No idea what to do now!! Tears and weakness

Hi! When I was first diagnosed I head the tears, and my skin was white. Is yours white at all? The only thing that helped was the steroid (clobestasol). Have they given you a steroid to try? I abstained from sex until healed. When your skin is weak and you have sex, you can create more tears. People had suggested Epsom baths but literally everything made it worse until I got the steroid. Also, for temporary relief I was given a topical pain relief. If you don't have the steroid ask for that, and ask if they can give you a topical pain reliever until it is healed.

I'd take the tube of trimovate to the GP and re-explain human error. I'd say 'This is working. I can't wait 2 more months!' and wouldn't leave until progress was made.

Fabala, is it 'Temovate' maybe not Trimovate? Because if it's Temovate it's the same as Dermovate. They're just different brands of clobetasol propionate .05%.

This medication takes a long time to work. It took two years for me and my gynae switched me from Dermovate to Protopic after 18 months. The drug goes deep down and very[u] gradually[/u] fights the inflammation that produces the top layer of crappy skin in LS. If you have friction-sex while you are flared up, you can expect the LS to get worse. Most of us here have had success soothing it with baking soda soaks and rinses (1/3 cup in a bath, 1 tbsp in a splash/sitz basin, two pinches in a squirt bottle). Bodily fluids including urine and sweat irritate LS, so many of us use food grade coconut oil (it's like shortening) as a moisturizer and barrier between pees when we're flared up. Vaseline is a great barrier and really good when you have a tear, because the air can't sting the open wound. You can't use soap to wash your undercarriage and you must wear loose clothing and cotton panties. Eating large servings of sugar is like pouring gasoline on a fire. This doesn't mean you have to cut out every bit, but if you eat candy and desserts (and many of us are tempted exactly when we're flared up and stressed-out by LS) you could cut those out. Fruit juice is also too much sugar.

On holiday, swimming in salt water or fresh clean lakes – very good; chlorinated public swimming pools, very bad. Pack on the Vaseline before swimming.

And relax and have fun. That's the best thing you can do. Freaking out is the worst thing. We all have had our moments, but try and make peace a priority.

I looked up Trimovate. I wouldn't want it – it's weak steroid cream with antibiotic and antifungal. Dermovate is the standard – ointment is a bit better than cream. But you have to use it longterm and over the first couple of months graduate down to twice a week.