No dr will help me ! Excuse do U share my symptoms?

Posted , 3 users are following.

Hi please anyone help

I had Bell’s palsy in high school 30 yrs ago

Loss use of legs for two days when I was 21 after visiting Hawaii 

Migraines since I was a child 

But now had a baby at 44

And since the last 5 years I have been off and on unwell

Systems that use to be once a months are up to 5 days a week


Vision seeems likes it gone poor

Headaches but not a lot of bad migraines thanks to Botox

My right side of face does stroke like systems 

Pain in right arm and jay 

Loss of speech or slurred 

Face droops

Painful last two min to 20

Then fine 

Woke up with blisters on car and fingers lasted only two days  and bad ache severe pain in right arm like inflammation. Muscle  Only tried to move it 


Shortness of breath 


Dr says no ms or anything

Told. Abnormal eeg then told

Ok had 3 

Different story always 

Tried to give me epileptic meds or sieizures 

But feel

Don’t have either

Tried  lots from. Valium to ended to panomex chlolazapnam. Spelling bad 

Headaches that use to be under control. Now coming back

I live in fear and want to be close and there for my child 

Please help if have any ideas

Nobody cares a rhumetolgoist will take 8 months to get into please help 

2 likes, 6 replies

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6 Replies

  • Posted

    Get you Doctor to do a referral and it want take that long for you to see rheumatologists.
    Report / Delete Reply
  • Posted

    That’s what Gold Coast hospital told me. Made me level 3 only. My dr thinks rare auto immune 

    Neurologist says. All from headaches don’t believe this answer 

    Report / Delete Reply

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