no sleep/bursitis/inflammed tendons

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ok, I have been diagnoised with hasimoto's for almost 2 years. I take 150mg synthroid. I have been to an internal medicine, rheumatologist and an allergy specialist. My TSH, free T3, free T4 are all within normal ranges, I also had all my antibodies tested and they are came back within range . However I still have problems sleeping, keep getting bursitis in my hip and have tendolitis in  my ankle and shoulder.I am so stiff there are days I can hardly walk. I am only 47 and some days feel like I am over 100. My GP advised there was not much else to be done. So any suggestions?

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  • Posted

    hi i use the acti patch as pain relief,hospitials have used it for many years,
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  • Posted

    Hello Wb33:

    My name is Shelly and I am a nurse and live in the USA. I also have Hashi's since 1987.

    Vit D in most of us with thyroid disease have low Vit D.  Ask your GP to run this blood level.  You can also take Vit D supplements.

    When Vit D is low you will have aches, pains and headaches.  Muscles will cramp.   Also Have Hashi's which is autoimmune, can lead to  Rhematoid Arthritis.  I  have Osteo Arthritis.    I took a med for a  while called Celebrex and you only take 1 pill a day but it does reduce pain. Naproxen Sodium is also good for Arthritis.  Steriods reduce pain and inflammation but are only used for 7 days or less.

    I think you may be low in Vitamin D, so please take a good multivitamin and extra D supplements.  The body will heal itself as long as it has the proper minerals and vitamins. 

    Keep your thyroid levels in good shape and that will help. 

    Shelly

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  • Posted

    I'm the same have seen rhumotoidologist and saw Endo yesterday. My hips, buttocks, adductors, knees and shoulders are so stiff and painful until I take pain killers and ibrufen. Have been on levothyroxine 9 years and had no problems until June this year. The Dr thinks arthritis or a virus going through me but I think thyroid related or even levothyroxine related. I am tiered if talking to Dr but the pain and discomfort needs to be sorted. I can't bend down and get up without difficulty. I wish someone new the answer. Good luck, I'm in the UK.
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    • Posted

      hi gb98 im also in uk and suffer great deal of pain i also have fybromyalgia,i did take lots of pain relief upk and hip pain  until i found the acti patch it been used in hospitials for many years so i thought i would give it a try from the first few days of using it i found relief from my back and any where i choose to put it pain has got better i tried the 7 day trial the now i buy it every month best thing i ever done xxx karen
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  • Posted

    Hi,  As a thyroid patient I think the most important supplement to take is iron.  I have proven it several times.  When my 'ferritin' levels are low I experience painful hips. If I don't take iron on a regular basis the hip pain occurs.  When I go back on the iron the pain subsides.  I try to take it every few days but if I forget and the pain starts I sometimes have to take it daily at first for a while to get things back to normal.  When the pain is there my sleep is disturbed as I can't sleep on either side - just on my back.

    When your doctor does a full blood test make sure you ask for your ferritin to be tested.  It may fall somewhere within 'the range' and he may say it's ok BUT you must find the correct place within that range that is right for YOU.  You will only know where the right spot is when you take some iron for a period of time and eliminate the pain then get another blood test done and observe where you now fall within that range.  I can be in pain with my ferritin at 76 but free of pain at 83.  This is something you will have to work at but it is well worth the effort - I have no pain anywhere unless I go slack on keeping my iron intake up.

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  • Posted

    Those of you in pain in shoulders and hips, maybe neck...if pain is extreme in mornings... I had this in December and was diagnosed with PMR, Polymyalgia Rheumatica.  I've heard many people with this and were not diagnosed and lived with pain for years.  It occurs on both sides of the body at same time.

    I'm hypothyroid, but on Levo .075, numbers are good. I had low Vit D.

    I had extreme stress for last two years and believe an incident caused my body to go over the edge.  I feel I now have bursitis in hips and butt bursa's.

    There is a forum here for PMR incase you have these symptoms and doctor doesn't know of PMR.  Look through resources on this site before posting a question. 

    im only 54, so it can happen at younger ages too,

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    • Posted

      hi layne i was diagnosed with fybromyalgia last summer and i found the acti patch a great pain relief,i take less pain killers now.hospitials have used this for many years and i swear by it,i got it threw the internet and i suffer great pain like most on here,its worth reading up on , karen
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  • Posted

    Hi Wb, there are strong links between thyroid disease and joint pain (enter the two terms on the PubMed website and you will see lots of research on the matter). Levothyroxine can also cause joint pains as a side effect, so it can be difficult to work out the cause of the pain. I have autoimmune thyroiditis and have problems with calcific tendinitis in both shoulders. I recently had three sessions of 'Extra Corporeal Shock Wave Therapy', which 'blasts' the calcium away (it is like toothpaste apparently). After being on strong pain killers for over two years, I now am virtually pain free, although my shoulders still feel very stiff in the mornings, which I put down to the levo. However, the treatment is not available on the NHS (I don't know if you are in the UK or not), so I had to pay  for it. I feel it was worth the cost. 
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