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No More PMR! Hurray!

Posted , 20 users are following.

Elijo
Elijo

Hi Everyone!   I had finaly tapered down to 1 mg. and have had no symptoms for quite a while.  My lab work this week showed CPR 0.9 and sed rate was 5.  My doctor said I no longer have PMR!  I'm aware that the lab figures are not always a sign that PMR is no longer existant.  My labs have always been on the lower side anyway, but not this low!  Thanks to all of the different  comments I have received, and I will continue to follow this forum.  I was dx with PMR about 18 mos. ago and was practically crippled before I started pred.  I still have somes of the side effects, bruising, thin skin, bleed easily, etc.  but have learned to live with it!    The best to all of you. (Yes, I'll keep in mind that it could come back at some later time)

 

3 likes, 30 replies

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  • andre68439
    andre68439 Elijo

    Posted

    Elijo, that's great! Just be cautious that some of us have had to taper even from 1 mg with 0,5 for a while. Like me you are at the shorter end of the treatment cycle. Since the median time for PMR is 5.9 years then half of us shake the monster in less than that, so congrats and stay well.

  • diana21296
    diana21296 Elijo

    Posted

    Oh Sorry!!  I was getting muddled with Elijah which is a man's name!!  Well, even better well done as you are female.  Stay Fit!

  • patricia38799
    patricia38799 Elijo

    Posted

    Good to read .  all is going well Elijo . How long have you been on 1mg. and did you taper 1mg per month?
  • Daniel1143
    Daniel1143 Elijo

    Posted

    Ok, so the operative question is this: are you inflammation and pain free or just down to 1 mg?  I say this because there are many of us who are in the zero prednisone club, but that does not mean that we are free of PMR.   I have been a zero for a year, but I would say that I was keenly aware the PMR was still within me. I was simply able deal with the residual inflammation and periodic flareups without resorting to prednisone. 

    So I can do congratulate you for being down to 1 mg. Be patient at getting to zero, and be mindful that PMR doesn’t exactly go away. It just goes into hiding. Sorry if I’m pouring a bit of cool water on everyone’s enthusiasm, but I suspect my experience is fairly common among the zero club.

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