No mention of Grover's disease on Patient?

Posted , 3 users are following.

I have been diagnosed with Grover's disease for the second time. Last year after nearly a year of investigation and biopsis the dermatologist diagnosed Grover's. This is a disease that causes a rash, in my case all over the body except my face. It itches - a lot. They proscribed UV treatment of sessions a week for 10 weeks. Half way into the treatment I started to see an improvement, by the end of the treatment it had gone. Looks like I'm in for another long haul. There is nothing on Patient, it is a rare condition but my local UV centre have seen three in a year.

0 likes, 4 replies

4 Replies

  • Posted

    hi potterken - can i ask you specifically what your symptoms are? My husband has battled with this skin condition for close to 9 years - he had been to 5 dermatologists & all diagnose him with contact dermatitis - he gets a rash on his trunk, arms, hands, legs & around his lips - it itches him & drives him nuts - he also experiences dry cracked skin on hands & lips and the rash is red - it seems to get under control after a cortizone shot, but you can only have so many of those - i think stress brings it on, but we are at our wits end - i have never heard of grover's disease will google it -

    • Posted

      Hi

      I never had a rash on hands, face lips, it seems Grover's is typically on arms shoulders trunk and legs with evenly spaced spots like insect bites which merge together. A biopsy can identify a very specific condition in the skin cells. Your husband's symptoms don't sounds the same as mine however UV therapy helps all sorts of conditions so try and get on a program.

  • Posted

    My mum has this and, from what you are saying, it sounds like the UV treatment has been very effective?

    • Posted

      UV was very effective, a nice all-over tan too!

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