Normal inflammatory markers but continuous arm pains !
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Hello all. Curious to understand why my arm pains(and sometimes back of thighs too) very often stay with me all day and have done so since reducing from 10mgs in January. I occ' get tender wrist joints and stiff hands. also 'tingling muscle sensation' on calves. CRP/ESR have remained in normal levels, not rising all year. Consultant says lower limb pain/sensation not PMR but I have a memory of Eileen saying that others have had the same? I have ignored the 'pains'.. approx level 3/10 throughout .. and carried on reducing slowly, now at 5/4mgs. Did have high CRP/ESR & 40mgs at Diagnosis.
Because of arthritic knees & weak quads, my poor biceps get quite a daily workout too.
Would love to know if others have similar tale to tell? My suspicion is that it is the PMR and think mod discomfort is certainly preferable to increasing my Pred ?
1 like, 16 replies
EileenH Guest
Posted
If it is a pain that goes with pred I am not willing to compromise. But then, after 13 years of PMR, 8 of them on pred, I want the best QOL I can have. Just like Rimmy.
Christophe - not everyone is totally pain-free even on the higher doses. But the chances are that pain/discomfort that doesn't go then is an add-on although it took a few months for the pain I had due to bursitis and tendonitis to go - and they were almost certainly PMR-related. To some extnet it depends how long you have had PMR. If you have had it undiagnosed for a long time then it is likely that things like bursitis and tendonitis have become quite established which may not be the case when you diagnosed and put onto pred quickly.
Sharon - you can have both PMR and RA and they often need to be managed separately. If your current rheumy won't accept that - perhps you need another one.