NO PMR.
Posted , 9 users are following.
I was diagnosed with pmr in Sept by 2 gp's, was started on 15mg preds, managed to reduce to 2.5mg but suffered. Had a flare up last month and had to go back up to 5mg, visited a rhumy last week for the first time and was told I did not have pmr and should not be on preds, he has instructed me to reduce them by 1mg per month finishing on the 3 July, and not to take any more, I hav'nt seen my gp yet, but are your views on his decision!!!
0 likes, 11 replies
EileenH flydog
Posted
Is this one going to investigate further once you are off pred?
I have to say - if you were able to get from 15 to 2.5mg in 4 months it might speak against PMR but you did have to go back up a bit.
flydog EileenH
Posted
In the begining I was crippled with pain, my GP prescribed 15mg and this cleared all the pain away, I have reduced gradually but had to increase when a flare up came a few times, has I said I am down to 2.5.
The rheumy will see me mid July.
MY GP put 2.5mg on repeat prescription, so I will have to visit her shortly to get some 1mg to reduce by 1mg per month, will keep you all informed, Max
LayneTX flydog
Posted
My uncle had PMR symptoms, but doc only put him on 10 mg (due to other meds and issues he had)...several months later they discovered it was his gaulbladder and since had it removed and pains gone away. So, perhaps he didn't have PMR.
flydog LayneTX
Posted
Without preds I have pain in my shoulders reaching down to below the elbows and in my hips reaching down below the knees, the only other problems I have is chronic bronchitis
EileenH flydog
Posted
As I say though flydog - what is the rheumy intending doing once you are off pred? Investigating further I hope.
I do understand their fear of pred, I really do. But why on earth when a patient is comfortable at a pretty low dose of pred do they have to decide it isn't PMR without having seen the patient in pain?
flydog EileenH
Posted
when I saw the rheumy he was very abrupt, my thoughts were that a lowly GP should not have diagnosed my condition before him,
After he said he would see me in July he shook my hand and turned away, I was ushered out by a nurse, what will happen in July is anyones guess, but I have no intensions of suffering while he makes his mnd up.
EileenH flydog
Posted
Dare I ask of what ethnic extraction he was?
flydog EileenH
Posted
he was a white Brit, I think he was just miffed that I had'nt been referred first rather than being diagnosed first.
EileenH flydog
Posted
margaret22251 flydog
Posted
So we shall wait and see, hope you have a good day, regards Mags.
flydog margaret22251
Posted
Hope the results are favorable for you, I had a ultrasound scan last week and am waiting for the results, like you I'm hoping for a favorable outcome.