No Solution for my ETD? :(
Posted , 7 users are following.
HI everyone, I have just joined this page and I feel almost relieved to see that other people struggle with the things I do -- it can be really FRUSTRATING sometimes. I was suffering from ETD for about 2.5 years with no diagnosis, and after my Dr. realizing I was having hearing loss, as a result, we opted in for PE tubes. I had the tubes put in in June, and it was a very rough recovery for my right ear (my bad ear), and I could not get the "open" and "echo-ey" feeling out of my ear for a week. Finally, it healed, but then the problem came back in July. I don't really know how to describe it other than my voice was echoing in my head, and I could no longer "block" my ears due to the PE tube, but it felt like my right ear was "open." I was prescribed ear drops which felt like I had finally gotten the relief I needed, until about a month ago. I returned to my job at a restaurant and every time I was at work my right ear would "open" and it would all be so echo-ey and I could hardly hear a thing out of it. (Also my blinking and yawning became audible in my right ear.) I went to my Dr. but he said it was brought on likely by the loud noises at work and that there was nothing they could do. NOW my right ear is constantly "opening" and I can hearing my blinks and yawns, and hearing out of it is becoming so frustrating. I am 21 years old and I just sometimes feel like my life has been taken over by my ETD and there will never be a real fix. I guess I am just looking to see if anyone has had trouble with their PE tubes after getting them??? I am not sure how to "relieve" this issue because I can't "block" my ears anymore by sniffing while holding my nose with the tubes in. I am just feeling really helpless. Any advice or someone else who understands will help. Thanks guys
0 likes, 7 replies
terry_76821 paige0501
Posted
Dr. Mandell on YouTube helped me, I have done well but not tested in cold weather yet. I would search him on YouTube and query him. Good luck.
michael11955 paige0501
Posted
I have some symptoms very similar to yours Paige0501 .I can't blow the blocked feeling away either.If you look at my last posting I put my symptons there & what I've found is how little the medics know about this condition.
sarah43026 paige0501
Posted
Hi paige
I'm really feeling your anxiety because of etd issues
I myself have had problems for more than a month now
Woke up with a cold and sounds in my ears then blocked up with mucus so everytime i yawn or swallow i hear crackling
It has caused me so much anxiety as i was having hearing sensitivity at one point
Praying to god all these issues will resolve
georgina06322 sarah43026
Posted
Hey Sarah
Just wanted to check if your symptoms ever disappeared? The constant clicking when you swallow? If so, what did you do to get rid of it? It's driving me crazy! 😃
oliver79637 paige0501
Posted
Hi, have you ever had your bite checked by an orthodontist? the ET is right next to the jaw so if the jaw muscles are affected it can affect the ET as well
michael11955 oliver79637
Posted
My bite is perfect & actually don't have ETD,but that is how my GP refers to it because like the three MRIs I've had he has no clue what else to call it. If you read what I've submitted here previously you might be able to understand from where they are coming.I have no pain whatsoever,but I do have is enormous pressure in my head & ears & they suggest it must be only in my mind.You cannot be surprised to know how deliriously happy that makes me.
oliver79637 michael11955
Posted
I haven't read your other comments but I will say that there are loads of ways in which the bite can look good but still be bad for jaw function. Too far forward/back/slightly sloped.
There's adevice called a t-scan that you might find useful.
If you feel pressure then muscle forces are something you should definitely look into