Posted , 5 users are following.
I have been looking for a live chat group for people suffering from lupus and cannot find even one??? How is this going to help me??? I went through a major flare up several years ago and have been denying I had this since, until now, I thought I would check out what other people have to say and I cannot find a live chat forum to discuss it, which makes me feel like a freak and/or sad...
0 likes, 5 replies
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margaret22116 DustyL
Posted
kevinSLE margaret22116
Posted
Thanks!
fester DustyL
Posted
This may not be live but with a bit off patients you will learn a lot about your condition
One off the worst things you can you can do with this illness is get stressed take it easy
Listen to your docs and your body and don't push your body
Take it easy george
DustyL fester
Posted
I still don't know where to go to ask about things...
DustyL fester
Posted
Well I no longer go to doctors... It stressed me out to the ninth degree... My family just found out about this and they act like I am already dead... It cost me too much money and time to go to doctors and then there is that big thing that my family has already written me off... My sister has told me she doesn't believe it because everyone with Lupus she knows has been in and out of the hospital, and I say I won't let myself do that... Until it is absolute where I have to... I wake up every day feeling like absolute hell but i drag my ass into work because that keeps me going... It seems so odd to think I would go to the hospital and say my ears hurt, and my legs hurt, and you cannot touch me without it hurting... I get food stuck in my throat all of the time from this crazy inflammation... I just wish I could go back to the time when all of this was not my normal day...