Non Painful Migraines each week, meds wearing off

Posted , 3 users are following.

When I hit 22 (I'm now 33) I started waking up once a week hating contact with water (the thought of it actually feels like acid), feeling faint, up/down energy levels, heavy eyes, unable to focus, and my legs feeling almost out of control - though they are not, it's bizarre. It took 8 years for me to be diagnosed with migraine, the doctor gave me Sumatriptan which worked wonders for a whole year! No attacks turned into a migraine. Then my body became used to these drugs, so we swapped to Frovatriptan one month and back to Sumatriptan the next. Due to the nature of these drugs, I get more frequent warnings a migraine is coming (head pressure like the back of a pin, and icy sensations sometimes going up and down my legs, and the feeling of not controlling my legs), so take them almost ddaily. I'm not finding after just 2 weeks each drug looses it's effectiveness. I'm getting really depressed now I can't take part in normal life, never being able to commit to something because I don't know how I'll be that day. I can't see that I'm getting these attacks due to eating something, as I'd have noticed a link surely by nearly 14 years.

I'm going to Chichester hospital about this but I'm skeptical due to there being no cure. These migraines never hurt but still completely ruin my day/s where all I want to do is hide away.

I'd really like a solution that kicks in when the migraine is there, and solves it within an hour or so, as I'm often needlessly taking the drugs I have incase the warning signs are real.

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5 Replies

  • Posted

    * I'm not finding after just 2 weeks each drug looses it's effectiveness. I mean I'm now finding!...
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  • Posted

    Hello Simon. If I were you I would wait until you have your hospital appointment before you do anything else. I only hope you don't have too long to wait. The consultant there may have other ideas and come up with a different diagnosis. As a nurse I also know that doctors in hospital have access to medication not always available to GP's. They also know the most up to date research as they usually have one speciality so just focus on that. Please let us know how you get on. I know this is so debilitating for you but there is some hope.
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  • Posted

    Simon I feel for you I'm on 12 Imigran a month I try it limit it as they can cause rebound, I know what you say about your life I'm the same can't commit to stuff depressing isn't it

    I'm about to go on Botox and flouranazine as the last thing to try, Imigran does work for me and I'd be happy to take it daily but I'm unsure if that's possible, let your hospital advise and good luck

    I often find Imigran followed by alka seltzer XS someone works better

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  • Posted

    Thanks -so when do you take Imigran? With my drugs I usually wait 15 mins and if the sensation of a build up is there I take the drug. It's just unclear what is a real migraine build up and what a sensation is that ends to nothing. Hence why I take them nearly daily.
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  • Posted

    Yeah you sound like your doing what most of us do, I wake everyday with head pain, either very mild or annoying,mi either gamble and it turns into a migraine meaning I need to have a sleep and immigran, or it will just be a slow annoying thud all day, making work not much fun. Or it will subside, subsiding doesn't happen to much I will add.

    If I bite an immigran in half to try keep quantity down I have 100 mg tabs this normally put me in a good place for the rest of the day.

    I do however get headaches that immigran doesn't touch, more of a general ache like it's coming from the core of my head, these are the worst, immigran and alka seltzer sometimes helps....

    One thng to try is have a bath on a morning not a shower, showers heat your head up, and make blood rush to it, hence could speed up head pain, if you get a bath and leave ya head alone, the blood goes from your head to your feet and hands thus eleivaites the flow a little, worth a try. I shower every morning and I've been bathing lately seems easier on the head....

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