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paulette_16615
paulette_16615

It’s been six months since I was diagnosed with multiple blood clots, can anyone tell me when I should start feeling myself again, I really struggle to walk my legs always hurting!! Pains in my chest and back, (didn’t have clots in my lungs) I am only 50 years old but I feel I’m trapped in the body of a 80 year old 😩

0 likes, 10 replies

10 Replies

  • Guest
    Guest paulette_16615

    Posted

    Are you still on anticoagulants? If so, it could be a side effect from the medication! My daughter had PE and had many side effects from her meds! You should definitely go back to your doctor for a thorough check up! Do you know the reason you had PE? Any underlying issues? Have you had all tests done in order to find out what caused it? I am sorry and I know exactly how you must be feeling! It is not only physically painful but affects us even more on a psychological level! Be strong and don’t stop asking questions! 
  • samuels
    samuels paulette_16615

    Posted

    Hi,

    ?You say you had multiple blood clots but not in the lungs, did I read that correctly ?. If I did and you are experiencing chest pain and back pain especially when breathing in and out I'd suggest you get down to your emergency department.

    ?If indeed you did have/had clots in the lungs, known as Pulmonary Embolism, what you are experiencing is normal and can take 6-12 months to fully recover, depending on the severity of the clot(s)

  • samuels
    samuels paulette_16615

    Posted

    In fact if you are currently experiencing chest pain, definitely get to an emergency department, make it a priority.
  • paulette_16615
    paulette_16615

    Posted

    Hello everyone, I had my gall bladder removed in January 2017, two weeks later admitted to hospital with infection, they told me I had a cyst on my spleen!! All year was a struggle for me, I collapsed twice and eventually it turned out it wasn’t a cyst but a very large blood clot which broke off into my legs, kidneys, bowel and my heart! I’m on blood thinners for life which I struggle with as I do like my wine 🍷 I’ve had all the tests done and everything was normal it was a result of surgery. I know it sounds like I’m winging but I just want to be myself again, everyday is such a struggle with exhaustion 

    • samuels
      samuels paulette_16615

      Posted

      If it entered your heart and kidneys and it's extremely painful I'd be getting to the ER. things may of changed and some damage maybe occurring, not saying that it is, but better to be safe than sorry. I still get exhausted from my PE every now and then, nowhere near as much as I use to and it's coming up to 12 months soon since they found heaps of clots in both my lungs caused by a suspected DVT in the calf muscle.

      ?You could probably still enjoy your wine, just not a lot, it's just a matter of speaking with your specialist or GP.

      ?Have you had a heart echo to see if there was any heart strain or other damage ?  Now that you have mentioned your situation the back pain is falling into place, is the pain around the kidney area ?

    • paulette_16615
      paulette_16615 samuels

      Posted

      I have had echocardiogram, 2 ecgs and wore a heart monitor machine for 7 days, I have a big appointment on the 16th of this month to discuss my progress, I’m currently waiting for another ct aniogram!! The pain is mostly in the left hand side of my chest, my son is a paramedic and he thinks it’s muscular and anxiety!! I’m hoping to get more information when I visit my consultant!!!
    • samuels
      samuels paulette_16615

      Posted

      He could very well be right, but heart pain is generally felt on the left side, not always I know, but generally is, in fact heart pain can present as indigestion through to pains in the stomach. Your back pain is that in the kidney area ? 

      ?That's what I thought I had when diagnosed with multiple  blood clots in both lungs, I thought I had strained a muscle, how wrong was I and my GP, but then again the GP had no reason to suspect a PE as I didn't either. I was just lucky I had a switched on triage nurse when I presented with chest pain.

  • cathy428
    cathy428 paulette_16615

    Posted

    I was diagnosed 3 weeks ago with DVT and several PEs and now on blood thinners for life. I get tired with any exercise even shopping. Pain in legs, chest pain, back pain and breathless having to use an asthma inhaler. Last time I had multiple PEs I was even worse for months so I do believe it can take months to feel better. Seeing Consultants this week and next week.
    • paulette_16615
      paulette_16615 cathy428

      Posted

      I hope you have good news with your consultant and feel better soon! It’s awful not being able to walk very far isn’t it! I’m on my feet most of the day with my job let alone general household jobs, shopping etc! I’m exhausted 24/7 ! It’s been six months for me and I feel with all the pain I’m experiencing things are getting worse rather than better, I’m seeing my consultant next week and I really am hoping for some answers, my main concerns are has there been any damage left especially in my heart!! 
    • cathy428
      cathy428 paulette_16615

      Posted

      Thankfully we are both retired but my hobbies of walking and bird watching have had to be put on hold for months. Hubby doing more in house and some shopping. Over reached myself yesterday went to a large local shopping centre, walked 2 miles but sat often, as it was a special day. To say I was exhausted is an understatement! Good luck with your appointment.
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