No Joy!

Posted , 5 users are following.

I took advice from a far more experienced and knowledgable contributor to this forum, and made an appt. with my G.P. (it took a week), to ask to be referred to a Dr. near me who specialises in G.C.A. and pmr. I stressed that I had no objection to my Rheum. but after two years, (not all with the same person), I felt I was getting nowhere. He told me I was already under the care of a specialist as Consultants are those very people. I asked about inflammatory markers, anf he said they weren't too bad crp54 and esr 46, I said that seemed high and he said they were no indicator in some people. I asked why the steroids had been reduced if the markers were not dropping, his reply? They are dangerous drugs, they need reducing, I said they had saved my sight but I knew the dangers. I am having a bone marrow test soon as my platelets are high, I was referred to a Haematologist by my G.P. cause of high white blood count, my Rheum. said that I should have the test whether or not I need it. My white blood cell test was negative, but the platelets were high, so hence the test. The outcome was, my G.P. said he was not empowered to refer me to another Consultant, and I should see my Rheum. and ask her, at least I got it all off my chest, but to no avail. Thankyou anyway for the advice.

0 likes, 6 replies

6 Replies

  • Posted

    I am gobsmacked, they give you so called "dangerous" drugs, then tell you you can't have them because they are dangerous. 

    As you say your inflammation markers are HIGH. 

    It is like a new rheumie telling me this week that I did not look like someone with PMR. Perhaps I was missing the horns and prehensile tail! 

  • Posted

    Goodness, those markers are high! What dose of pred are you currently on?

    I would be very worried being under that rheumy.

  • Posted

    Where are you catherine? If you are in the UK your GP is talking rubbish.

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