No libido, completely gone...

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i have hypothyroidism. been about 2 years, on 125mcg of levothyroxine. my levels were ok for a few months and i was on 75mcg but recently they wont stay level.. ive been referred to an endocrinologist so just waiting for an appointment. think i might possibly have hashimotos.. i have many many sypmptons as we all do because of hypothyroidism but the thing thats upsetting me the most is my libido has completely gone and i dont know what to do so im wondering if anyone can offer any advice that are in the same boat as me and has worked for them please? or just more information as to why because i dont know much about it nor does the doctor.. just waiting for this other appointment now sad thank you in advance.

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15 Replies

  • Posted

    All I can say is you are not alone. I also wait on my endo appt in 2 weeks time, fearing he'll reject any link to my hashimotos. Will be watching your post. Courage!
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  • Posted

    Have you got any blood reports, scan  reports that you can take with you? Confronted with the strong evidence the endo has to take notice if he or se des not then that would be a very serious matter. Can u send your blood results to this forum /

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  • Posted

    Nothing found on my end to improve my libido if that was your question. I did finally accept the fact that my mind was the only tool I had left in that department. It also requires your partners to communicate openly when they were interested so you can get that mind focused on the goal ahead of time.  God luck to you!  
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  • Posted

    Hi there,

    My Dr just started me on 75 mg of Levothyroxine

    I am sleeping great having all kinds of vivid dreams and also headaches.

    Hopefully the headaches are just because of starting a new medication, and possibly will subside.

    I am 53, and I actually have been living through hell since 42.

    I started about a year ago HRT. I really think they've helped me also on Wellbrutrin. I was never one to take medicine, but truly believe if something can help me, I will take the help I just hope this isn't too much at one time on my system.

    Forget any kind of libido, that went out the window a long time ago. And I'm just so beside myself some days that I really don't care, I have to think of myself too and I just don't want any part of it. So sorry to my husband but I just can't go there.

    Some days are better than others. Hopefully in time I will find myself again.

    Maggie

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    • Posted

      Have you checked your blood pressure at all? 

      You can buy a blood pressure machine for around £10 from most pharmacies or Supermarkets. Quicker than making an appointment with GP to have a blood pressure check. However it is important to make GP aware that you are having headaches.

       

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  • Posted

    Also, to anyone out there who knows anything about thyroid, my TSH was 2.36.

    Is that a level where I should be on Levothyroxine?

    Thanks, Maggie

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  • Posted

    Hello Sue:

    My name is Shelly and I am a nurse in the USA.  I have Hashimoto's thyroid disease since 1987.

    Symptoms of thyroid disease come on differently in each of us.  Most common are, feeling cold ,low energy, and sleepy despite rest, low body temp,low pulse, feeling depressed, weight gain, headaches, muscle pains, no periods and constipation, brusing, brain foggy.

    Your thyroid has a lot to do with the body and it controls, your energy level, your periods, your ability to concentrate, and body temp etc...and even your sex drive.

    So ask the doctor to do a TSH level which is a Thyroid Stimulating Hormone, T3 level and T4 level.  Your thyroid makes 4 hormonesbut T3 and T4 are the most needed in the body.

    Hashimoto's is a common form of thyroid disorder and is autoimmune and hits women more than men and in the ages of 20 to 45 and sometimes during menopause.  It can be checked for by way of a TPOA and TGab blood tests.

    Once you get the blood you can ask for a copy, some places may charge you but it is a good idea to have it handy and we can help you with that.

    Keep us posted and any questions just ask,

    Shelly

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    • Posted

      Shelly

      You mentioned that bruising can be a sign of thyroid disease.

      WOuld you mind expanding on that please?  Many thanks

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    • Posted

      Shelly You said that bruising can be a sign of thyroid disorder. I know that it is included in a list of other signs and symptoms but I wondered if you could expand on that point please if you don't mind.

      I think that the more we know aout these thyroid diseases the better.

      Many thanks

       

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    • Posted

      Hello Cindy:

      Bruising is a symptom of low thyroid and esp. ones that show up without any reason.  No bumped or banged limbs etc... into anything.  It is also a sign for brittle vessel problems that can effect the capillaries or very small vessels. If bruises show up without a cause this should be brought up to a GP or Endo for blood testing.

      It is not normal to have bruises and the sooner it is looked into the better. A lot of bruises can cause clots to form. 

      Medications like Heparin or Warfarin can cause bruising as they thin the blood and so can aspirin therapy. This is common when on these meds.

      I hope this helps,

      Shelly

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    • Posted

      Thanks. I was wondering what the mechanism or process is behind it. Does bruising that suddenly appears together with the rest of the signs and symptoms you described mean that the liver is damaged in some way?

      Can the bruising indicate that the person has an auto immune disease as well?

      Many thanks for your help.

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    • Posted

      Hello Cindy:

      Bruising can be alone without other symptoms but most people wihyroid problems have another symptom first like weight gain or feeling sleepy.  So unless you are aware of it, you may not always know why you are bruised.

      It can be a symptom of "Hypothyroidism" and autoimmune Hashimoto's falls under that heading.  The only way to tell autoimmune is to do certain blood work that will show antibodies or markers for it.

      I hope this helps,

      Shelly

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    • Posted

      Also Shelly,

      I really have a lot going on,

      I have absolutely no sexual desire whatsoever!

      I also was wondering, Is this thyroid Med going to give me major hair loss?

      I see a lot of gals complaining of this.

      Thanks Maggie

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    • Posted

      Hello Margaret (Maggie):

      Wellbutrin has a weird side effect of making people have no sexual desire.  It is well documented that this drug only is known for doing this. 

      Other meds for depression like Prozac and Zoloft do not do that at all. You may want to have a change made in this medication.  Also Prozac and Zoloft are safer and also have a side effect of loss of appetitite and is helpful in losing weight. I know people who are using it for dieting and not depression. Each meds are different.

      Thyroid issues can make you less motivated also, so it could be a whammy when you have a known medication that  can make a loss in sexual desire and the thyroid illness at the same time.

      Hair loss comes from a low amount of thyroid hormone and  if you are on thyroid meds, it should grow back if you lose any.  Some people can have follicle damage underneath it all.  I lost some hair but after I was stablized it grew back and makes my hair grow fast.

      I would change off of the Wellbutrin and you should try Prozac if you can.  Explain that to the doctor as it is written in the literature on this medication and the doctor will know.

      I hope this helps,

      Shelly

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  • Posted

    Hi

    my GP suspected hashimotos with my Graves' disease , the endocrinologist ruled it out. My libido us low now, but I suggest, like me, making the effort ..it works for me, just the thought didn't cross my mind so sex was never on my days programme!!

    now I set the scene and out no pressure on myself, enjoy the foreplay, sometimes it leads where it should......

    my hair is thinner which I hate , and I feel rotten when I exercise.

    otherwise, I think this is the best I've felt for ages. 

    Remember, you're not alone X 

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