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I saw the Rheumatologist the other day and he really listened to me. He agrees that something is definitely wrong with me and has ordered further, more comprehensive blood tests. He said that I have some features of several Connective Tissue Diseases but not enough of each of them (or indeed all) to give a specific diagnosis, so he's treating it as Undifferentiated Connective Tissue Disease pending results from the latest tests. I'm due to see the specialist nurse in a month with a view to tailoring therapies/medications. He suggested Hydroxychloroquine.
Needless to say I am relieved that it is not all in my mind! And that I've been busy researching UCTD. Whilst I wait for these results does anyone have any advice or information that may be useful?
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