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Posted , 5 users are following.

Cares
Cares

Hubby recently had ultrsound and full blood tests to try to identify back pain (pancreas area) and all test came back fine. Ultrasound checked pancreas, kidneys, liver, gallbladder and spleen and no issues were detected. 

Pain in back continues and gets worse with certain foods, he is now restricted to fruit, yoghurt, macadamia nuts and coconut. Everything else increases the pain. Pain is always there now but is at least tolerable if foods are restricted to the above mentioned. His hands periodically become yellow although no gallstones or obstruction showed in ultrasound.

Would an MRI or CT Scan likely show up something that the ultrasound didn't that may be causing the pain?

The GP thought then that it might be spinal but couldn't account for why food would effect the pain if it was spinal.

Any thoughts?

0 likes, 18 replies

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  • donopete
    donopete Cares

    Posted

    Yes! Ultrasound is the most basic checkup! They should definitely do a CT scan with barium meal which is a horrible drink you have beforehand and they then pump dye into your veins which shows up on the CT scan and shows any problems with the pancreas. Hope this helps 😊
  • jonDsail
    jonDsail Cares

    Posted

    hi Cares,  I had a Ultrasound, then a ECRP(they put a camera through stomach) then a CT Scan & they identified Tumour of Pancreas.  What haapens is that the tumour inflates the Pancreas which presses(internally) against the spine & that's why your hubby gets the pain.  Please insist upon the CT Scan and download the symptoms from www.nhs.co.uk & show it to them & insist upon the CT Scan & say that you'll sue the doctors/consultant if they get it wrong & they'll soon do the CT Scan & insist upon Blood Test for cancer marker!  This form of Cancer/Tumour is missed by medical people!  My original consultant insisted I had 'gallstones,' in the hospital until I proved Him wrong!  If it is Cancer, insist upon a Specialist Nurse &/or McMillain Cancer Nurse/Support Worker to be appointed, they will help with paperwork & they know the ins-&-outs of the system!  Try not to have CTT if you can, it hams the good cells in human bodies as well as destroying bad ones & most people don't survive flu/chest infections as a result!  The NHS want us(Cancer patients) to pop-off so they don't have to pay-out for expensive Cancer drugs so, always get 2nd & 3rd opinon(privately-Cost is not high & your more likely to get accurate answer as, they don't want to get sued & lose their ability to practise). Good luck!  Myself & others are here to help & there's a seperate Pancreas website you can go to which gives advice on other types of Cancer's, just Google it.
    • Cares
      Cares jonDsail

      Posted

      Thanks heaps for advice :-)

      Had blood tests for amylase and lipase and both came back fine.

      Other blood tests were also done e.g lipids, PSA, Iron, Glucose etc

      Didn't check CEA and CA19-9 though!

      His hands went quite yellow for a time when he was in more pain but the gallbladder was totally clear of stones and when in less pain the yellow hands ease off.

      I take it your ultrasounds came back clear like DH's???

      He was told he was in fine fettle for 50 and that they couldn't find anything wrong with him.

      Brie cheese causes 'extreme' pain within 10 minutes of eating it, other cheeses take longer but for now he is off all of them and mostly sticks to fruit like pineapple, mango, paw paw etc that seem to go down well.

       

    • lesley05714
      lesley05714 jonDsail

      Posted

      Hi Jon,

      My son has been diagnosed with Pancreatic cancer, he is 43 years old; you say...

       'Try not to have CTT if you can, it hams the good cells in human bodies as well as destroying bad ones & most people don't survive flu/chest infections as a result!'  what is CTT?

      The cancer is inopperable and the oncologist says he can extend his life from 12 months to around 8 years with chemo and the diets that the nutritionists have given him. A group called 'Magees' are also helpful with food.

      I am doing research on line and found B17 in apricot kernels which kill cancer cells, and all the foods that make life very uncomfortable for cancer tumours to thrive.

      Visualization helps, although my son is traumatised at the moment and can't think straight.

      Blessings,

      Lesley,

       

  • rachelk1130
    rachelk1130 Cares

    Posted

    I had an MRCP, I didn't have to swallow anything in advance, I just had the dye through an IV, and they found I had a birth defect called Pancreas Divisum. It is a defect of the pancreas where you don't produce enough of the enzymes needed to digest food. I take Creon now which makes up for the enzymes I don't naturally produce enough of and it's made a huge difference. I would definitely get an MRCP and ask your doctor about the pancreas divisum. It made a huge difference once they finally figured out what it was. I still have some issues, but it's definitely a lot better then it was. I never required hospitalization or anything like that but the pain was still pretty bad.
  • Cares
    Cares

    Posted

    Okay so dh went to see doctor again today wanting ct scan and blood tests CEA and CA19-9. This was a different doctor within the same practice who was erring toward Reactive Arthritis so to make her happy she wanted blood tests done for this and to make dh happy he requested the pancreatic cancer test which she hadn't even heard of (groan) so had to look it up online and said oh there is one and ordered the CA19-9 test also...will get the results early next week, then depending on the results which she admitted would only be indicative and if they couldn't identify any other causes they would send him in for CT scan.

    She did stress that with PC or CP was he aware that it could kill him....oh duh that is why we are pushing to get answers sooner rather than later.

    Geez you've really got to fight to get a diagnosis :-(

    Tonight is the first night he is also getting pain whilst lying down.

    Was told that he should avoid fruit and acid veggies like tomatoes which is a bit frustrating cause at that rate he may as well stop eating altogether.

    Will update again when I know more.

    • lesley05714
      lesley05714 Cares

      Posted

      Hi Cares,

      my son insisted on a CT scan and found out that he has pancreatic cancer.

      He has a whole load of different foods to eat and lots not to eat. You can buy books on it

      Also some good books to help the cancer sufferer to learn to live life to the full, and extend his life by visualization. But...the first step is the CT scan as soon as possible, which will give you the diagnosis and then you can move forward.

      The dieticians, macmillan nurses, and an organization called 'Magees' were very helpfull from the hospital,

      Do keep us up to date,

      There is another chance of life if he changes his life style.

      Blessings,

      Lesley

    • Cares
      Cares lesley05714

      Posted

      Hi Lesley,

      So sorry to hear about your son :-(

      What treatment options have they given him?

      DH is making another appointment with the Doc to request a CT...hopefully third time lucky this is what will get done!

      What symptoms did your son have prior to diagnosis....it seems they vary so much between individuals!

    • lesley05714
      lesley05714 Cares

      Posted

      ...Hi Cares,

      I put a link in my reply so it is waiting to be moderated; My son had constant back pain which is why he went to the doctors...several times...in the end he insisted on a CT Scan and offered to pay for it, but the doctor arranged it; the cancer is inoperable, so he has chemo to try to extend his life.

      My husband and I looked for help on the web and found out about foods to fight cancer. and found a whole series of books; also some info on B17 found in apricot kernels, so we sent a large bag from amazon to my son with instructions to chew some every day.

      The hospital always are told about anything that we suggest and give their ok...and they have supplied lots of help with diet.

      The visualization, i feel makes sense, reading the new research into neuroplasticity I found very encouraging, and my son and his wife also find them encouraging.

      The church he goes to have a good Christian prayer group that have been wonderful and supportive, available for weekly prayer which has helped him.

      I do hope all this helps,

      Blessings,

      Lesley

  • Cares
    Cares

    Posted

    DH managed to get a doc appointment for tomorrow morning only a locum because our normal doc is away and this time he plans on demanding a CT  frown

    Here's crossing our fingers that he will get a CT and that he finally gets a diagnosis...knowing what is wrong has to be better than the guessing game we're playing at present  rolleyes

     

    • lesley05714
      lesley05714 Cares

      Posted

      Hi Cares,

      A locum may be the best thing that could happen; it was a locum that sorted out my own chronic problem with my lungs, (the normal GP was giving me indigestion tablets!)

      Push for a speedy CT scan;

      my locum arranged mine, (for a lung complaint, not cancer)

      but with cancer, time is vital...

      Blessings,

      Lesley

    • Cares
      Cares lesley05714

      Posted

      Well progress is being made....the locum gave him a referal for a CT, but also added that it sounds more like his gallbladder blah, blah blah...DH assured him that he was tired of doc guessing at what it might be and that he wasn't trying to prove he has CP or PC but to hopefully prove that he doesn't and to those ends he was demanding a CT scan be done.

      So he is booked in for tomorrow afternoon....*crossing fingers that all will be well* and will wait to hear of the results.

      Thanks to everyone on this forum for their encouragement, suggestions and support, it is indeed a fantastic forum to be involved in smile

    • lesley05714
      lesley05714 Cares

      Posted

      That is so good! This locum was the best thing that could have happened, do let us know the results of the CT, I will be praying,

      Blessings,

      Lesley

  • Cares
    Cares

    Posted

    Well D-Day tomorrow (Diagnosis Day)...DH had the CT Scan on Friday, called the surgery on Saturday morning to find out if the results were in and was told they were but that the doctor wouldn't be back in until Monday so to call back then.

    Half an hour later he got a call from the surgery to say another doctor had looked at the results and wanted DH to come in as soon as possible, oh nothing urgent umm everything is fine but could he come in on Monday to see the doctor?

    Hmmm we have had calls like this before and it is always bad news that follows!

    Anyway crossing our fingers that whatever they found isn't too bad, will update when we know more neutral

    • lesley05714
      lesley05714 Cares

      Posted

      ...do keep me informed, I will pray

      Blessings,

      Lesley

    • Cares
      Cares lesley05714

      Posted

      Well good news....the diagnosis came back as Crohn's disease (even though he hasn't much symtoms of that), pancreas, liver, kidneys etc were all fine.
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