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newly diagnosis with LS started Clobetasol 0.05 %

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vergakesk
vergakesk

Hi,

Just got diagnosis with LS and is on Clobetasol 0.05 % for a month, them 3 times a week. I have had cramps,is this normal? Can you develop  squamous cell cancer from LS, my dad had squamous cell behind his ear that traveled through out his body in 6 months. My Dr. said if I see changes come right in. I'm 56 been postmenopausal for 7 years. 

0 likes, 2 replies

2 Replies

  • Wee_Dugie
    Wee_Dugie vergakesk

    Posted

    Hi V, I am a male with LS and was diagnosed 7+ years ago.  I only treat mine with Clobetasol which I still use the majority of days as this is the only way to keep my skin as healthy as possible.

    I have followed the Women's Health / LS discussion forum pages for sometime now as that is where you find out the most about LS, as comparatively few males have LS and suffer to a far-less degree than the majority of you Ladies.

    The best place to start to understand your condition is to check out this video, please do not be overly concerned about the potential prospects you face, BUT do find the right ways of treating your symptoms that BEST manage what you experience from LS - I think you will also see from the video that cancer is quite rare, but again highlights that you need to get the treatment regime that works best for you in place ...

    https://www.bsccp.org.uk/colposcopy-resources/the-lichens-of-the-vulva              Good Luck!

  • ElleF
    ElleF vergakesk

    Posted

    Your doctor has said to come in if you see changes because of vulvar intreapithelial neoplasia (VIN) which is the presence of pre-cancerous cells. The connection between lichen sclerosis and vulvar cancer is vulvar VIN. Having lichen sclerosis puts one at risk for VIN, which then puts one at risk for cancer. Many people who are diagnosed with VIN have lichen sclerosis, however many who have lichen sclerosis will not get VIN. The HPV virus also puts people at risk of VIN. 

    The risk of VIN and cancer are the main reason we are told to check ourselves in a mirror at a regular basis. If you develop a discoloured spot that does not go away you should point it out to your gynecologist. They will biopsy it and if the spot is small enough, the biopsy alone could be enough to remove the cells from the area. If not, there are other treatments to remove it depending upon where it is and the severity of it. I am on a 6 month recall to see if it returns after treatment. Patients can continue to get bits removed for years the aim of which is to not let cancer develop. 

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