Nightmare living with LS

Hiya - Sorry to hear that - I have just had my first biopsy and just being diagnosed after 2 years of going to the GP. It was painful but worth at as now at least I can try and get on with things.

I find when it is active and sore - luke warm bath with 4 cap fulls of TCP works brilliant to sooth and stop the itch. Total for the first time in years I had to buy a skirt as I could not have clothes touching me. The TCP has really helped tonight. You may want to give it a try.

Its a nightmare to live with I agree but at least it finally has a name and I don't think I am going mad.

I wonder if you have tried Oil a tum plus, in the bath. I soak for 10mins each day and it does help to relieve syptoms. This can only be prescribed by a doctor it's not the same as Oil a tum that you can buy.

THANKS for your tips. Trying the oilatum plus at the moment & it seems to be working. :?

I was diagnosed in jan of this year. was given a steriod cream. this worked wonders. but have just got another patch. am starting to use cream tonight. find the itch takes my breath away and think I cant live with this but the cream really does work. also skirts!!!! not good after running machine. also use simple soap and sudacream in between steriod cram.

Its really unbearable. Dermovate cream steroid0 works and inbetween for relief [u:3d2f8ad7f4]E45 itch relief [/u:3d2f8ad7f4]is amazing :roll:

thank you for your tips i am going to see if my doctor will prescribe oilatum for me. I use sudacrem in between the steriod as i do not like to use the steroid too much. :?

Hi there..... Firstly try to use a soap free wash for your personal areas...something like Epaderm.. There are two types. I use the tub of a vasaline like paste which lathers up slightly and cleans you thoroughly....Dont use allways pads they have been known to annoy....I use carefree unscented......No talc at all...... A large number of us use Paladin cream ---on ebay in uk now.....this gives a barrier against wetness.. Sudacreme is ok but there are chemicals in that.Paladin is a little more benigne.....I have Synalar steriod cream and only use it sparingly when I flare but if you daily get used to washing with the cream...using your barrier cream and steroid perhaps twice a week once the soreness eases then you will feel better. I was in agony with the itch and burning etc., ...One or two small flares now in 6 months!!!!!!!! its high maintenance having this condition but you have to work at it at least twice a day and not soak in anything that is adetergent based or soap... it will help.......

i have litchen scloroses for many years only found out what it was over two year ago i am 19 years old and have litchen scloroses on vaginal area ad anal area this condition causes whites spots and then eventually the spots form togeher usually just get it on vaginal area but on some not mmany can spread to anal area i have it on both parts it can do nothin or can make u itch so much it is horrible when first got diagnosed for litchen scloroses usually have to have biopsy but when it gets bad and the spots form tohgether mine was got to that stage so they new wat it was streaight away and got refored to see a dermatoligist which helped that was over two years ago but it only spead to anal area over year ago and can bearly sit down with out a cussain it itches bad and got thinin of skin and also extra skin ther e to they can give sterioud creams to soove it but can use it spareingly as thin ins skin to it did help before but now nothing will stop the itchin drives me nutts can bearly leave the house but got appointment again in four weeks see dermatligist u should ask the docter to refer u to dermatoligist and they should hekp u hope this helps

Hi there I have recently been told I have lichen sclorosis and yes the itching is a bloody nightmare but I have found a cream called Paladin have you heard of it? Its a nappy rash cream that I bought on ebay and many of our fellow sufferers seam to get relief with it. Hope this is of some help to you. Take care

Hi there I have recently been told I have lichen sclorosis and yes the itching is a bloody nightmare but I have found a cream called Paladin have you heard of it? Its a nappy rash cream that I bought on ebay and many of our fellow sufferers seam to get relief with it. Hope this is of some help to you. Take care

Hi there, Have had this condition unbeknown to me for past 2 years, thought I was going crazy. Was diagnosed few months ago - but only found out when read in a letter to my g.p. which was copied to me. Read about paladin on this site and ordered it immediately from ebay - was here next day and what a relief. It's like magic - scared to use too much of the dermovite so this is a great find. Also for those intimate times i was given some gel to numb the area - i thought this would ruin the experience but on the contrary! Trouble is afterwards you do pay for it - but lets hope with the dermovite, the gel and the paladin maybe can keep a relatively normal - if not sporadic - sex life!!