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Hey there. I'm a 20 year old female who seems to have been suffering with "something" for 4 years now. I've been apparently blood tested for chrones, hyperthyroidism and celiac disease which all came back negative. I often think I have some kind of IBD.
I have been to er 3 times in the past year and have been at least 5 times in the past 4 years. I was admitted in hospital twice out of those times and once for 5 days.
Most of the time when I go to the hospital I am in at least a ranking of 7/8 pain out of 10. I often can't move or walk without being in extreme pain along with often ending up laying in a pool of my own vomit before either deciding to go to the hospital due to the severity. Once I get there, they often press on my stomach (which often hurts like hell) and then after realising absolutely nothing helps, they give me morphine in which the pain goes away almost immediately.
I have had 4 ultrasounds (have no idea why the NHS keeps giving me these after they turn up negative), an mri and a CT scan in feburary (ended up with pain and going to the er) which showed I had acute appendicitis. This also scares me. The same pain I had with the appendicitis was almost identical to that of when I have 'flare ups' and end up going to the ER.
Every morning without fail, the moment I get woken up in the middle of the night (I often think it's from the pain) I need to stop laying flat (which makes it 100% worse) so I have to sit up or go to the bathroom, often where either black tarry poo comes out (this colour of poo 'black tarry' has ALWAYS come out, since I remember as a kid.) along with this black, often hard little rock lumps will be mucus. This mucus will often either be clear, see through with little streaks of brown inside (almost look like brown little worms/squiggles but obviously are not moving) or a yellow/brown colour with quite a lot of poop in. After I poo I often feel nauseous and will have to stay sitting up (laying down HURTS in my bowel area) These pains I would rate around a 5 and force me to get up. Often when I end up going to the bathroom I will only release gas though the pain makes me feel like something more is there. I used to have terrible wind as a child and would have to lay on my stomach as my mum would basically burp me and make it feel better.
I often get pain from eating about 20 minutes after. I don't eat as much as I used to, in fact, I way less than 90 pounds..... I eat less than a meal a day (mainly because I don't want to be in pain) and the hunger pain hurts terribly. I will poo out food that I have eaten for dinner, at around 2am/8am. Which seems a little fast to me. I also have very loud stomach rumbling that sometimes can keep my partner awake at night.
I have been to see so many doctors in the uk and they all have no idea what I'm talking about. As if I'm mad. One doctor told me to eat more vegetables and that I probably have IBS, I did and ended up with even worse symptoms for doing so...
doctors in the US have previously prescribed me with dicyclomine which I often have to take double the dosage for when my pain gets really terrible.
This problem has pretty much effected much of my life. I missed out going out with friends due to being scared of the pain, it's effected my school grades and also effects my partner when he wakes up pretty much every morning to no one there since I'm usually in the bathroom.
I have no idea what to do. I have emailed my GP several times and it almost seems like they are ignoring men they have consistently promised follow ups to an apparent gi specialist in cambridge. But after 4 years I don't think my follow up letter will ever come...
The pain is usually either on my left side, an inch from my belly button towards my thigh and an inch above my belly button, directly around my stomach area almost. The pain I get when laying down is often around an inch and a half lower than my belly button towards the genital area.
Any ideas? Would be most appreciated... Really finding it tough to deal with every day.
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