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  3. Reactive Arthritis

No diagnosis

Posted , 5 users are following.

Jjjetplane89
Jjjetplane89

Hi there. Is anyone here experiencing joint, muscle pain....i dread laying down,because it's so painful when I lay and to get up is so difficult. It seems to be traveling from my right shoulder, spine and scapula to my left side now. Doctors are puzzled. I feel like a ball been passed around from rheumatologist, to orthopedic doctors and so many more. Lots of.blood work and all that seems to show is HIS B27 positive....looking for anyone with similar symptoms. So painful and it has come so fast and I'm scared the longer this continues the worse it's going to get ....being untreated

0 likes, 4 replies

4 Replies

  • Finest9092
    Finest9092 Jjjetplane89

    Posted

    Hey, hope you're feeling better. Im kinda going through the same thing for the past YEAR! Lower and upper back pain. Knees, ankles, hips.  Muscle pain in legs. Pain seems to migrate all over. My rheumatologist says i have reactive arthritis and it should clear up eventually although im skeptical about that. From the research ive done, my symptoms do seem to fit. All my blood work is normal and i tested negative for HLA-B27 which makes most rheumatologists dismiss me. Have you had any kind of infection recently? Food poisoning, UTI? 

  • Sha4
    Sha4 Jjjetplane89

    Posted

    Mine came on fast too  I think it has peaked three weeks in.  I’m really hoping for a positive outcome. I can’t stand missing out on life.  So I stay plugged in as much as possible.  Don’t take no for an answer from your doctors.  Aggressive treatment depending on the specifics seems correlated with a better outcome.  (From what I’ve read) I’m can handle a few months.  Best wishes.  Oh and I think I’ve started to turn a bit of a corner but it’s stressing me out too!
  • synnenatalia
    synnenatalia Jjjetplane89

    Posted

    YES, same here. Been to koloskopi, urolog, revmatolog, eyedoctor and taken all blodtests. Only thing that showes up is HLA 27. No other revmathical idicators. And my doctor says it might be bektherew because that’s in my family. But that all started with a swollen knee, red stinging eyes, nonbacterial urinintection, shoulder pain, neckpain headaces, stomack acted up(direa and bowelmovements) . And every time I get to these specialists, the symptoms have moved on so they find nothing. 
  • Janetanne
    Janetanne Jjjetplane89

    Posted

    It does sound like ReA. I have had this for ten years now but am HLA-B27 negative. Diagnosed by a rheumatologist and treated with Quinoric (couldn't tolerate other drugs) and steroids for years. Huge swollen lower joints initially, permanently damaged joints now. When I lie down it takes quite a while for my body to settle into the bed and it feels like I have lumps on joints and then moving in the night is difficult I have to grab the headboard to help me to turn and joints grate/stuck to each other. In the early days getting up was excruciating but that has improved quite a bit. Still on daily prescription pain mess but only minimal now. If it is reactive it will need treating to try and get rid of it as soon as possible and avoid permanent joint damage like I have. Lots of people do manage to get rid of it quite quickly, hope you are one of the lucky ones.

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