No idea what to do now!! Tears and weakness
Posted , 8 users are following.
Hi,
A little long winded but....
So a few months ago I saw a dr who thought it was possible LS that was causing my intense, inflammation, itching and tearing. I was given dermovate ointment which made no difference after 6 weeks.
Hospital appointment with gynae wasn't sure it was LS and wanted to prescribe be trimovate which wasn't available so gave me something else beginning with T (can't remember sorry!) this also didn't help!
Second appointment with dermatologist she thought it looked okay and could explain why it was causing me so much issue. Prescribed trimovate and this helped a little, but not a lot and unfortunately in her letter to GP put down dermovate instead and so dr won't give me more trimovate and next appointment not till nov!
I am really struggling with this now. I feel raw, it's red, inflamed, itch and I am having regular tears in my vulva and perineum which are painful! I can't tolerate sex with my husband and were supposed to be trying for a baby!! I have no idea what I'm supposed to do, what creams to try, or even how bit to scratch!!
Can anyone recommend anything that worked for them?? I'm about to go on holiday and worried this is going to ruin it as I don't want to be in pain.
Thank you in advance for any respondes.
0 likes, 13 replies
bennetta Fabala
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bennetta
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ElleF Fabala
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bennetta ElleF
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Guppy007 ElleF
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Fabala Guppy007
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Although the trimovate helped a little it was not solving the issue and I was still having irritation and tears. It just soothed more than the dermovate steroid ointment.
Is there anything I should be trying non medical? Many thing that might help or soothe?
Thanks for all the responses!
bennetta Fabala
Posted
Did you try doing the steroid at night and the other in the AM?
Some people suggested cutting out sugar, and I've so read positives to a vegan diet and helping LS. I think there are a few feeds on diet and LS, I'm not sure how to search for them but I know it has been discussed.
Fabala bennetta
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The sugar thing makes sense, I am a diabetic and my levels are a bit out of control, I will look into this with my practice nurse.
Thank you for taking the time to reply, it's just soul destroying to manage isn't it?
suedm Fabala
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write formally to the consultant explaining your issue AND copy the senior partner of the gp practice...by name. Be polite use bullet points, don't be over emotional just factual ...even ask for a signature to ensure the letter is not "lost" this may cost more but worth the assurance that you are very serious about the change to your prescription. It is YOUR body. Try and find what the other T medicine you had
good luck Sue
suedm bennetta
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good luck
sandra01720 Fabala
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Morrell1951 Fabala
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This medication takes a long time to work. It took two years for me and my gynae switched me from Dermovate to Protopic after 18 months. The drug goes deep down and very[u] gradually[/u] fights the inflammation that produces the top layer of crappy skin in LS. If you have friction-sex while you are flared up, you can expect the LS to get worse. Most of us here have had success soothing it with baking soda soaks and rinses (1/3 cup in a bath, 1 tbsp in a splash/sitz basin, two pinches in a squirt bottle). Bodily fluids including urine and sweat irritate LS, so many of us use food grade coconut oil (it's like shortening) as a moisturizer and barrier between pees when we're flared up. Vaseline is a great barrier and really good when you have a tear, because the air can't sting the open wound. You can't use soap to wash your undercarriage and you must wear loose clothing and cotton panties. Eating large servings of sugar is like pouring gasoline on a fire. This doesn't mean you have to cut out every bit, but if you eat candy and desserts (and many of us are tempted exactly when we're flared up and stressed-out by LS) you could cut those out. Fruit juice is also too much sugar.
On holiday, swimming in salt water or fresh clean lakes – very good; chlorinated public swimming pools, very bad. Pack on the Vaseline before swimming.
And relax and have fun. That's the best thing you can do. Freaking out is the worst thing. We all have had our moments, but try and make peace a priority.
Morrell1951 Fabala
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