Newly discovered ls

Your doctor should be consulted if you are bleeding. Especially if you it's been ten years. Fibroids were my problem that were bleeding. Very important to get checked out. Not related to the vulvar LS.

As far the shrinking of your areas, I have seen mine get better with the Clobetasol treatment. Other suggestions you will see on this site.

Does your doctor know you started bleeding?

I was told the same thing! I just couldn't face the tearing and painful few days that followed. Im sure they just use these throw away lines and really have no idea of the real issues we are going through.  I think it's really important to get LS under control and then work up "stretching" the area starting out really cautiously with paw paw ointment or coconut oil.

I would definitely get the bleeding seen to!

😘

Dear God they are clueless arent they ! ?!!

Id like to see how he/she would feel if they were in agony throughout intercourse then dealing for a week or more with tears and splits - that would wipe the smile off their bl##dy faces I guarantee !!!

I did have narrowing of the vagina and used dilators with great success. You can get them online and they go from really narrow to penis size. So in your own time and in the privacy of your own bedroom you can work your way through the sizes till its back to normal size. It took about a month for me to be comfortable with the largest size. That was using the dilators most days.Now I use tthem twice a week. Use lots of lubrication, relax and take things slowly and you will be fine Im sure. I bought mine. online. The steroid does stop/slow down shrinkage . Remember to rub t in all over the required areas for at least 90 seconds. If you are using De rmovate cream swop it for the OINTMENT as t his spreads and is absorbed more easily. Use of a moisturiser/ barrier cream is essential in slowing down shrinkage and keeping skin as healthy as possible. I use Hydromol ointment all the time. Y ou can put it on 30 mins after steroid. It stops skin from being irritated by urine etc and make the area comfortable.

Limit your sugar as this is a known trigger for flare ups and general inflammation.

Other ladies have had great results with borax which I have not tried as what i do is working for me.

Hope t his helps and gives you some hope. When you do resume intercourse - loads of lube is essential and some wine ! Lol

good luck, let me know how you get on .

Caroline xx

PS

DEFINITELY get that bleeding checked out asap hon

Hi Suzanne098,

I , too, was recently diagnosed a week ago. I am very distressed by it! No sex since 2002, not by choice. Ex hubby was impotent and didn't want to do anything about it.

Anyway, I have been using the clobestal for four days, no changes and no subsiding with the itching. Reading all I can find about this disease. I can't believe I have it! I have been under tremendous stress due to a costly and nasty divorce . Wonder if this triggered it?can anyone tell me how long with the ointment till I see some improvement . Also, the doctor spent no time with me on how to apply the ointment or where to apply it! Do I put it on the inside of the labia minora? Do I put it on the clitoris and its hood. Please, can someone tell me? Thanks.

I would get the bleeding sorted out

Hi, you want to ask your doctor to refer you to gynecology, and let a consultant have a look, i have got VIN, mine gets very sore, and i have white patches, sometimes i have tears in my inner lips, sometime they look like a burst blister. i am awaiting surgery the end of this month to remove pre cancerous cells, you do need to be refered to the hospital to gyne, they know what they are looking at. Take care.

Hi Suzanne,so sorry you have been diagnosed with this awful LS... will be lots of helpful advice on this wonderful forum. Just wanted to say what others have,please get yourself referred to a consultant. Good luck.