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No one will tell me what's going on!!

Posted , 2 users are following.

boss-lady973
boss-lady973

Hello everyone,

I started out having migraines when I was about 10yrs old. It got so bad that I would cry myself to sleep then my father took me to the Dr, and they gave me meds and I haven't experienced them until about 4 yrs ago. I would suffer from migraines on a daily basis and never thought to go back to a Dr. I would just take some over the counter medicine and call it a day. Then it started getting worse when back in November 2016, I would wake up with numbness in my face, in my fingers and toes. I went to my Dr. and they gave me meds and it made me feel worse so I stopped taking them. I then was refered to a Neurologist and they performed a spinal tap, MRI's and cat scans to see what's going on. When the results came back, they said that it was abnormal but it wasn't MS. I suffer with Migraines about 29-30 days out the month and still have not been told anything. Iv'e gone back to the Neurologist for follow-ups and they asked me my family medical history (something that they asked when I had my first appointment). My mom has fibromyasia, so they said it maybe that. They wanted me to redo all the tests that they had me do originally and I started getting frustrated! If this is their specialty, then why can't you give me any answers. This is taking control over my life. I have 4 children and I have no energy, I am sleepy all the time, my mood is horrible and I am depressed. I recently went to the ER for a different reason and when the Dr. came in to tell me what's going on, they saw I was there to do my spinal tap and MRI's and they asked about what was going on with that. I told them about what I was told and they informed me that on the report from the tests, it says it was MS. I told her I was shocked because no one has told me anything concrete about it. She printed the reports and gave them to me. It said it was highly suggested that it is MS but not diagnosed. I have been in contact with my personal Dr. to get a referral to a specialist the ER DR. requested. I have yet heard anything back from my DR. about the referral. Has anyone experienced anything like this? Any advice? Thank you in advance!! 

0 likes, 3 replies

3 Replies

  • bic24773
    bic24773 boss-lady973

    Posted

    Hi this sort of thing is so common here in UK, I got a diagnosis of ms and my Dr said "I wouldn't join the ms society just yet" he wouldn't give me s prescription for the meds the neurologist advised. I've been on a Dr roller coaster nightmare ever since and that was 98. I also can't walk and use crutches and a wheelchair but without support I cannot even get a parking badge for disabled. There seems to be a reluctance to acknowledge it / or diagnose people with ms. It's your life please insist on a diagnosis and proper treatment plan. My daughter had migraines at 9 at first they though it was meningitis it was so bad and now she's displaying ms symptoms and went to ER where the Dr sent a letter to her go girl referral and nearly a year later she's not been given one. I sincerely wish you well, your health is everything, good luck. ?🌹

    • boss-lady973
      boss-lady973 bic24773

      Posted

      Thank you so much for your advice. I hope you and your family the best. Never give up and continue to stay strong. 
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