No diagnosis but something is wrong

Posted , 9 users are following.

Hello all - I am a 52-year-old female and have been having problems with constant tiredness and shortness of breath for at least a year now, and this is getting worse.  A few weeks ago, I went for a walk with my husband which involved walking up a short but fairly steep hill.  I had to stop several times during the climb and at the end I felt that I was going to pass out and couldn't go on.  I felt like I literally couldn't put one foot in front of the other.

Until recently I was sleeping OK but I have now started waking up in the night with a feeling that I can't breathe and a dry cough.  I get out of breath walking from my house to the bus stop, which is a distance of less than 100 yards.  I have also put on a lot of weight in the last few weeks, all around my upper abdomen. It feels fairly solid to the touch, a bit like when you are heavily pregnant, and not soft like fat would be. 

I have been to see the practice nurse at my GP's surgery, and she did a lung function test, the results of which were so poor she couldn't believe I had never smoked in my life!  My BP was 160/100, even though I am on 4 mg of Perindopril a day for high blood pressure.  She gave me the impression she just thought I was unfit and overweight, but I know something is wrong as I don't feel right; I am having palpitations and I feel as though I am breathing against an invisible force pushing down on my chest.  She did check my feet and ankles to see if there was evidence of any water retention, but my ankles and feet are as skinny as ever - all the weight seems to have gone on around my chest.

I am waiting for the results of a recent chest x-ray, and I am almost hoping that it does reveal something just so that I can get this sorted. The symptoms I have are similar to those my mother had before she went into heart failure - but she was over 80.

I have been googling my symptoms (ie. doing just what the doctors seem to hate people doing!) and I seem to have all the symptoms of either heart valve problems or congestive heart failure, minus the swollen ankles and legs.  Is it possible to have a heart problem but have no water retention in the legs and feet?

Also, I had a bad bout of scarlet fever at the age of 5 and am seeing mixed opinions on whether this may have contributed to possible heart problems.

 

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  • Posted

    To answer your question, yes you can most definatly have a heart problem without swollen ankles and legs.

    I am 23 and i have a heart condition called Shones Syndrome and have had various heart surgeries since i have been born. I have 2 mechanical valves and am currently in heart failure and i have never ever had swollen ankles, they always ask me but i never have done (is is a quite common symptom just something i have never had)

    Your description sounds alot like me everyday, definatly push the GP/ consultant for answers.

    • Posted

      Thank you Chantelle.  I am so sorry to hear of your problems.  Yes I will be pushing for answers next time I see the GP. 
  • Posted

    Hi,yes you can have a swollen abdomen and nosy feet and ankles especially if there is a problem with the right side of the heart.
    • Posted

      Good luck with getting a diagnosis.I agree with Chantelle and Linda sleep on more pillows.Feels weird at first but you get used to it (if married it is a logistical nightmare trying to have a cuddle??).I have a good correlation between number of pillows and how I feel.Weight coming off as as the day goes on it feels as if my abdominal organs want to be in my chest cavity.GO pleased that I am losing weight as it has been a lifelong battle but not with the cause.Back to the cardiologist next month.Apparently when last discharged 28months ago it said I had a sluggish heart-what that means haven't a clue.Maybe it is best I don't ?

  • Posted

    I read what you are saying about the heart ... I'm personally wondering if you have a hiatal hernia, with your stomach possibly impinging on your lungs. You'll have to tell us what the x-ray says smile

    • Posted

      Thank you Benny.  I had not thought about that.  I will post when I get the result of the x-ray, which hopefully will not take too long.
  • Posted

    Hi there - just to say I had a dry cough for 2 years, was seen several times by a lung consultant, X-rays etc were clear. Then he listened to my chest with a stethoscope and found a leaky valve!! The cough is due to fluid building up in the lungs because of the leak. While waiting for my op the cough got much worse, I had to sleep sitting up and get up twice every night to cough the fluid up, had the operation nearly 3 years ago, they were able to repair the valve but couldn't correct my AF so still on warfarin. At my follow ups I am always asked if I can lie down at night so if you can't this would maybe be an indication it's a faulty valve. I never had water retention. All the best to you and hope you get some answers soon - ask to see a heart specialist, don't be fobbed off!

    • Posted

      Thank you foryour response Linda.  All the best to you too!
  • Posted

    As linda said i would try sleeping sitting up.

    I sleep with 8 pillows piled so i am literally sitting up, i always have done since i was little. I have a leaking aortic valve.

    Maybe mention valves to your GP, usually they can hear a leaking valve with a stethascope. Ask them and im sure they will have a listen and see

  • Posted

    I hope the chest X-ray comes back as normal; on the other hand, I'm sure you would like to have some sort of diagnosis? Remember it may not be as bad as Dr Google says.

    I have heart failure & was diagnosed earlier this year at the grand old age of 45. My mother & grandparents all had heart attacks before the age of 53 & I've numerous aunts & uncles with heart issues so we have a big family heart problem. It's great you're getting checked out, but worrying unnecessarily is going to cause you increased anxiety. Anxiety can give the same symptoms has heart issues so it's a bit of a vicious circle which is not going to help you. Wait for the results & if the GP is concerned they'll get you to have an ECG. Also have you had a blood test to see if anything else could be causing your symptoms?  If the Dr still concerned they'll refer you to the hospital. I'm presuming you are in the UK? If so, it's about a month's wait on an urgent appointment. If in the meantime you have ANY palpitations, pain, pressure, particularly that spreads to your arm or jaw, call 999. I'm not trying to worry you (after telling you not to worry unnecessarily) This was the advice given to me by my GP & the practice nurse. Thankfully I didn't need it & I sincerely hope you don't need it.

    I will be thinking good thoughts & wish you all the best.

     

  • Posted

    You should exclude a  perindopril side effect called drug induced angiodema which involves swelling of subcutaneous tissues. It is generally thought that a drug reaction to this class of drugs will occur soon after initial doses, however this is not necessarily the case. There are increasing reports of angioedema reactions whose symptoms do not necessarily follow those of hereditary forms of angioedema.

    ​Perindopril, like other ACE inhibitors does have symptoms of breathlessness like Ramipril which come with a number of contraindications of which you should be aware.

    My suspicions of my inappropriate Ramipril treatment were confirmed after I monitored myself with a recording Pulse Oximeter which showed that my blood oxygen (SpO2) levels were being compromised through taking the drug.

    ​A search of perindopril and angioedema will throw up some highlights of problems with the use of ACE inhibitors.

  • Posted

    you can't have congestive or right sided heart failure without swollen ankles. 

    weight gain isn't a feature of left sided failure either, does lying flat cause you to be breathless?

    Rheumatic fever is linked to heart conditions not scarlet fever

    Best wishes,

    aa

     

    • Posted

      True nothing is impossible, but with right sided failure it is unlikely at her age. Looking at your first post the condition you suffer with primarily affects the left side of the heart, therefore you wouldn't expect ankle swelling. 

      This is why I asked if she has problems lying flat, as that can be an indicator of left sided failure (caused by hypertension which she has), in which you wouldn't expect ankle swelling or peripheral oedema at all.

      best wishes,

      aa 

    • Posted

      Husband has recently just got out of hospital again, he has left side heart failure, or dialated cardiomyopathy, cause unknown.

      He had NO swollen ankles even when his heart beat got down to 23 BPM, this is a point they kept checking over two days, and I pointed out to the best of my knowledge he never gets swollen ankles, of course being the wife has no value, that got the emergency flying team in the hospital, and finally the consultant to come and see him the following morning.

      Comment to the 2 junior staff members who were caring for him, in our hearing was bring Clive's file tommorow morning 9am my office, and to us we are going to install a pacemaker urgently your Ejection fraction is in the 20's, normal is 65% for a 60 year old, and your electrical activity of your heart has failed completely.

      I have a now husband, like before he was diagnosed with heart failure 5 years ago, no stopping him I'm afraid, ever seen energizer bunny, thats him.

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