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NO MORE DOCTORS,JUST YOU GUYS ON THE FORUM!!!

Posted , 4 users are following.

susanhelp38
susanhelp38

This will be my last post,thank you so much friends. I have been to the best drs. and got my diagnosis,now i need you guys. I just would lke to know ,your routine,your products(no wet wuipes,honey, or things not made for the eye) im not brave enough,i feel the burn and stickyness already,lol,and the success you have had. PLEASE LIST BRAND NAMES ,I WILL BUYING AND TRYING FOREVER NOW,LOL 

0 likes, 33 replies

33 Replies

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  • jasmine51150
    jasmine51150 susanhelp38

    Posted

    Also I do wear neals yard organic mascara. But not yet everyday. Just once or twice a week. I also have burts bees facial wipes. Neals yard bee lovely hand wash and hand cream. Dr organics shower gel. They are what I have tried so far nd seems to help xx
  • dena64643
    dena64643 susanhelp38

    Posted

    I use as little cosmetics as possible, eye shadow for eye liner, applied with a Q-Tip
    • susanhelp38
      susanhelp38 dena64643

      Posted

      dena,is it normal to have some extra eye discomfort after the pressure test,he didnt use air he used the one on the slit lamp that presses on the eye?
  • dena64643
    dena64643 susanhelp38

    Posted

    I'm just guessing,but I would say yes. As long as it's not prolonged. smile
  • becky_60526
    becky_60526 susanhelp38

    Posted

    I just want to say THANK YOU to this forum and the person who said to use Wet Ones.  That has been the best remedy yet for the oily scaly stuff that rims my eyes.  Eyeliner pencil would literally slide over my eyelid without marking bc it was so oily. I started using eyeshadow as liner as some of the others have said, but it still would not go on very well.  The Wet Ones have taken all that oily stuff away and I can apply my eyeliner like a NORMAL person.  Yes!  I also still use the Sterilid cleanser at night then the Wet Ones on a Qtip both morning and night.  I probably could skip the Sterilid as the Wet Ones, I assume, do the same thing.  I also use Celluvisc preservative free eye drops.  It is thick and lasts much longer in lubricating my eyes than other drops.  At night, I use neomycin ointment on the lid at the lash line, and one week per month I use Azasite drops at night.  Both of these are Rx.  Because my problem went undiagnosed, my eyelids thickened at the lash line which looks weird.  I've asked 2 doctors who said they think it is permanent, but don't really know.  I have looked for answers online, and get none.  I also tried the LipiFlow treatment with no results.  One doctor said because it is not a life threatening disease, it gets little money or attention when it comes to research to find a cure.  So there we are.  Good luck to all of you.  We will keep trying new things and searching for answers.  Hopefully, something totally unrelated to Bleph may accidentally be discovered as  the cure.  You never know.
    • andy22.aj
      andy22.aj becky_60526

      Posted

      What type of blephartis do you have? Because the wet ones are for anterior blepharitis which are on the lash line.. but if you have lipiflow that's only works for peeps with posterior blepharitis.. you would be very unlucky to have both types? Yes you right about never being a cure for blephartis.. because there's no research currently looking for a cure and there never will be.. it's a medical supplies dream disease to be honest, it doesn't kill you but its needs constant attention and spending money for a life time to control it. If there was a cure, there would be many medical companies going bust and thousands of jobs around the world being lost. There probably is a very simple cure out there .
    • susanhelp38
      susanhelp38 andy22.aj

      Posted

      andy22,what excatly is it? i mean i know it has to do with the eyelashes and the rims of the eye,but i have always had healthy eyes and all of a sudden this? im so confused
    • andy22.aj
      andy22.aj susanhelp38

      Posted

      To be honest Susan, no one knows exactly what it is, especially doctors. If your's is in the eyelashes I'm sure yours is anterior blephartis. From my experience it has to be bacterial, and it seems the woman to man ratio to having anterior blep is around 80-20% so it has to be make up or personal hygiene that 1st causes this disease.. I've got posterior blephartis or known as mgd and I believe this type is not bacterial.. doctors never explain to you the difference. I've seen 10 or so doctors around London and not one of them explained the difference between the 2. There useless and haven't been trained about blep or inflammation. There only option they know is steroid drops when a patient complains of redness. Mine came all of a sudden too, my eyes was always white and healthy and had thick eyelashes but at least half of them have falling out now, but being a guy I guess we accept it quicker and get on with it. Obviously I don't have to wear make up ect, but don't give up there's not one thing that works for everyone with this disease so you have to keep trying to see what works best for you
    • susanhelp38
      susanhelp38 andy22.aj

      Posted

      well,im a girly girl who was in the beauty industry so i wore eye makeup galore! i went to the best drs in my area usa and got no where eithier. the only thing i can use is the past experiance that led up to it and i was introduced to a bacteria or trauma emotional that led me to tis. but if it was  bacteria,why has no one caught it from me? thats the weird thing,but thank you for sharing and your a guy so ,makeup is the least of your worries,to me ,its hard,lol smile
    • andy22.aj
      andy22.aj susanhelp38

      Posted

      Ohh your in the usa. Have you not heard of Dr Steven Maskin from Tampa? Im thinking of making the trip from London to go see him. Hes meant to be the leading specialist in the country
    • becky_60526
      becky_60526 andy22.aj

      Posted

      Two opthamologists told me NOT to go to Tampa.  I read about Dr. Maskin too.  I emailed him for info.  According to my doctors, his procedure could do much more damage than good.  I was scared to try after that.
    • andy22.aj
      andy22.aj becky_60526

      Posted

      That's just your doctor's opinion. There's no fact's that says it can make more damage. I've read more success story's than nightmare story s about he's procedure.it seems the ones who it hasent help have other underlying problems apart from the blephartis.
    • becky_60526
      becky_60526 andy22.aj

      Posted

      Well, I surely hope you have success.  As I said, their comments made me scared and these two doctors don't even know each other, but both had the same warning. 
    • susanhelp38
      susanhelp38 becky_60526

      Posted

      well,yes i am in the usa and i have learned to ajust to painful things in my life,not fun but iv accepted it. I have not heard of that dr but went to wills eye in philly and to me i just take the attitude that it will be life long condition. If there is a surgery or something to try by all means and your comfy with it,TRY IT!!!! what works for one may not for another,life is full of gambles and without taking chances we may never see results but also be aware of complications,its a personal choice. I believe it is a immune related disorder,no body around me has caught this and that leaves me to believe somewhere my immune system is not controlling mites,staph,or my nerves are inflamed because i do have neurapathy. so good luck to all , BE STRONG AND OF GOOD COURAGE,WE ALL HAVE OUR BATTLES IN LIFE. IF YOU SAW EACHOTHERS STRUGGLES,YOU WOULD PICK UP YOUR OWN AND MOVE FORWARD........SOMEONE ALWAYS HAS IT WORSE....  WE ARE OVERCOMERS!!!!!    YOU TUBE THIS SONG FOR SOME UPLIFTING TODAY smile     Mandisa - Overcomer
    • susanhelp38
      susanhelp38 andy22.aj

      Posted

      andy i just googled him,i saw a lot about dry eye,i dont have that,actually just my lids ,does he specialize in bleph? i didnt see any surgery options as well? 
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