No Joy!
Posted , 5 users are following.
I took advice from a far more experienced and knowledgable contributor to this forum, and made an appt. with my G.P. (it took a week), to ask to be referred to a Dr. near me who specialises in G.C.A. and pmr. I stressed that I had no objection to my Rheum. but after two years, (not all with the same person), I felt I was getting nowhere. He told me I was already under the care of a specialist as Consultants are those very people. I asked about inflammatory markers, anf he said they weren't too bad crp54 and esr 46, I said that seemed high and he said they were no indicator in some people. I asked why the steroids had been reduced if the markers were not dropping, his reply? They are dangerous drugs, they need reducing, I said they had saved my sight but I knew the dangers. I am having a bone marrow test soon as my platelets are high, I was referred to a Haematologist by my G.P. cause of high white blood count, my Rheum. said that I should have the test whether or not I need it. My white blood cell test was negative, but the platelets were high, so hence the test. The outcome was, my G.P. said he was not empowered to refer me to another Consultant, and I should see my Rheum. and ask her, at least I got it all off my chest, but to no avail. Thankyou anyway for the advice.
0 likes, 6 replies
ptolemy catherine34621
Posted
I am gobsmacked, they give you so called "dangerous" drugs, then tell you you can't have them because they are dangerous.
As you say your inflammation markers are HIGH.
It is like a new rheumie telling me this week that I did not look like someone with PMR. Perhaps I was missing the horns and prehensile tail!
Susanne_M_UK catherine34621
Posted
I would be very worried being under that rheumy.
EileenH catherine34621
Posted
catherine34621 EileenH
Posted
I am the person that you gave advice to last week Eileen, near Leeds. The Dr. you referred to is the one he says I can't see.
EileenH catherine34621
Posted
http://www.nhs.uk/NHSEngland/AboutNHSservices/NHShospitals/Pages/HospitalsSummary.aspx
I hope the moderator will approve this post.
EileenH catherine34621
Posted
If you google NHS patient choice of hospital you should get a link to
NHS hospital services explained - The NHS in England - NHS Choices
which is the link I posted. It explains what you are entitled to and how to get it.