
Now I'm sure I was lucky, but I largely remained symptom free for decades, although I'd have short periods of diarrhea.
You might want to try that. Also it's important to take charge of you situation, become educated and involved and find a doctor (should you need one) that's sympathetic and understanding and one you feel you can talk to. Make sure that it feels like a partnership.
Good luck and most importantly, don't despair, but act to try to help yourself.
jujuellawhite gabe99
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jill18833 jujuellawhite
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drummergirl97 jujuellawhite
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Guppy007 jujuellawhite
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The most common triggers for people with UC are lactose intolerance, alcohol, and gluten intolerance, but everyone is different. Its a good idea to keep a food journal for a couple of months, its a bore, but it will help you locate exactly what foods your body really cannot tolerate, I managed it for 6 weeks and it was helpful as I now have a clear idea of what I can and cannot eat, but really you do need to educate yourself on the disease, and there is so much information on the internet for that..with regard to your doctor, I would make an appointment to see him a few days before your suppositories run out, to renew and recieve the results of your biopsy, which will no doubt be a confirmation of the initial diagnosis...whilst you are flaring you will need to take suppositories as it is far better to treat "both ends" and once in remission you can take them less.