Non-stop muscle twitching and "running ants" feeling

Posted , 103 users are following.

Hello everyone,

it will soon be a year since this problem of mine started and nobody has yet found a solution to it, so I thought I have nothing to lose by asking here.

Around April last year I started getting muscle twitches. Out of nowhere. It continued for a month, until I finally went to doctor about it, no fun when your fingers get all jumpy when you sit still, or your muscles twitch so much it wakes you from your sleep. It's pretty unplesant when there's muscles moving under your skin all the time. In the thigh, in the leg, in the finger, in the neck... I think I even had it in the eye once. I so much wish it would just stop.

Doctor said it was a lack of magnesium, but a few months later the problem persisted, and a new sensation developed in my left shoulder blade - the warm buzzy "running ants feeling". I moved to another country, so went to another doctor there. That doctor stated that my neck is very stiff and asked if I suffer from migraine, which I don't think I do. They said I should try exercising a bit more - it should exhaust the muscles so they don't have the energy to twitch. They also prescribed going to a physiotherapist, which is a pretty expensive procedure to me, so I am still hesitating. In the meantime, the muscle twitching has subsided to a few times a day, however, the "running ants feeling" became more frequent. Exercise doesn't seem to alter it that much...

Other minor problems I have that might be related to this are heart rhythm problems in the evening and inability to stay in a bent-down position for more than a few minutes (gives me a terrible headache and dizzyness), I also suffer from obsessive thoughts, really often (I mention this since I have heard that psychological health matters a lot when it comes to muscle twitching) If someone could comment on this I would be really grateful. Doctors say they can't do anything about it, but they didn't really think of checking my nerves - maybe there's a pressed nerve, or something?

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  • Posted

    Hi I was wondering if you got a diagnosis..

    I have a twitching problem too.. My body twitches everywhere 24/7 and no diagnosis.

    Along with this I get shooting pains in my body and head.. Idk what to do anymore it's frighting me.

  • Posted

    I have been having IDENTICAL symptoms you have described and the majority of them appeared after I have a crazy rash breakout for a few months which was my capillaries leaking underneath my skin, and they put me on prednisone. I too have been to a ton of all kinds of docs and everything always appears normal, except slight low on b12 and very low vitamin d. I also have a whole of brain fog which is very irritating and occasionally a hot sensation on the top of my head such as having been out in sunlight for awhile. Do any of these sound familiar and have your found any triggers and answers?
    • Posted

      Hi. You need b12 treatment. B12 will repair damage that is causing your symptoms. Neuro damage can occur once b12 is in decline. Hope you have been offered b12.
  • Posted

    Hi Futari, I know that your post is old but I have been dealing with the same symptoms as you. Turns out I have a disease called MGUS but I am not sure if that s the cause of my issues. Have you been tested for it? Do you still have the same symptoms? Did you find any relief my some medications?
  • Posted

    Hi Futari, 

    Keep looking and you will eventually find answers. It's frustrating when doctors tell you that the problem is anxiety when you feel it isn't. Anxiety can be secondary to a physical problem and there is sometimes no good way for them to tell which came first, a physical condition or anxiety. When it's a result of a physical condition it's called 'secondary'. When tests show no other problem it's called 'primary'.  So when they can't find a physical cause they decide it's primary. That isn't to say it is though. It may be that they are not able to figure out what the physical problem is. Very often with Lyme, all the tests done will come back negative. That's because there is no realiable test, that doctors usually do, for Lyme. I'm not saying that you have Lyme, but it may be something for you to consider. All other causes should be investigated. But when symptoms are presented with a constellation of seemingly unrelated causes, Lyme is suspect. The symptoms that you mentioned were: muscle twitches, warm buzzy ‘running ants feeling’, stiff neck, heart rhythm, inability to stay in a bent-down position for more than a few minutes – causing headache and dizziness, obsessive thoughts, low levels of vit D, ugly thoughts. These are ALL symptoms of Lyme. There are a lot of overlapping symptoms of Lyme and other diseases though. You might find it helpful to find out if you live in now or have in the past lived in,  or have been in, a Lyme endemic area. However, even if you have not, it doens't mean you don't have Lyme. The tics that carry Lyme don't read maps.  They can be carried by birds that migrate, or by people or their pets visiting another area, or can be migrating to another area themselves. The most helpful test for Lyme invovles a Western Blot that examines Band 31, 34 and 93. These bands are so realiable that they were originally used to make a Lyme vaccine.  Do some research, but stay open minded to all possibilities. Perhaps you will find it helpul. 

    When you see a neurologist, he/she will do a number of studies to determine if the problem is neurological. It is important to follow through with the prescribed tests to rule out other serious issues. It's a process of elimination. 

    I do hope you will find or will find relief. 

  • Posted

    i do have the same sympoms had alot of tests and ct scan nothing and now im on anxiety meds paxil,also its worth getting tested for lyme if you remember being bit by a tick but watch out for llmds most are a bunch of sharlatans that will diagnose you with it because you have lyme sympoms wich if you check the sympom list of chronic lyme there are over 200 sympoms and even a fart will be one, go to a infectuous disease doctor he will do an elisa you are sick for more than 4 weeks its gonna be good if the elisa is positive doesnt mean you have it he will do a western blot to confirm if that is negative you probably dont have lyme,please dont ask about your symptoms on lyme threads or sites lyme activists probably 99% dont have it but they will sure diagnose you with it dont fall in that madness they will tell you the find the holy llmd whos gonna give you months even years of antibiotics and test you for it and other 10 more disease that they say comes with lyme at a suspicious expensive lab they will sell to you everything from supplements and all the medicine just to make money off you and their lyme suporters are so convinced they dint have positive tests at a verified lab or hospital but strangely they are postive at these llmds so watch out ive been there i made the stupid thing to ask about my sympoms on lyme forums where all of them are on treatment but not one of them are better they will tell you about a succes story or two but is most likely just stress and anxiety for all your symptoms and mine so take care
  • Posted

    Please everyone ask for vit b12, folate and ferritin tests.

    All the above symptoms are common in b12 deficiency. Ask for printout of your results as too many labs have their normal range set too low. Malabsorption can cause deficiencies in b12, vit d, folate, ferritin and other nutrients that result in horrendous symptoms.

  • Posted

    I am having the same symptoms as  you , or so it sounds the same. I also wake up night or day with a nervous trembling feeling inside, it started across my chest but now it feels like I am shaking on the inside. I went to a nueologist when this first started and it was nothing , but maybe low b12 then things started getting worse. Now i have muscles twitching and you can see it like crawling under skin. it started in my right leg and now it is in back , arms, shoulders, stomach, inside in stomach i feel it then have cramps severe! my eyes twitch occasionally , my face twitches and goes numb when i am talking , the worst was when my tongue was constantly feeling like it was swelling and tingling down the middle, that , thank god , has subsided for now. I went again to doc and going next week for tests to rule out ALS and other things. I am scared to say the least. I have been trying to think this is just an anxiety high stress issue. (xanax seems to make them subside some) I am scared. I was curious since you posted this so long ago , if anything has changed??? 
    • Posted

      I still have muscle twitching and some cramp but not as severe as you.  There is a thing called benign fasciliation syndrome which is very similar to things like ALS.  I thought with ALS twitching came after weakness.  Where do you live?
    • Posted

      sorry replied to the wrong person lol I live in Illinois and I have had some muscle weakness a few years ago though. Hopefully this is benign or anxiety related. thanks for your response. the twitching and cramps suck!
  • Posted

    I live in Illinois . I do not know if the twitching comes first or weakness. I have had some weakness in my arms at times. I pray that mine is just anxiety (I have anxiety issues also) Or just benign . thanks for your response
  • Posted

    Very interesting.  I have a vit d deficiency 

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