Non-coeliac gluten sensitivity /for 6 years undiagnosed
Posted , 4 users are following.
Hi everybody in the forum
I am have chronic diarrhea starting at 2008 till now. All tests and colonscopies done by 4 GI specialists at USA till 2013 .Finding is
unknown inflammation at ileum. They tried Crohns and TB medications
but got more worse.At this period 6 years my food is very limited and i lost my appetite for any meat or fruit . At 2014 I made alergy and food sensetivities at specific Lab. at USA. Finding is non-coeliac gluten sensitivity. From that time till now i eat only vege , apples ,chicken and lamb meat and use Date instead of suger for drinking bla ck tea. I had improved 60 percent and my whight go to 133lb. I can eat any thing except products having gluten. My question is how can restored the 40
percent ? is depend on some supplements that must be taken or need more time to get my full health? Please if some individuals who have experiances with these disorders that i have,or their friends or relatives to give me their stories and advises . Thank you for all and my wishes to
share our experiences .
1 like, 3 replies
laurie99463 nori641
Posted
Inflamation is a nasty culprit that plagues many of us with Celiac. You may or may not have Celiac Disease but since so many symptoms are the same we might as well treat your symptoms as if you do. Look out for tea - why? Consider the bag itself. Is it manufactured in a GF manufacturing firm? How about the paper tab? The box? Caffeine is know to initiate the autoimmune disease in some of us - use caution on this one too. Review the FODMAP diet and begin an elimination test of items you find there that you regularly eat - apples being one of them. High fructose is another potential irritant. Here are a few things to take positive steps towards feeliing better:
1. Lactade before eating anything questionable has helped me (except for gluten)
2. Freedavite is a great multi-vitamine and mineral suppliment
3. Align is a great probiotic suppliment
4. Radiance CO Q-10
5. Use caution on your vitamine D
6. Try to find items NON-SOY - soy can also be a challenge
All the best to you!
Laurie
elleng nori641
Posted
Hi
I have restricted eating too and low body weight. So frustrating! I have recently started taking digestive enzymes and my bowels seem to be improving...fingers crossed! I'm trying to expend my diet again but find it such a long laborious ordeal...any tips?
All the best
laurie99463 elleng
Posted
I might have a few tips. It takes about 18 - 24 months to BEGIN to settle into a diet. Unfortunately, foods change and you have to be diligent in checking on foods if you should get sick. You simply have to have a journal - I hate it, but it has been my saving grace. Write what you eat and how you feel - DAILY. You will have something to go back on later - and when you are sick, you really can’t remember how you felt the last time - so you think you are dying again!!! I have Lundberg Brown Rice Organic Rice Cakes (2) with my own peanut butter and sliced bananas. That’s breakfast. About 3 hours later I take two Lactaid and a Chobani SIMPLY 100 yogurt. I live on chicken. My wife has learned to make numerous recipes. I also live on fish. I know salmon is good for me but it is kind of difficult for me. I enjoy Ancient Harvest GF products such as Ancient Harvest Spaghetti. Cook ground turkey and mix Rao’s Sensitive Formula Marinara sause - it is safe and wonderful but you might have to purchase by the case online. So lunch is leftovers and dinner is ... well, dinner! I can drink wine and I absolutely enjoy it. Our diet is limited - that’s just a fact. There are a number of ways to cook chicken and turkey burgers or ground turkey to enjoy a variety of sorts ... I do take Align, a probiotic. I hope this helps!
Bundles of hugs,
Laurie