NHS CFS Clinics

cbt i was sent 1st for my depression and then after a load of test for cfs .

the cbt for depression did help. the cfs question the girl who done the cbt not understanding as the 1st one - got offered 5 visit pulled out of 2nd after 3 as made my blood boil but this is me .

You might be better at looking into Dr. Ashok Gupta's amygdala re-training programme. M.E. is not a phsycological desease, of course people get dpressed because they have M.E.. as it is so dibilitating.

I tried the re-training programme and it worked, I must admit that I had to stop doing it as I did not have time last year as I was doing a lot of sewing for my daughters wedding now I am reluctant to start again incase it does not work .

I am really bad at the moment and must start doing the programme again.

You can get details of the website.

In my opinion C.B.T. does not help M.E.

Best wishes

Alison

cbt give a go try u get out for 5 visits - could work for her.

aiso the re-training programme u on commision pluging it?

dont think it will hurt to at least try CBT - what harm can it do? Might help to switch my constant wired brain off and i will try anything if its free

cbt is a [erson talking to u over u and how the problem (cfs) gets to u .

eg . mood/sleepy/fell like poo and other.

cbt with mine was pointless over cfs but could work for u - there normal a few weeks waiting list for the service .

its just talking with brain fog tip write down how u are fell , moods triggers . eatting .sleeping hours and any think eise which u might want to ask the service .

and dont for get my admin fee of £50 ;-).

typo ..

cbt is a person talking to u over u and how the problem (cfs) gets to u .

HI Jacquie, I am currently just over half way through GET with a London hospital CFS clinic. I have found it really helpful in stabilising my 'boom and bust' behaviour as they call it. I couldn't walk far at all and now doing 6mins a day from 30 secs!

Also going to having some CBT but I don't have any personal experience of that yet. For me it was more of a physical problem so they felt GET would be more beneficial..its a lot of collaboration between you and the physiotherapist. I am lucky to have a really good one. I would definitely go for it. Good Luck!

Jacquie - Different approaches don't necessarily exclude each other. Like you said, it probably does not hurt to try out CBT; getting psychological support can help with your daily coping. Medication (LDN), on the other hand, will definitely help with your constant sore throat and is likely to alleviate other problems like brain fog considerably. It may affect your sleep at the beginning, and rarely it increases spasticity (stiffness) in legs, but both symptoms will be relieved over time. LDN is usually well tolerated by CFS patients unlike lots of other drugs. I could not be without it.

when i go to this NHS clinic, can they actually diagnose CFS? also do they test for other co conditions - like Lyme, Sjorgens Syndrome, Lupus, etc if you feel this might be a possibility?

I might have to try LDN - ive got it on the back burner at moment as anything that hinders my sleep is not good

Also - its affording it, i will have to go throgh a private doc etc and i want to make sure all else is ruled out first

diagnose CFS is a doctors nightmare they are unsure >>>what it is< so there happy to give it a name and send u for cbt to try help. so="" there="" happy="" to="" give="" it="" a="" name="" and="" send="" u="" for="" cbt="" to="" try="" help.="">

I had various tests done by my GP and various consultants (mostly public) in trying to find a diagnosis over teh years, before going to a CFS clinic in London where I was finally officially diagnosed and there offered treatment to help manage it . JK