1. Community
  2. Brain and nerves
  3. Pituitary Disorders

No tumour.. So confused

Posted , 4 users are following.

emily52713
emily52713

I had another mri done with contrast and it showed enlargement of my gland, but no tumours.

Is there any other causes for enlargement?

If there is a tumour elsewhere such as adrenal glands, could this causes enlarged pituitary? Im freaking over adrenal cancer.

Im not sure what else i should do. Im still feeling really tired, fatigued and so on.. Should i be worried about it?

0 likes, 8 replies

8 Replies

  • sheryl37154
    sheryl37154 emily52713

    Posted

    What is your doc telling you?  Perhaps a large pituitary gland is ok.  Have all your pit gland hormones tested normal?  A distorted shaped one usually indicates an adenoma.

    My pit gland has now shrunken to teeny, tiny from medication for a prolactinoma - an adenoma causing excess prolactin.  I am told that is ok too.

    • emily52713
      emily52713 sheryl37154

      Posted

      The doctor has basically said that everything nasty has been ruled out that could cause pituitary problems and that because ive had two mris that havent shown anything but an enlarged pituitary they cant seem to find a problem.

      Ive only had my glucose, prolactin and thyroid checked. My thyroid was slightly under so he said it doesnt need treating.

      The really should be checking my cortisol levels.

      My concern is now that it is another gland playing up such as my adrenal glands and im freaking over adrenal cancer that could be causing my pituitary gland to enlarge.

      I do infact have some symptoms of cushings, however my doctor is thinking that maybe i do not need sending to an endocrinologist.

  • sheryl37154
    sheryl37154 emily52713

    Posted

    Has your dr tested you for cushings or done any adrenal tests?  Tell him you would like it to be eliminated, whether by himself or by an endocrinologist.  There is no point freaking over anything until it is proven.

    I went through a battery of tests over the years until it turned out I had haemochromatosis.  That could have been simply discovered by drs doing an Iron Studies test which is a window to a lot of health issues.  Has your dr done an Iron Studies?  Make sure you ask for a copy of all your tests so you can go over them yourself and not backtrack because of anxiety.  Seeing normal levels for yourself reduces anxiety.

    When you get your Iron Studies results, let me know what they are.  I have seen lots of them.

    • emily52713
      emily52713 sheryl37154

      Posted

      No they havent done any tests on my adrenal glands. i think i may of had my iron levels checked as they wanted to rule out anemia.

      since my pituitary gland is fine but just enlarged surely there has to be something wrong with another gland somewhere. i am hoping to here back from them with a possible appointment with an endo so then things can be sorted.

      if they do not decide to send me then i will have to go back to the doctors to explain that other checks need to be done.

    • sharon04040
      sharon04040 emily52713

      Posted

      Hi Emily, Can I suggest that you ask to see an Endocrinologist. I too have an enlarged Pituitry Gland but I went to the Endro clinic, had some various tests to do with the gland.. In August last year I was diagnosed with Adrenal Insufficiency..I had NIL cortisol, basically my adrenals are no good. I now rely on tablets 3 times aday for the rest off my life.. since then there really hasnt been any change in my health other than I apparently have CFS and Fibromyalgia, IBS, RLS, and other problems...However I went to a routine visit with my Consultant in March, and I explain I didnt really feel any different, he then pointed out that my Growth Hormone level was low when tests had been done in August last year. I agreed to do another test and I am now waiting to go to the clinic to recieve medication for this, my fingers are crossed that this will help, like other people please dont be fobbed off with blood tests at the doctors they do not detect anything, ive been ill since 2007, and only now im recieving help. Good luck x
  • sheryl37154
    sheryl37154 emily52713

    Posted

    Which specialist requested the mri in the first place?  Usually it is an endocrinologist!  If it was not an endocrinologist, I cannot understand why the first specialist did not refer you to one given the outcome.

     

    • emily52713
      emily52713 sheryl37154

      Posted

      I have it all sorted now, I was diagnosed with Hashimotos last month. It was a neurologist who ordered me the mri due to headacjes, and then after finding the englarged putuitary I was sent to an endocrinologist who did tests for my thyroid and antibodies.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.